Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Aneamic

covsooze

Recommended Posts

covsooze Enthusiast
covsooze
Posted

I've been on iron for a year now, and have been gluten-free for 6 months. My heamaglobin did get back up to about 12 but is back down to 10. My iron stores are fine so the dr is checking serum iron/ trans ferrin (whatever they are!). My B12 is 370 and the GP said that's normal. I couldn't find the thread here which talks about the new recommended B12 level, despite doing a google search. Can someone help me out with that one please? I've tried googling the other tests he's done, but it's like a foreign language to me! What could he be looking for?

BTW, I'm also hypothyroid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


marciab Enthusiast
marciab
Posted

My doc told me that if B12 is under 400 then you can have nuerological problems, like numbness and tingling. She also told me though that she wants mine to be around 500. I had numbness in my hands and had almost passed out twice prior to that visit. :huh:

Mine was 280.

Are you taking B12 ? Sublingual is better absorbed than pills. I give myself injections twice a month now. Yeow !!

I'm interested to see what others have to say about the iron / hemoglobin levels. Mine is off too, but I agree, the explanations on the web are greek. :blink:

covsooze Enthusiast
covsooze
Posted
  • Author

can low hemoglobin be caused by low B12?

flagbabyds Collaborator
flagbabyds
Posted

my ferretin is WAY down, like 5 where normal is 10ish -20 i think, not quite sure...but now i am getting iron infusions at the hospital when mine gets down........................

mommida Enthusiast
mommida
Posted

You need to have proper levels of B12 to be able to absorb iron. I would also check your magnesium and calcium levels.

L.

Nancym Enthusiast
Nancym
Posted

This is probably a long shot but I just read an article about certain fish parasites (that can reside in humans) that can cause anemia and B12 deficiency.

Open Original Shared Link

queenofhearts Explorer
queenofhearts
Posted

I'm curious about the sublingual B-12-- is this an otc thing or do you need a prescription? I don't remember seeing it on the vitamin shelf but I may be looking in the wrong place. Is it a pill? Drops?

I have a feeling I may be deficient, but not getting much of a change from the pills I take.

Leah

  mommida said:
You need to have proper levels of B12 to be able to absorb iron. I would also check your magnesium and calcium levels.

L.

Was it you who recommended magnesium a few weeks ago? I decided to try it & I think I've detected more stamina. I was always afraid to take it before because of the D issues, but now that's so much better that I dared to experiment. So far no digestive problems!!!

Leah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,005
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these...
×
×
  • Create New...