Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sooo Sick


TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator

Today I went to my mothers house as we do every Sunday during the summer. We had our usual cookout. Todays menu consisited of london broil (marinated), broccoli salad (I made that), fresh corn on the cob and thats it. Earlier I had carrots with veggie dip that i eat all the time, and pistachios.

That being said, it wasnt a half hour after dinner, the rumblings began. I rushed to the bathroom.. the pain was awful, felt like my stomach was being ripped out. I could feel my lower stomach rumble and bubble with the gas.

We left there quickly, good thing I only live 2 minutes from her. I barely made it in the door. I was upstairs laying in bed wishing for a quick death! The agony. Boy after a few months of being realtively gluten free (just CC issues here and there), this was awful.

I ended up having to take some heavy duty pain meds to help. So the pain eventually subsided a bit, but the D and vomiting are still bad!! I cant believe this! I cant win! Yes I am having a pity party.. Thanks for listening


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

Are you sure it was gluten? I had a bout of food poisoning recently that was pretty similar in effect. Or is your mom one of the ones who doesn't believe in cc, that sort of thing?

Leah

Oh! And I just remembered, years ago I got food poisoning from some raw broccoli. I'd never heard of such a thing but I was told... how do I put this delicately... sometimes the field hygiene is not so good...

Leah

AndreaB Contributor

Was the meat marinated in soy sauce? It could have had wheat in it.

TinkerbellSwt Collaborator

Yes I am pretty sure it was gluten. All the signs are here. And I still feel absolutely awful.

The meat was marinated in soy sauce. It was La Choy, which is gluten free.

My question is, Hormel Bacon Bits? Are they gluten free?

And another question... is the cooking spray Pam gluten free? My boyfriend wants to know that. We currently use Mazola Pure and are quite happy with that. Just curious.

Judyin Philly Enthusiast
Yes I am pretty sure it was gluten. All the signs are here. And I still feel absolutely awful.

The meat was marinated in soy sauce. It was La Choy, which is gluten free.

My question is, Hormel Bacon Bits? Are they gluten free?

And another question... is the cooking spray Pam gluten free? My boyfriend wants to know that. We currently use Mazola Pure and are quite happy with that. Just curious.

Stephanie

I'm so sorry about your illness :ph34r:

I have read that there are 'proablems' with some baccon bits but not sure of hormel. do you have the delphi list might ck there.

i use canola oil spray from Acme and it's ok.

Have you had the La Choy marinade before. not sure about it.

don't have the list in front of me at 4:10 am ;) but if you don't have the list, let me know and i'll look it up in am.

judy in philly

TinkerbellSwt Collaborator

Actually I dont have a copy of the Delphi list.. I would appreciate any help

penguin Community Regular

According to the Hormel web site, Bacon Bits are gluten-free. Pam is gluten-free, based on the label, it's a ConAgra company and they clearly label. The one that isn't gluten-free is obviously the baking one with flour in it.

Do they grill anything with gluten (burger buns, for example) on the grill?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

steph

glad someone helped just came on the ck on you

just got up

are you ok with 'SOY'? FORGET??

i can't do the anymore.

judy in philly

Guest nini

I thinnnk i got gllutened last niiihte too. I'm note feeling so good righwwwtt dnow

daaantg it can't tyape

russell Newbie

<_< I had similar symptoms and got a hint from someone on this forum that they had figured out corn was the problem. So I got off off corn and thank them every day. I used to eat corn on the cob and 30 minutes later I ran to the toilet. Hope this helps. Russell

Today I went to my mothers house as we do every Sunday during the summer. We had our usual cookout. Todays menu consisited of london broil (marinated), broccoli salad (I made that), fresh corn on the cob and thats it. Earlier I had carrots with veggie dip that i eat all the time, and pistachios.

That being said, it wasnt a half hour after dinner, the rumblings began. I rushed to the bathroom.. the pain was awful, felt like my stomach was being ripped out. I could feel my lower stomach rumble and bubble with the gas.

We left there quickly, good thing I only live 2 minutes from her. I barely made it in the door. I was upstairs laying in bed wishing for a quick death! The agony. Boy after a few months of being realtively gluten free (just CC issues here and there), this was awful.

I ended up having to take some heavy duty pain meds to help. So the pain eventually subsided a bit, but the D and vomiting are still bad!! I cant believe this! I cant win! Yes I am having a pity party.. Thanks for listening

<_< I had similar symptoms and got a hint from someone on this forum that they had figured out corn was the problem. So I got off off corn and thank them every day. I used to eat corn on the cob and 30 minutes later I ran to the toilet. Hope this helps. Russell Also this includes corn starch, etc corn syrup which is in ice cream, most soda pops: read all the labels.
Guest nini
I thinnnk i got gllutened last niiihte too. I'm note feeling so good righwwwtt dnow

daaantg it can't tyape

ok, I'm doing a little better although it's taking me forevver to type and keep making mistakes)

I hate it when this happens.

Judyin Philly Enthusiast

Gosh guys, my buds are all 'getting the gluten' :angry:

Robbin did a post were she is so sick too.

don't have any answers as usual, but lots of love and hugs

judy in philly

lorka150 Collaborator

Are the London Broils gluten-free? My mom's butcher has confirmed that hers are, but they are wrapped with bacon.

chgomom Enthusiast

Hey mee too tonight...I just posted about my woes....

I swaer sometimes you try try try and think you're doing all the right stuff...and you get your rear end kicked. I would look at what was in the marinade....check the oil or any vinegar....

Sorry you're feeling bad

KerriAnne Rookie
And another question... is the cooking spray Pam gluten free? My boyfriend wants to know that. We currently use Mazola Pure and are quite happy with that. Just curious.

Sorry you're so sick!!!

As for Pam (original), I stopped using it because it has "grain alcohol" in it. I'm not entirely certain if that is a problem, but it seems like it would be. I switched to Mazola and have been fine with it.

Good luck recovering!!!

lorka150 Collaborator

pam is gluten-free. i used to use it way when when i first went gluten-free and called. the grain is not wheat/rye/barley/oats derived. i believe it was corn, but i know it is gluten-free.

eKatherine Apprentice
Are the London Broils gluten-free? My mom's butcher has confirmed that hers are, but they are wrapped with bacon.

Beef should be gluten-free, as long as they don't cross-contaminate it with stuffing or breading used in the area - which can very well happen. Bacon and marinade can be a problem. If you want something like this, you should probably buy some beef and bacon you know are safe and put it together it at home. I prefer a dry rub to a marinade. It leaves all the beef flavor while adding savory seasoning.

rinne Apprentice

Grain alcohol is a problem, even very small quantities - less than 1/4 teaspoon, for me. I know they say it shouldn't be but it is.

I'm sorry you got glutened, feeling that way myself. :(

TinkerbellSwt Collaborator

Thank you everyone. Today I still feel yucky, very tired out, and just blah. But I am doing better than yesterday. The marinade my mom used was sesame oil and soy sauce (la choy) The only other thing we can think of is that my mom cleaned the grates on the grill with Easy Off oven cleaner. Would this do it?

And I did eat corn on the cob too. It finally was a good one this year! I dont seem to have trouble with any other type of corn, as in from a can or frozen.

wacky~jackie Rookie

I'm a newbie and I have a question about being glutened. Do you have immediate symptoms - while you're eating- or does it take awhile? I was at a family reunion and ate something that I thought would be gluten-free and was eating it very slowly. I started having stomach pains and rumbling. Is this "normal"? (I know that's a relative term) ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,037
    • Most Online (within 30 mins)
      7,748

    Celiac mimi
    Newest Member
    Celiac mimi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency.  Those were the same symptoms i had when I was iron deficient.  Was she tested for iron deficiency anemia at the time of her diabetes diagnosis?   Seems in the early stages of iron deficiency anemia, blood glucose levels can be falsely elevated.  Treating Vitamin D deficiency can also help immensely.  Vitamin D deficiency, iron deficiency, and deficiencies in the eight B vitamins, especially thiamine, can occur in Celiac disease.  Changes in stool can be caused by iron or thiamine deficiency. I was diagnosed with type two diabetes and had the same deficiencies.  I would not feel comfortable waiting three to six months for a recheck.  I would get the iron deficiency checked right away.   Hope this helps!  Sending prayers! References: The Effect of Iron Deficiency Anemia on Hemoglobin Glycation in Diabetics and Non-diabetics https://pmc.ncbi.nlm.nih.gov/articles/PMC11513211/#:~:text=noted increased HbA1c in IDA individuals%2C which,IDA before adjusting diabetes treatment [ 11]. Effects of iron deficiency anemia on hemoglobin A1c in type 1 diabetes mellitus https://pubmed.ncbi.nlm.nih.gov/10453183/ Impact of vitamin D deficiency on iron status in children with type I diabetes https://www.nature.com/articles/s41598-024-61559-5#:~:text=Iron-deficiency anemia is the,both clinical conditions that coexist. Thiamine Level in Type I and Type II Diabetes Mellitus Patients: A Comparative Study Focusing on Hematological and Biochemical Evaluations https://pmc.ncbi.nlm.nih.gov/articles/PMC7282352/
    • Wends
       So sorry and sending well wishes. Replying from the UK. The NHS Coeliac Screen test is igAttg (including total igA). Your toddler is unlikely igA deficient with a titer of 22, as a positive test. When the igA anti-tissue transglutaminase antibodies are raised above the reference value or positive, the endomysial test is performed. The TTG test is suggestive of coeliac disease BUT it can be transiently raised in type 1 diabetes, milk protein intolerance (common in early childhood. Can also cause malabsorption similar to coeliac disease). Can be slightly raised in other food sensitivity and food allergy and some other conditions. Whilst it is more specific for coeliac disease than the older anti-gliadin test the EMA test gives a high specificity for coeliac, but labour intensive test so is checked when the TTG shows positive as a further confirmation of a likelihood of Coeliac. Sometimes in children the anti-DGP (deaminated gliadin peptide) igA and IgG are performed as more likely positive in childhood coeliac disease. Unfortunately less used test these days in favour of ttg test. Though in research studies still utilised in addition to ttg and EMA. It usually follows that the EMA test will be positive in active coeliac disease later than the TTG shows positive. It may be classic transient antibodies with type 1. Likely what the Dr is counting on to not worry you or put your child through unnecessary testing. it also takes time as in weeks/months for antibodies to build up. The new guidelines by Gastroenterology Society say in children coeliac can be diagnosed without biopsy if the ttg is ten times the upper value. Plus positive EMA. EMA is usually positive after ttg. It’s a good sign it’s negative and the Doctor is doing the right thing to retest in three to six months. It’s the only way for a definite diagnosis and whether further testing is needed (endoscopy and biopsy). The Doctor is taking the wait and see approach as it is common in type 1s for the TTG antibodies to normalise too, and will be following standard practice. Return to your Dr sooner though, if there are signs of malabsorption and sudden deterioration. It wouldn’t be unreasonable to request another blood test sooner with symptoms of coeliac. It’s a tough one. Have you a family history? Re type 1, Dr Bernstein book invaluable, and type 1 grit online. If you’ve not heard of this elderly type 1 Dr (diagnosed as a child) and his story already you need to. Sadly he recently passed in his 90s still practicing and treating type 1s and 2s. Wealth of info on his diabetes university you tube channel. Was the first to start testing blood glucose numbers at home, he was an engineer and retrained as a Dr. He gave the information to the world and diabetics that its possible to have normal blood glucose numbers and prevent the complications. The law of small numbers. Hope this reply is helpful.  
    • trents
      Here is an article that gives an overview of all tests that can be used to detect celiac disease:    As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups, IGA-based tests and IGG-based tests. There is also the EMA (Endomysial Antibodies) which is an older test and has largely been supplanted by he tTG-IGA which is less expensive to administer. So, when you report that the TTG score from your daughter's bloodwork is 22ku/l, we assume you are referring to the tTG-IGA test, which is the most popular test ordered by physicians when checking for celiac disease and considered to be the centerpiece test. However, you do not mention if there was a "total IGA" test run. Whenever the tTG-IGA is ordered, a total IGA should also be ordered to check for IGA deficiency. IGA deficiency will result in other IGA test scores, such as the tTG-IGA being artificially low, even falsely negative. This is especially true for young children. This is discussed in the article I linked. If your physician did not order total IGA test, this should have been done. Do you have a recourse for requesting such? I should also mention that you must not withdraw gluten from your toddler's diet until all testing for celiac disease is completed. Doing so would invalidate the testing.
    • Scott Adams
      I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disease, such as recent infections or even Type 1 diabetes itself. However, the symptoms you’ve noticed (changes in stools, itching, and hair thinning) could potentially align with celiac disease, so it’s understandable why you’re concerned. Since the consultant wants to retest in 3–6 months, it may be because they’re assessing whether the antibody levels persist or increase, which would strengthen the case for further investigation (like a biopsy). In the meantime, if your daughter’s symptoms worsen or you feel uneasy waiting, it’s completely reasonable to ask for an earlier review or a referral to a pediatric gastroenterologist for further advice. Keeping a symptom diary until the next test might also help track any patterns. You’re doing a great job advocating for your little one—trust your instincts and don’t hesitate to push for more clarity if needed. Sending you lots of support.
    • mytype1diabetes
      Hi all, Posting from the UK.  My 2 year old was recently diagnosed with Type 1 diabetes. In the UK they routinely screen for coeliac disease. The test showed slightly elevated levels of TTG antibodies. The consultant wants to repeat these antibodies in 3-6 months time to determine clinical significance. In our letter it said "marginally elevated TTG antibodies (22ku/l), normal endomysial antibodies". I'm not exactly sure what this means, especially given one of the tests were within the normal range, and if we should be worried about the numbers. It is difficult to know if she has any "symptoms" but at the time she was diagnosed with Type 1 diabetes I noticed that her stools had changed. They are now probably a Type 6 on the Bristol stool chart. She seems to be quite itchy which is a recent thing and over the past week I have noticed some hair loss/thinning. I feel very worried and I'm not sure I can wait for her to be retested in 3-6 months time.  I'd appreciate any wisdom, advice or information you have. Thanks 🙏🏼
×
×
  • Create New...