Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance

CarlaB

By CarlaB
in Related Issues & Disorders

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted

I've been really good lately and have been eating at home. I am so fatigued! I have stayed away from casein and gluten, so have no reason to be feeling like this. I have been consuming some soy. For those of you with soy intolerance, how does it make you feel? I have not had digestive symptoms, just fatigue and fog. I had not been eating soy, and this seems to coincide with the introduction of it into my diet.

Thanks!

Carla

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted

i feel similar to I do when I get glutened, but my body aches all over. Very fatigued too.

lonewolf Collaborator
lonewolf
Posted

I have to eat a significant amount of it now to get a reaction (not just the little bit in soy lecithin), but I get just yucky feeling and aching in my joints - especially my hands.

jerseyangel Proficient
jerseyangel
Posted

I get lower abdominal cramping, gas, and a general feeling of being unwell. Soy also makes my face break out--my face gets very oily--the only time this happens is with soy.

CarlaB Enthusiast
CarlaB
Posted
  • Author

Thank you for your responses.

Patti, my face is oily today, and I have dry skin ... I never would have connected the two. I'm also having a problem with blemishes.

Today is my first day off it and I feel worse than I've felt since going off casein. With both casein and gluten I felt like I had the flu for a couple days -- body aches, extreme fatigue, brain fog, brain fog, and brain fog!! This is how I feel today, so it must be the soy that was causing the trouble. Beverly, you mentioned body aches, I don't remember having them with gluten or casein, but I sure have them today. I feel like I've been beat up!

Liz, I can only hope to eventually reach the point your are at now!

Will this ever end? Now I'm off the gluten, casein and soy! I hope that's it! I'm really ready to feel better, I feel so useless.

Guest BERNESES
Guest BERNESES
Posted
Beverly, you mentioned body aches, I don't remember having them with gluten or casein, but I sure have them today. I feel like I've been beat up!

Will this ever end? Now I'm off the gluten, casein and soy! I hope that's it! I'm really ready to feel better, I feel so useless.

hi Carla- Hang in there... it will get better! I was actually diagnosed with fibromyalgia- would wake up every a.m. feeling like I'd been run over by a steamroller. But the physiatrist was sure it was die to a secondary issue. I haven't had pain like that since I cut out the soy.

Now the question is what to we do for a smooth, creamy frozen treat when it's 104 degrees and we can't have dairy or soy??????

CarlaB Enthusiast
CarlaB
Posted
  • Author

Thanks. No kidding! I miss my latte's, too!

Haagen Dazs chocolate sorbet, it's not creamy, but the chocolate makes up for it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

I am one of those who never had obvious symptoms, or associated anything with soy (or gluten). I have noticed lately that my knees and ankle joints don't bother me much or at all any more. This has been a problem since the 3rd trimester of my first pregnancy. Maybe that had to do with soy and/or gluten. I do know that if I get glutened now I know it, so it may be the same with soy. I am both soy allergic and intolerant, as well as gluten allergic and intolerant. Very dairy light considering going off dairy again. Currently only eat butter but I am mildly allergic to dairy as well.

oceangirl Collaborator
oceangirl
Posted
I am one of those who never had obvious symptoms, or associated anything with soy (or gluten). I have noticed lately that my knees and ankle joints don't bother me much or at all any more. This has been a problem since the 3rd trimester of my first pregnancy. Maybe that had to do with soy and/or gluten. I do know that if I get glutened now I know it, so it may be the same with soy. I am both soy allergic and intolerant, as well as gluten allergic and intolerant. Very dairy light considering going off dairy again. Currently only eat butter but I am mildly allergic to dairy as well.

Carla,

I have always known soy bothers my intestinal tract. Just can't seem to digest it- bloating,gas, crampy pain. Don't know what "brain fog" is, although this last awful year before figuring this out I thought I couldn't remember things because of being pre-menopausal, but now I wonder.Feel better.

lisa

jerseyangel Proficient
jerseyangel
Posted

Carla--I had the exact same symptoms while coming off gluten as you--I know that feeling of having been "beaten up"! I truly felt like a wet dish rag for the first 3 months or so. My tongue also felt like it didn't fit in my mouth anymore--sometimes I couldn't get a word out right to save my life :D

I went through trying to figure out all of my intolerances a while back, and the withdrawl/healing pains are truly underated! Your face will even out soon--it may get worse before it gets better. (Why is that always the case :blink: ) We're always *waiting* to feel better!

I hope this is "it" for you--no more intolerances :)

Aerin328 Apprentice
Aerin328
Posted

Soy is a pretty common allergin. I also hear that those intolerant to soy tend to be intolerant to all legumes (peanuts, etc.) Maybe try cutting those out as well while you drop the soy, just to be sure?

Carla, I hope you feel better soon! You've been so good to the people here, I'm so sorry to hear you're feeling crumby. For instance, I ordered the Enterolab testing today based on your recommendation (! :) ), and my mother, who's been chronically sick forEVER, ended up deciding to order it to. (The timing to convince her happened to be perfect, and was therefore unintentionally motivated by you!) If she turns out positive, you will have perhaps indirectly helped free someone from the gluten curse. Simple things make a big difference.

Once again, this site is a blessing upon all of us suffer with pre-agricultural-era digestive systems in the mine-field that is the modern American dietary environment!

Meanwhile Carla, remember, "this too shall pass."

jerseyangel Proficient
jerseyangel
Posted
Once again, this site is a blessing upon all of us suffer with pre-agricultural-era digestive systems in the mine-field that is the modern American dietary environment!

You have a lovely way of expressing yourself! And I agree with you :D

CarlaB Enthusiast
CarlaB
Posted
  • Author

Thank you all for your support, it is great to have you as cyber-friends! Especially since we've moved to a different state, so I don't have a network of friends to lean on yet.

I am feeling much, much better today. It's day 3 off soy. Thankfully, I had not actually been eating it for very long, so it's going more smoothly than the detoxing from the casein and gluten did. I feel better, not 100% for sure, but I was able to make it through my workout (I go to workout even with mild symptoms ... the weight lifting really got me through the bad part when I was losing weight, I think I would have lost a lot more without it), and even clean the house (with my kids help, of course!). I'm in a bit of a daze and still feel like I have a mild hangover, but it seems the worst of it is over. I've only been eating simple, natural foods, nothing processed. So, I'll have to take it really slowly adding things back in so I can see how I react.

Thanks again for your support, it really means a lot. I had been gone, came home and your posts were here waiting for me. I've not felt well for a while now, but I'm not one to complain, this time it just had really gotten to me -- emotionally as much as physically.

jerseyangel Proficient
jerseyangel
Posted

That's what we're here for :) Glad you're starting to feel better!

CarlaB Enthusiast
CarlaB
Posted
  • Author
Soy is a pretty common allergin. I also hear that those intolerant to soy tend to be intolerant to all legumes (peanuts, etc.) Maybe try cutting those out as well while you drop the soy, just to be sure?

Yes, peanuts bother me and I pretty much avoid them. If I have them only once in a while, I'm okay, but with all the other nut butters out there, who needs them?

Basically, beans tear me up, so I've also been avoiding them for a while. Funny I never thought to eliminate soy!

For instance, I ordered the Enterolab testing today based on your recommendation (! :) ), and my mother, who's been chronically sick forEVER, ended up deciding to order it to. (The timing to convince her happened to be perfect, and was therefore unintentionally motivated by you!) If she turns out positive, you will have perhaps indirectly helped free someone from the gluten curse. Simple things make a big difference.

Once again, this site is a blessing upon all of us suffer with pre-agricultural-era digestive systems in the mine-field that is the modern American dietary environment!

Keep us posted! I was very happy with their service.

rinne Apprentice
rinne
Posted

Thanks for this thread.

Perhaps you already know this, I think Chelsea started a thread a little while back about soy in supposedly 100% olive oil.

I indulged in some organic chocolate, dairy free but with soy and have been bloated and had stomach pains, :( I was hoping I could have some small treat but it is the only soy I have had in a while and I have had cocoa and sugar without the same effect. Come to think of it the last time I felt this way was when I went to the gluten free store and indulged in processed gluten free treats.

Bye Bye soy.

AndreaB Contributor
AndreaB
Posted

Rinne,

Enjoy Life makes chocolate chips without soy lecithin in them. They are pretty good and that is what I use since everything else carob and chocolate have the lecithin in them.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.