Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Phew, Glad That's Over!


penguin

Recommended Posts

penguin Community Regular

I had my biopsy this morning, so I'm home resting and not driving or making any legal decisions :)

It went as well as could be expected, the last thing I remember is my doctor rubbing my arm and saying something along the lines of "are you ready?" and the first thing I remember upon waking is that I'd NEVER be able to remember what he said happened when he spoke. DH said that he said everything looked OK with the naked eye, but that my small intestines were a bit red and he took biopsies, and that I'll have the results by the end of the week. Cool. I'm fully expecting everything to come out normal, though.

In the meantime he's perscribed a gluten-free diet and to call in a week. I think, that's what the paper they gave me said. My doctor is very nice.

The worst part was the IV, and of course the 3 months leading up to it :P

gluten-free weight watchers starts tomorrow for me! Thanks for all the support over the last 3 months :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Yay! It's over! You'll be feeling better soon!

BostonCeliac Apprentice

Hey -- Good to hear it went OK -- I have mine on Friday and it sounds like it's pretty easy.

Gluten-Free WW? Sounds tough -- i'd be living on 94% fat free Pop secret pop corn at 1 point per bag!! Thats gluten-free right???

jerseyangel Proficient

I was thinking about you yesterday--I'm glad that it went well and you're back home :)

penguin Community Regular

It should be easy enough to do WW gluten-free, luckily things like Tinkyada pasta are about the same points as regular pasta, and I just gotta eat healthy, no biggie. Gotta get these 30 lbs. I gained on the effin' gluten challenge <_<

Oh, I believe pop secret is gluten-free. It's made by general mills, so any gluten will be clearly labelled.

EGD's are really no big deal. At least it wasn't a colonoscopy!!! My dr. is far to attractive to be looking up my butt :ph34r::lol:

How long are you supposed to keep the bandage over an IV site?

CarlaB Enthusiast
It should be easy enough to do WW gluten-free, luckily things like Tinkyada pasta are about the same points as regular pasta, and I just gotta eat healthy, no biggie. Gotta get these 30 lbs. I gained on the effin' gluten challenge <_<

Oh, I believe pop secret is gluten-free. It's made by general mills, so any gluten will be clearly labelled.

EGD's are really no big deal. At least it wasn't a colonoscopy!!! My dr. is far to attractive to be looking up my butt :ph34r::lol:

How long are you supposed to keep the bandage over an IV site?

LOL, my doc does not fit that description ... I had to have the colonoscopy, too. Do these guys really think, "Gee, when I grow up I want to do colonoscopies for a living?"

I take the bandage off as soon as it starts bugging me, which would be as soon as I walk out of the facility. How it's supposed to be done, I don't know.

jerseyangel Proficient

I usually take the bandage off before I go to bed that night--same for blood tests.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer

Congratulations, & welcome back to gluten-free land!

Leah

tiffjake Enthusiast

Welcome back to the land of better thinking! Glad that is over with for you too!!!!

AndreaB Contributor

Glad it's over and things went well. Will be waiting for the results. :)

TCA Contributor

glad it went well!

Helena Contributor

Hi Penguin, That's great that the whole procedure is over and you'll have the results soon! Do you mind me asking how much gluten your doctor "prescribed" beforehand. (not sure, but i'm guessing from your post that you were gluten free and then had to go back on gluten . . .? I'm in a similar situation. I've been trying to get a sense of the whole range of the recommended "dose of gluten" since different doctors seem to have different recommendations.)

penguin Community Regular
Hi Penguin, That's great that the whole procedure is over and you'll have the results soon! Do you mind me asking how much gluten your doctor "prescribed" beforehand. (not sure, but i'm guessing from your post that you were gluten free and then had to go back on gluten . . .? I'm in a similar situation. I've been trying to get a sense of the whole range of the recommended "dose of gluten" since different doctors seem to have different recommendations.)

My doc said ~4 slices of bread (or equivalent) a day for 3 months for a chance of damage showing. He got his info from Dr. Green at Columbia.

CarlaB Enthusiast
My doc said ~4 slices of bread (or equivalent) a day for 3 months for a chance of damage showing. He got his info from Dr. Green at Columbia.

No wonder mine came out negative ... my doc said I might want to eat a little more than normal, but no sense in getting sick over it! I didn't even eat it every day! And that was only six weeks!

jayhawkmom Enthusiast

Hi Penguin... I'm jumpin' in on your thread.... since I'm having mine on Friday.

I'm glad to hear it went so well for you. I'm also glad to read that your doctor prescribed a strict gluten-free diet immediately, without waiting for the results. Mine also said the same thing.... he said that if I'm consuming gluten.... Thursday will be the last day I'll eat it, period.

My baby turns 1 on Thursday.... I was thinking of celebrating with pizza. That's not gonna happen though!!!

I can't wait to hear your results!!

penguin Community Regular
Hi Penguin... I'm jumpin' in on your thread.... since I'm having mine on Friday.

I'm glad to hear it went so well for you. I'm also glad to read that your doctor prescribed a strict gluten-free diet immediately, without waiting for the results. Mine also said the same thing.... he said that if I'm consuming gluten.... Thursday will be the last day I'll eat it, period.

My baby turns 1 on Thursday.... I was thinking of celebrating with pizza. That's not gonna happen though!!!

I can't wait to hear your results!!

Chebe mixes make a fantastic gluten-free pizza :)

Helena Contributor
My doc said ~4 slices of bread (or equivalent) a day for 3 months for a chance of damage showing. He got his info from Dr. Green at Columbia.

Thanks! Dr. Green is pretty much *the* celiac disease expert . . . this info. will be very helpful when I have a little chat with my GI doc about the biopsy beforehand :rolleyes: (As I mentioned in my other post, I was having gluten for 3 months, but 1/3 of a cup of dry barley every *other* day. That probably gives the villi a chance to grow back a bit on the off gluten days. I've upped my gluten dose, but my biopsy is in Oct so I won't have enough time.)

penguin Community Regular

The results are in...the biopsy was....

NORMAL!

Not surprising. I have to go back to the GI in 6 weeks to follow up, they told me I need to be gluten-free long-term anyway so the biopsy results really don't matter. I think I'm still going to say I'm celiac because 1: I don't want to look like a wishy-washy, I diagnosed myself with the disease du jour (though I guess I'm formally dx'ed) and 2: it'll make life easier for explaining.

Hmm, my small intestine was "a little red", I wonder why that would be? :huh:

I don't consider it a waste of time, because at least now I know what would have happened if I got the biopsy, because I did :)

AndreaB Contributor

Good news Chelsea....now onward with the gluten free diet and no looking back. :)

queenofhearts Explorer

That's great that your villi haven't been damaged, Chelsea, & it's great that you have an enlightened doctor who doesn't think that means you should eat gluten.

Eat well & be well!

Leah

Guest ~jules~
It should be easy enough to do WW gluten-free, luckily things like Tinkyada pasta are about the same points as regular pasta, and I just gotta eat healthy, no biggie. Gotta get these 30 lbs. I gained on the effin' gluten challenge <_<

Oh, I believe pop secret is gluten-free. It's made by general mills, so any gluten will be clearly labelled.

EGD's are really no big deal. At least it wasn't a colonoscopy!!! My dr. is far to attractive to be looking up my butt :ph34r::lol:

How long are you supposed to keep the bandage over an IV site?

Lol! I've had both! But my doc, is a short little phillipino guy, I am deffinetly not into... :lol::lol:

VydorScope Proficient

YAY!! Glad thats over!! Was worried about you!

jerseyangel Proficient

Well, now you know, and don't have to wonder about it any more.

I'm glad that you discovered this before there was any lasting damage to your intestine. This should hopefully, make a full recovery quicker and easier for you :)

I really have to hand it to ya for going through with the whole challange--you're one tough cookie :D

penguin Community Regular

Meh, if I was sick for 4 years, what's another 3 months? :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.