Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reality Hits Once Again...


num1habsfan

Recommended Posts

num1habsfan Rising Star

Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

I see the forest through the trees on some days and others all I see is a lot of tall sticks with leaves...

I had to come to terms with the fact that I have more bad days than good. I also removed all "BAD" food from my house. Is this possible for you to do? If not, perhaps you could keep a supply of your absolute favorite, safe foods in the house... I just started to keep gluten-free brownies in the freezer for those special moments. Many people at work eat my favorite, unsafe foods often and I must see this. So in order to keep my head above water... I started to bring to work and keep at home my really favorite, safe foods. I love chocolate and I found a snack bar made with honey and sesame seeds that I love!!!

I hope it helps!!!!!!

jerseyangel Proficient

Aw Lisa--don't be too hard on yourself--it happens to all of us from time to time. It's natural to have feelings like that--experience them, and then let it go. :)

nettiebeads Apprentice
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

Why should you feel like an idiot? You're a very normal human being that has a disease that is so not mainstream. It's frustrating at times. After nearly 10 years of this, I'll still look in the pantry and just want to give up - same ole same ole and I don't want to spend outrageous prices for something yummy or cook from scratch. At least this forum is a safe place to vent and find out you're not alone.

Annette

Lymetoo Contributor

I hear ya, Lisa! I"ve struggled for years with my health. I also have Lyme disease which is so misunderstood by the public. People have no clue how bad it is. Now I found out I'm celiac too and I've had it a LONG time, I'm sure.

I haven't cried yet, but I'm pretty down today as well. Crying is good for the soul and for your emotional well-being. Go for it! :)

Mango04 Enthusiast

Don't feel like an idiot. You can cry over food! Just go make yourself a yummy gluten-free pizza or cake or something :D

Lisa Mentor

Lisa:

I can truely relate. It will be a year in August in my attempt to be gluten free. I have not had the outcome that I wanted to achieve. It is a daunting task.

It has been a crazy year for me and now, life slows....It is now a point in re-evaluation for me.

I think every step of they way, you need to see where you are and make judgements as to where you are today and where you want to go tomorow.

Yeah, I get mad on the inside about what I have to do to eat. And, I get mad about the effort and the research, and the choice not to eat anything that I don't know is safe. I get mad that I can't go to a wondeful resaurant and order what sounds good. Can get really angry. And then what............

So I get pissed, or I can get over it. Those are the days long ago. They are over for me. So.. you adjust. You learn to be a better cook. Which I am. But I want those days, with a date night with my husband and a choice of a menue was not an issue or a hardship or an issue with the server.

sorry do be a downer tonight, just in that mood............what is the topic, by the way.??

Is this revelant to the post?????????? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ashley Enthusiast

I understand how having Celiac Disease seems unreal. Don't feel that way. You are certainly not an idiot. During the first three months, I would not go to any store. When a commerical came on showing my favorite, gluten-containing foods; the television was turned off. I have days too were it all crashes down and feel bad. In time, it will pass.

Wishing for better days for you :)

-Ash

Ursa Major Collaborator

Lisa, don't feel like an idiot! I get those moments, too. It really is hard sometimes, and it's good you can come here and vent, because we actually understand and won't say (like my daughter at times) things like, "What a baby you are, crying over food!" Well, since they can eat all the stuff I want, they don't have a clue what it's like!

So, I say, it's okay to sometimes cry over what you've lost, and then move on. It would only be a problem if you would be upset about it all the time.

num1habsfan Rising Star

Thank you guys for saying that I'm not dumb, and showing that I am not alone. I dont get it -- I have seen this food a zillion times before, and NEVER had a problem with it before ... so why it set me off now, I dont know.

Its not like I dont accept Celiac, maybe its just that everything else today is making me sad lol

~lisa~

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,989
    • Most Online (within 30 mins)
      7,748

    CharlotteCaroline
    Newest Member
    CharlotteCaroline
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.