Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Intolerances?

jmengert

By jmengert
in Related Issues & Disorders

Recommended Posts

jmengert Enthusiast
jmengert
Posted

I've been gluten free for a year and a half now, and the past few months I've been having problems again. They are similar to my gluten symptoms but different, too (no weight loss, no anxiety, etc.--just mainly GI issues). I know for a fact that I'm not getting gluten, and I don't eat out, so it's not that. So, I think it's other food intolerances, especially dairy. I cut dairy/casein out this weekend, and I feel a bit better. My question to you all is, for those of you who have other intolerances, how long did it take for you to feel completely better once you cut those foods out? Days? Weeks? I just hope it's not anything worse than a food intolerance.

Thanks for any input anyone has!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green12 Enthusiast
Green12
Posted
I've been gluten free for a year and a half now, and the past few months I've been having problems again. They are similar to my gluten symptoms but different, too (no weight loss, no anxiety, etc.--just mainly GI issues). I know for a fact that I'm not getting gluten, and I don't eat out, so it's not that. So, I think it's other food intolerances, especially dairy. I cut dairy/casein out this weekend, and I feel a bit better. My question to you all is, for those of you who have other intolerances, how long did it take for you to feel completely better once you cut those foods out? Days? Weeks? I just hope it's not anything worse than a food intolerance.

Thanks for any input anyone has!

I think it's a different time frame for everyone. From reading different posts on this board it looks like it's a mixed bag. Several people are forever battling and trying to figure out their multiple food intolerances, while others cut out one or two things and they get immediate results and thrive.

kabowman Explorer
kabowman
Posted

I just found out two new things to watch, one an intolerance - I think, just this month. I cannot have any meat if it has been sitting out in the meat section, I only seem to be able to eat meat behind the counter, not wrapped, not packaged. Also, no more non-dairy milk (except I haven't tried my Vance's yet - I will, I will), no rice, no hazlenut.

For me, if it is bothering me, I can eliminate the food, once I have figured it out, and start to feel better in a day but it really takes up to a week to get it out of my system.

Most of my problems are GI but my knees ache when my food gets messed up, any food - they really are my best indicator that something is really making me sick and it isn't my GI out of wack again.

lindalee Enthusiast
lindalee
Posted
I just found out two new things to watch, one an intolerance - I think, just this month. I cannot have any meat if it has been sitting out in the meat section, I only seem to be able to eat meat behind the counter, not wrapped, not packaged. Also, no more non-dairy milk (except I haven't tried my Vance's yet - I will, I will), no rice, no hazlenut.

For me, if it is bothering me, I can eliminate the food, once I have figured it out, and start to feel better in a day but it really takes up to a week to get it out of my system.

Most of my problems are GI but my knees ache when my food gets messed up, any food - they really are my best indicator that something is really making me sick and it isn't my GI out of wack again.

Have you tried eliminating all grains and night shades? LLee

lindalee Enthusiast
lindalee
Posted
I've been gluten free for a year and a half now, and the past few months I've been having problems again. They are similar to my gluten symptoms but different, too (no weight loss, no anxiety, etc.--just mainly GI issues). I know for a fact that I'm not getting gluten, and I don't eat out, so it's not that. So, I think it's other food intolerances, especially dairy. I cut dairy/casein out this weekend, and I feel a bit better. My question to you all is, for those of you who have other intolerances, how long did it take for you to feel completely better once you cut those foods out? Days? Weeks? I just hope it's not anything worse than a food intolerance.

Thanks for any input anyone has!

they say calcium keeps you thin--if weight is a problem-eat calcium foods. magnesium helps it to absorb. LL

kabowman Explorer
kabowman
Posted

I have played with the grains and some plain rice doesn't bother me, I just don't overdo it. Also, I was afraid I had issues with potatoes but now that I fixed the other things, I am fine and I have potatoes on a regular basis.

My sister has issues with nightshades.

Rhonda Newbie
Rhonda
Posted

Julie,

When I was trying to figure out what was causing the dark circles under my daughter’s eyes, I read that it takes 2 weeks for your body to get rid of the bad stuff and to heal enough that you notice.

When I finally cut out dairy and chocolate out of her diet the dark circles went away in two weeks.

When my son gets sulfites, it takes him two weeks for all of his problems to go away too. I would give any new diet changes at least a two week trial. I have had some luck doing a Google search on the symptoms and adding the word allergy. Sometimes you can find people who have written their story. These stories seem to be more accurate and helpful than people who write articles. Good luck figuring it out.

Rhonda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nate Apprentice
Nate
Posted

Interestingly, I recently found out that it was fructose that was causing my indigestion problems (someone has recently posted a link to fructose malabsorbtion). I can tolerate some of it but I have to eat a lot of starchy foods.

My stomache will start gurgling really bad then the next day I'll wake up and feel/look like crap. Huge dark circles under my eyes, gluten symptoms but without anxiety.

This has been a hard bullet to swallow this past couple months but now I know and I feel better. The hint for me was that I have never been able to handle fruit juices.

At least I can handle milk which I guess is a bit of a blessing. For the longest time I thought it was milk but nope! ;)

I've been gluten-free for 2.5 years now.

Good luck

N

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.