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Could Pregnancy Have "triggered" Celiac?


maddycat

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wolfie Enthusiast

I had minor stomach issues during a lot of my life (constipation, gas), but really seemed to get worse after the birth of my children. I was told I had IBS after my son was born and to stay away from the foods that bothered me. Then 6 years later I had DD and my stomach problems got a lot worse. Unexplained diarrhea, not frequent, but enough to make me wonder what was going on. Drs kept saying it was IBS. Then I would get super constipated. Drs said to increase fiber (I was eating Kashi Go Lean, loaded with gluten); while it helped with the constipation, it made the gas & bloating excessive and painful. I finally saw a nutritionist who suggested I get tested for Celiac. Bloodwork was positive and I went gluten-free shortly thereafter. The difference was like night & day.

  • 3 weeks later...

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missmommy Contributor
I just had my first baby 4 1/2 months ago and started having symptoms of Celiac Disease when he was about 3 months. I've been fine most of my life. (From the time I was 1 1/2 years old until I was 3 my parents had me on a gluten free diet. They thought it was caused/triggered by a bad fall I had causing the lining of my intestines to slough off.) From the time I was 3 until now (29 years later) I've been eating everything without any issues. Could pregnancy be a "trigger"? If so, will it go away again or will I have to do the diet forever, if it is indeed Celiac Disease?

I just got my Giliadan antibodies test result back and it is 27.2, what they term "eqivical" which I guess is not really negative but not positive either. I will have an appointment with a GI doc soon to see if they want to do more testing.

I'm currently entirely breast feeding my son. Are there any issues I should know of if I do have Celiac? Should I wait to introduce solids- longer than 6 months? Does my son need to be tested? If so, what test, the gentic marker one that I've read about on this forum? I'm going to start him on vitamin drops just to be sure he is getting what he needs since I may have malabsorption issues. I do make plenty of milk though and my son is thriving so that is good.

Anyway, if anyone can help answer my questions it would be much appreciated!

Thanks!

Marcia

i just found out that becoming pregnant probably triggered my celiac. and after reading a lot of the replys to this post im convinced! im sorry im new to this too and im no help yet. but congrats on the new baby!!!

anerissara Enthusiast

My problems started after having my 3ed baby. I don't know if it was the pregnancy or the fact that I had surgery afterwards (tubes tied, I don't recommend it!) but it was just about 3 months afterwards for me, too.

  • 2 weeks later...
GlutenFree-Amy Newbie

Add me to the list! My main symptom, chronic D, started about 3 months after my oldest son was born, 3.5 years ago. I "controlled" it by eating fiber wafers and not drinking milk. After the birth of my second son 3.5 months ago, I got a lot worse. I also ended up in the ER at 6 weeks PP, very malnourished. I had lost about 20 lbs. at that time and lost another 20 in the 4 or so more weeks it took to get everything figured out. I was down to 90 lbs., only 3 months after having a baby. I, too, was extremely sick of people telling me I lost all my weight so quickly, then people telling me that I need to gain weight... BACK OFF! I was so tired of hearing it and then explaining that I was sick, but didn't know how... It feels so good to know now, and I am doing so much better, just in the week that I have been gluten-free. Pregnancy has definitely triggered mine.

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    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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