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New Member From Louisiana


simmadownnow

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simmadownnow Newbie

burp..'scuse me. It's the bane of my existence, this burping :angry: .

I'm new here because a friend heard about Celiac disease on public radio and thought the symptoms sounded eeerily familiar to what I've been whining about for four years! The doctors merely patted me on the shoulder and said, 'you've developed a tic'..GAAAA

sO, I'm trying to go gluten-free and see what happens. Glad to find you guys! (and if someone can tell me how to unclick being anonymous, I'd appreciate it. I can't seem to find it) Thanks


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lovegrov Collaborator

Where in La.? My parents live in Thibodaux.

richard

simmadownnow Newbie
Where in La.? My parents live in Thibodaux.

richard

richard, I'm at the other end of the state..north Louisiana but my people are in the N. O. area.

  • 3 months later...
mom2jpb Newbie
burp..'scuse me. It's the bane of my existence, this burping :angry: .

I'm new here because a friend heard about Celiac disease on public radio and thought the symptoms sounded eeerily familiar to what I've been whining about for four years! The doctors merely patted me on the shoulder and said, 'you've developed a tic'..GAAAA

sO, I'm trying to go gluten-free and see what happens. Glad to find you guys! (and if someone can tell me how to unclick being anonymous, I'd appreciate it. I can't seem to find it) Thanks

Welcome to the world of reading labels and asking friends what they put in a casserole! It may seem overwhelming, but it is much better than feeling sick all the time.

I grew up in nortwest Louisiana, (Bienville Parish, went to school at NSU) my siblings (2 celiac, all 6 hypoglycemic) are still there. I live in Maryland now.

Be really careful of fried foods, because so many of them (especially in Louisiana) are breaded - okra, shrimp, fish, wild game, pork chops - you doubtless can name more). When in doubt - DON'T EAT IT. Unfortunately, gravies and sauces are pretty much gone. I can check with my sisters and get you some names of gastros who treat celiac, if that will help. Try to keep in mind that, as lousy as a celiac diagnosis may be, it is something that we can handle without medication, we are completely in charge of what we put in our mouths, and it is a small price to pay for feeling human again. Best of luck and Godspeed.

pinktulip Apprentice

I'm in the NO area. My dad has been diagonosed for the most part, I'm waiting blood results.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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