Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do If They Dont Give You A Strait Answer?


lightningfoot speakin words

Recommended Posts

lightningfoot speakin words Contributor

I called post about their fruity pebbles bronto bites and the person said that they will put the dereritive if its from gluten and I said well can you just tell me because I dont really know. Then she got all snappy and had a cow and was like I CANT HELP YOU!! I AM NOT SPOSSED to because I AM A JERK!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

General Mills will clearly list wheat, barley, rye, and oats in the ingredients. They won't hide gluten under natural flavors or anything like that. Sorry you had a bad experience.

tarnalberry Community Regular

The companies that have a policy of clearly listing on labels won't generally tell you about particular items over the phone precisely because of their policy. They've shifted responsibilty to the label - they know their formula's change, so they take accountability at the labeling stage and use their labels to convey consistent information, not customer service representatives who can't know what the label you're looking at says. That means you become responsible for looking for the words "wheat" "barley" "rye" or "oats" on the label.

I kinda like that approach, myself.

kbtoyssni Contributor

I get annoyed when a company can't give me a straight answer (assuming they're not one of the companies who say that gluten will be on the label) and usually refuse to buy their food. I don't need that kind of hassle and I'd rather give my business to a company who knows what gluten is.

penguin Community Regular

Just so we're on the same page, Post makes the pebbles cereals and is a Kraft company, which means they'll clearly list wheat, barley, rye, and oats, even if they occur in trace amounts.

psawyer Proficient

This has been posted elsewhere, but here is the list I have of companies/brands that will always clearly disclose gluten sources. Many of them will tell you to read the label, and has been pointed out by others in this thread, that is a good thing!

My List:

Arrowhead Mills, Aunt Nelly's, Balance, Baskin Robbins, Ben & Jerry, Bertoli, Betty Crocker, Blue Bunny, Breyers, Campbells, Cascadian Farms, Celestial Seasonings, ConAgra, Country Crock, Edy's, General Mills, Good Humor, Green Giant, Haagen Daz, Hellman's, Hershey, Hormel, Hungry Jack, Jiffy, Knorr, Kozy Shack, Kraft, Lawry's, Libby's, Lipton, Martha White, Maxwell House, McCormick, Nabisco, Nestle, Old El Paso, Ortega, Pillsbury, Popsicle, Post, Progresso, Ragu, Russell Stover, Seneca Foods, Skippy, Smucker, Stokely's, Sunny Delight, T Marzetti, Tyson, Unilever, Wishbone, Yoplait, Zatarain's.

There may be others as well. Post is on the list.

tiredofdoctors Enthusiast

Will have to look in my pantry to give more brands . . . What I have come across, more often than not, is that the companies will take responsibility for their PRODUCT -- that they don't add anything that contains gluten. What they won't take responsibility for is checking from their suppliers if THEY have any gluten-containing ingredients in what they are purchasing from them. This is especially true in women's cosmetics, soaps (fragrance) things of that nature.

An example of that in food is, say, Company A makes soup. They list on the label "natural flavors". They purchase the natural flavors from Company B. Company B, for whatever reason, uses gluten-containing products, maybe to thicken the natural flavors into a paste that can be added to Company A's vats. Company A, that manufactures the soup doesn't put gluten into their product; however, they don't check with Company B, the supplier of the natural flavors to find out if their product contains gluten.

It seems to me that is the biggest "loophole" in the whole labelling system . . . and tends to decrease accountability.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lightningfoot speakin words Contributor

sorry, I kinda lost my temper with the whole situation. I understand but it would make it a whole lot easier if they could tell me.

  • 3 weeks later...
ms-sillyak-screwed Enthusiast

-

penguin Community Regular
I feel the same way - big companies really don't care about us.

Were we will make a differenece is writing and complaining to the FDA.

I have major issue with words like "NATURAL", "natural ingredients", "natural flavoring or natural additives".

For example - Prudue ground turkey, has natual ingredients. I called last year and they told me it's ROSEMARY. I don't have a problem with rosemary in general. But every time I eat their ground turkey, I get reactive. Yesterday I called again. The woman was nice but told me it was a trade secret. I pressed her and told her my daddyO was a friend of Frank (he really was) and that I have life threatening food allergies and I really need to know for medical reasons. She then told me its extracts from rosemary OIL. I didn't know rosemary oil EXTRACT was 'natura'l from the plant and was not processed in anyway.

Is rosemary oil extract a 'natural ingredients"?

Is SOY a natural ingredient? SOY is listed and one of the deadly 8 allergens. Why do they allow the manufacures to mislead us? We have to complain to the FDA.

I have been writing to the FDA and complain that the word NATURAL is used to loosely in the new labeling laws, these new lables need to be modified for people with special medical dietary needs. And WE must STOP them from using the word "NATURAL" in everything from body products to what we eat.

Rosemary oil is a natural product, because you just have to press rosemary leaves (in theory) to get it out. Rosemary is a plant that grows out of the ground, and is therefore natural.

As much as you like to demonize soy, it is also natural. Soy is a plant that grows out of the ground, just like wheat or grass or hemlock or an oak tree. Soy also happens to support much of the agriculture in Arkansas (and other places).

Are their labelling policies great? No. It's a good move to complain to the FDA, and also to your local senators/congressmen. :)

dkjones2 Newbie

I have found people react differnetly to ingredients, I have to avoid Rosemary and I never buy anything that says the words modified food starch unless it says corn otherwise it might be wheat. I also dont buy anything that is made "gummy" fruit snacks, swedish fish,gum drops, etc they may or may not go down a convor belt that had been sprinkled with flour some use sugars but most use flour.

lovegrov Collaborator

In this case the answer was just as straight as any company can give you. Read the lable and if it doesn't say wheat, rye or barley, it's gluten-free. It couldn't be any simpler. I wish that would be the response of EVERY company.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Surinder's topic in Related Issues & Disorders
      1

      Gluten intolerance and coughing fitsfits

    2. - Surinder posted a topic in Related Issues & Disorders
      1

      Gluten intolerance and coughing fitsfits

    3. - Aretaeus Cappadocia replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      2

      Help understand results

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

    5. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,974
    • Most Online (within 30 mins)
      7,748

    2972
    Newest Member
    2972
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough.     Case Report: A case of cough, lymphocytic bronchoalveolitis and coeliac disease with improvement following a gluten free diet
    • Surinder
      I read with interest someone's article regarding gluten and coughing and how drs could not diagnose the cause. I am a prediabetic and in the process of cutting down on carbs I slowly eliminated bread and added more complex carbs and found that my cough had gone and I was feeling generally calmer and happier. This was an accidental finding and I relate to your story. I have shared my story for you. Kind regards, Surinder
    • Aretaeus Cappadocia
      tldr: "we tested your daughter with one test and that result does not suggest Celiac. However, the test we used should not be used as the initial screening test for celiac (like it appears they did) because it misses a lot of cases ("low specificity"). No further testing is scheduled or pending" We eat "gluten" and our bodies digest part of it into "deamidated gliadin" (GLIADIN (DEAMID)). The gliadin is what actually triggers the Celiac disease pathway. The celiac's immune system sees gliadin much like an invading virus, and makes antibodies (AB) against gliadin. Each antibody has the ability to recognize a specific target (anti-gliadin antibodies recognize gliadin). When antibodies find their specific target, they stick to it and call in other parts of the immune system to help eliminate the target. This process also causes the immune system to make a lot more of that antibody, and your test was designed to measure if there was an elevated level of type A (IgA) anti-gliadin antibodies. Antibodies, which are also called immunoglobulins (Ig), come in different types (e.g. class "A" or "G"). Think of antibodies as different kinds of cars, and antibody types as different colors of car. An "A" type (color) is called IgA, and a G type is called IgG. IgA's are more relevant to Celiac disease than are the IgG's or other types. Unfortunately, some people don't make very much of the IgA class (like not making aqua-colored cars, even though they make the same cars in green) and that's a common reason for the gliadin-Ab-IgA test to fail to identify celiac. As Trents wrote, they should have given her a "total IgA" test and probably tested her for the anti-tTG IgA antibody.  
    • xxnonamexx
      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.