Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Worse On The Elimination Diet


emcmaster

Recommended Posts

emcmaster Collaborator

I felt great on a gluten-free/cf diet for 3.5 months, but lately I haven't been feeling normal anymore. Not nearly as bad as I used to feel, but not great, either. So I decided to start an elimination diet to hopefully figure out what else I'm intolerant to.

It's only been 2 days, but I actually feel a little worse. Am I just detoxing and it will get better in a few days or is it something else?

Thanks. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Elizabeth:

It is very normal to have many ups and down. It took a long time for your body to react to that damage, as well it will take time to heal.

In the beginning it is almost impossible to go cold turkey from Gluten and be informed about all the things you need to avoid. It takes time to educate yourself. Gluten is everywhere.

It also takes time for you to heal enough to know that you have been glutened. Does that make sense? It took me about 7 months to feel better, to feel the effects of being glutened. It took me that long to heal

Be patient and you may need to re-check you shampoos, suppliments, lipsticks or anything that may come into contact with you mouth.

Sometimes, when you feel better, you tend to get a little lax in your diligence. You always want to keep that in check.

Hope you feel better.

Lisa

jerseyangel Proficient

Hi Elizabeth

How are you going about your elimination diet? When I did mine, I began by just eating the basics--nothing processed and very little sugar.

Each week or so, I would add something back in to see how or if I'd react.

I'm thinking that if you are at the point where you're down to basics (meat, veggies, fruit, water), you may be experiencing some withdrawl--especially if you were eating sugar and caffeine.

Have you added anything back in yet?

Let me know more about where you're at, and maybe I can be of more help.

Natlay Apprentice

I'm doing the elimination diet right now too. For the last four days all I have been eating is lean meat, fruit, vegetables, and water. And I have been eating smaller meals too. My stomach feels a lot better, but the rest of my body is very tired...I have no energy and feel really shaky. I figured my body needs some time to adjust. I plan on giving it at least two weeks and see how it goes.

Good luck :)

Helena Contributor

I did a few foods diet awhile ago---my allergist put me on it. But he didn't give me very much direction or info. So I bought this book by Janice Vickerstaff Joneja, PhD, RDN. (_Dealing with Food Allergies_) She explains everything! (she deals with intolerances + allergies) + gives lots of tips on what to eat on the diet + recipes for the diet. I highly recommend this book.

One of the things she explains----if you have allergies/food sensitivities you might actually feel worse at first. she calls this "serum sickness"---flu-like symptoms can be expected.

hope this helps!

tarnalberry Community Regular

If you're only eating a few things, you may find that you're not getting:

1) enough calories

2) the right protein/carb/fat balance to keep your blood sugar steady

3) enough vitamins/minerals

emcmaster Collaborator

Hi everyone! Thanks so much for the replies!

I've only been on the elimination diet for 2 days - not long at all. I'm only eating fruits, vegetables and lean meats, which is really hard - I'm craving carbs of any kind! I haven't had anything processed, with the exception of canned in water albacore tuna, and the sugar I'm getting is coming from fruit.

I'm probably jumping the gun and not waiting long enough to see my symptoms disappear.

Thanks for all the support. I've been somewhat depressed because I was very, very bloated and had a lot of stomach pain for years before going gluten-free and now I'm worried that the relief I've felt for the last several months won't be permanant. I know that's just paranoia talking, but it's scary nonetheless.

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Natlay Apprentice

I'm feeling so dumb right now...I made it through six rough days of the elimination diet and felt like crap for most of it...and I just ate a ton of peanut butter. I feel like my stomach is going to explode. Ugh...I'm going to go throw away the rest of the peanut butter in the house. I'm so bloated right now. No food is worth this...I don't care how good it tastes. I think it will be easier to stick to the diet now. <_<

emcmaster Collaborator
I'm feeling so dumb right now...I made it through six rough days of the elimination diet and felt like crap for most of it...and I just ate a ton of peanut butter. I feel like my stomach is going to explode. Ugh...I'm going to go throw away the rest of the peanut butter in the house. I'm so bloated right now. No food is worth this...I don't care how good it tastes. I think it will be easier to stick to the diet now. <_<

I'm so sorry sweetie! It's so hard to stick to this diet - I've had moments of temptation where I wanted to have a gluten-free english muffin or make some rice, but I'm sticking it out.

If you ever want to chat, PM me. I'm going through this as well!

Natlay Apprentice
I'm so sorry sweetie! It's so hard to stick to this diet - I've had moments of temptation where I wanted to have a gluten-free english muffin or make some rice, but I'm sticking it out.

If you ever want to chat, PM me. I'm going through this as well!

It's been a pretty tough week. My stomach felt sooo much better, but I had no energy at all and was cranky all the time and last night I broke down and had a bite of peanut butter and I could feel it immediately. So I figured if I already felt sick I might as well eat as much as I wanted. So I have eaten two small jars in less than a day :o Maybe I needed this to make it easier to stick to my diet...I'm starting over right now.

Thanks for your help...email or IM me anytime if you need some too B)

sspitzer5 Apprentice
I felt great on a gluten-free/cf diet for 3.5 months, but lately I haven't been feeling normal anymore. Not nearly as bad as I used to feel, but not great, either. So I decided to start an elimination diet to hopefully figure out what else I'm intolerant to.

It's only been 2 days, but I actually feel a little worse. Am I just detoxing and it will get better in a few days or is it something else?

Thanks. :)

I felt horrible on the elimination diet too! Now I think I know why. I got my IgG food intolerance test results which showed a major reaction to almonds. I was probably eating more almonds than usual on the elimination diet because it was something I thought was ok. I kept eliminating stuff but hadn't made it to almonds yet. Erg.

S

mle-ii Explorer

Here's another reason why folks might feel crappy when doing an elimination diet.

Ok, I've heard of Peptides before, but being curious I looked it up on wikipedia.

Open Original Shared Link

While reading it I came across this bit of info:

Opioid peptides, now that sounds interesting what is that?

Open Original Shared Link

Wow, no wonder it's so hard for some folks to give up breads and dairy. Since a lot of us have issues with gluten, lets take a look at one.

Open Original Shared Link

Wow.

Looking into a few of those opioid peptieds led me into some interesting areas as well.

How in the world can Doctors still believe that food plays no role in a lot of our problems? The evidence out there is pretty substantial that it does.

Mike

pturse Apprentice

I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

So I have some questions re: the elmination diet.

1. What on earth would I eat (remember I am a vegetarian)?

2. How do you stick to it!?

Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.

emcmaster Collaborator
I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

So I have some questions re: the elmination diet.

1. What on earth would I eat (remember I am a vegetarian)?

2. How do you stick to it!?

Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.

I'm going to leave the big answer up to the experts (if no one answers, PM jerseyangel or Ursula), but here's my $0.02:

If you have trouble with roughage, you might try cooking it really well and pureeing it. That breaks down the fiber into a more managable form for your intestines to digest.

As a vegetarian, you might try eating only well cooked and pureed fruits and veggies until your symptoms disappear and then adding eggs, if you eat them. Eggs are excellent sources of protein.

Another thing it might be, since it sounds like your entire gut is sensitive, is an intolerance to high levels of fat. You might try eating a very low-fat diet for a few days and see if your symptoms improve - I cannot eat more than 25% of my calories from fat in any given meal or I bloat up like a balloon. It seems that a good number of celiacs have fat intolerance problems as well.

Good luck!

Nancym Enthusiast

Just want to explain something. If you go from a high carb, starchy or high sugar diet to one of meats and veggies you're going to have a couple of weeks of adjustment. Your body is shifting from a high glucose/insulin mode to doing things like converting proteins to glucose and burning dietary fat and body fat. After the conversion process you'll feel better. In fact, you might feel massively better. Stay the course! :D

If you can't handle it, add in a bit of fruit.

pturse Apprentice

Thank you both (emcmaster and Nancym). I think I am going to really give a full effort. My DH might think I am nuts since I *want* to restrict even more from my diet but I think it might help.

I will try cooking the veggies really really well. That does seem to make some what a difference because I notice when I eat cooked broccoli vs raw broccoli . . . I get less gassy. Still gassy, but a lot less. I like the idea of adding eggs in first for protein. I am a runner and I know I will need some carbs/protein at some point but figuring out what really bothers me first is important.

So I will try fruits for breakfast (I read apples and citrus are out right?). Veggies for lunch and veggies and perhaps yams/sweet potato for dinner? I read that sweet potatos were allowed . . . just not white potatos.

Still will be hard to go w/o my morning tea though. :-)

I take it that BEANO is also out huh? I tend to use that when I eat veggies.

One thing I have noticed, and maybe this is just me, but have you seen those HANNS bags called Broccoli Salad where it's basically shredded broccoli, carrots and red cabbage? I love those but for some reason, my digestive system really doesn't handle it well and I think it is because it is shredded. Does that sound weird? I mean it goes "in" and "out" exactly the same . . . sorry for TMI.

I don't post on here much, more of a lurker, but I am really trying to stick to this diet because my DH and I are considering kids in the near future and I want to be healthy for the process.

Thanks again for the tips.

emcmaster Collaborator
Thank you both (emcmaster and Nancym). I think I am going to really give a full effort. My DH might think I am nuts since I *want* to restrict even more from my diet but I think it might help.

I will try cooking the veggies really really well. That does seem to make some what a difference because I notice when I eat cooked broccoli vs raw broccoli . . . I get less gassy. Still gassy, but a lot less. I like the idea of adding eggs in first for protein. I am a runner and I know I will need some carbs/protein at some point but figuring out what really bothers me first is important.

So I will try fruits for breakfast (I read apples and citrus are out right?). Veggies for lunch and veggies and perhaps yams/sweet potato for dinner? I read that sweet potatos were allowed . . . just not white potatos.

Still will be hard to go w/o my morning tea though. :-)

I take it that BEANO is also out huh? I tend to use that when I eat veggies.

One thing I have noticed, and maybe this is just me, but have you seen those HANNS bags called Broccoli Salad where it's basically shredded broccoli, carrots and red cabbage? I love those but for some reason, my digestive system really doesn't handle it well and I think it is because it is shredded. Does that sound weird? I mean it goes "in" and "out" exactly the same . . . sorry for TMI.

I don't post on here much, more of a lurker, but I am really trying to stick to this diet because my DH and I are considering kids in the near future and I want to be healthy for the process.

Thanks again for the tips.

Broccoli is a very gas-producing vegetable and I believe cabbage is, too. This sounds funny, but you might try cooking that broccoli salad a bit to make it easier to digest.

I think your idea sounds good for the e. diet, however, you will most likely need to eat every 2 or 3 hours if you're only eating fruits and veggies. I can't go much longer than that without getting extremely hungry.

If you can handle it, you can have nuts (except for peanuts) and oils. That will help to satiate you.

Good luck!

rutland Enthusiast
I really want to do the elmination diet but I crave stuff like rice and corn tortillas. I probably eat rice cakes almost every day! I tend to have a lot of difficulty with roughage type stuff (veggies like carrots, spinach, heck all veggies really) and I am a VEGETARIAN (who consumes some tuna). I feel like the rice and corn tortillas "settle" my often upset stomach.

So I have some questions re: the elmination diet.

1. What on earth would I eat (remember I am a vegetarian)?

2. How do you stick to it!?

Any ideas/suggestions would be great. I am so tired of being bloated and having an upset stomach all the time. The only time I feel "good" is right when I wake up in the morning w/nothing in my stomach.

Id hate to say it but you could possibly have an allergy or intolerance to rice and corn. When you notice that you have strong cravings for something that can be a sign in and of itself that your allergic. I know from my own experience having major cravings for cheese or bread and indulging and feeling like hell afterwards. Any food that triggers heavy cravings are suspect. I guess the only way to know is to eliminate it for a few weeks, notice how you feel without it, then add it back in and see how you feel again.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.