Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Strange Symptom


Chrisser

Recommended Posts

Chrisser Explorer

OK, this may not make sense to any of you, but I've been getting this strange feeling after eating and can't for the life of me figure out what it is. I like to refer to it as "hunger-nausea." After I eat, and even though I'm full and feel full, at the same time I still feel hungry. But it's not a true hunger feeling...it's a combination of hunger and nausea. I feel it like at the top of my stomach, up my esophogus, and when it's bad it's in my throat and almost hitting my gag reflex. Sometimes it's worse than others depending on what I eat or how much. Does anyone have any idea what I'm talking about? Or have experienced it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cgilsing Enthusiast

Well.....I know the feeling, but it's probably not the answer you are looking for! I felt like that for the first 3 months of pregnancy! I was hungry and nauseas ALL the time! To make matters worse NOTHING ever sounded good. I would stare into the fridge hoping something would sound satisfying, but it all sounded disgusting.....ahhhhh yes it sucks...but that's probably not the answer you are hoping for...sorry :rolleyes:

olalisa Contributor

Chrisser, I had that problem constantly before going gluten free. Did you have it before, or has it just started since you went off gluten? I see that you are very recently gluten free. Have you gone completely gluten free in cosmetics and toiletries as well as the diet? I'm probably not being really helpful, but I'm trying to help you get to the bottom of this :)

Chrisser Explorer
Well.....I know the feeling, but it's probably not the answer you are looking for! I felt like that for the first 3 months of pregnancy! I was hungry and nauseas ALL the time! To make matters worse NOTHING ever sounded good. I would stare into the fridge hoping something would sound satisfying, but it all sounded disgusting.....ahhhhh yes it sucks...but that's probably not the answer you are hoping for...sorry :rolleyes:

Not really the answer I was looking for, but at least there's someone that knows what I'm talking about! :) I tried to explain it to my doctor one day, and he looked at me funny. I run into the same problem some days, nothing sounding or looking good...eating sometimes makes me gag. Most of the time, though, it goes away or I can deal with it. I just can't tell though whether I'm nauseous or hungry...so I don't know whether I need to eat or not.

jknnej Collaborator

Yes I absolutely had this. It is why I lost so much weight immediately after going gluten free. It is such a weird feeling. I would not feel full even after I ate, but I would feel nauseated, no matter what I ate. Eventually after seeing my GI dr. I had an endocopy and he said the only thing wrong was reflux....so I chalked another strange symptom up to gluten withdrawl!!!!!!

mamaw Community Regular

Maybe it could be a hiatal hernia causing the problem.. also gallbladder problems have been known to do this to some . Gerd can be another option to lok into.

good luck

mamaw

Chrisser Explorer
Chrisser, I had that problem constantly before going gluten free. Did you have it before, or has it just started since you went off gluten? I see that you are very recently gluten free. Have you gone completely gluten free in cosmetics and toiletries as well as the diet? I'm probably not being really helpful, but I'm trying to help you get to the bottom of this :)

Thanks for trying to help :) . I've only had this problem since going gluten-free. I think it started after the first week, but I don't remember exactly. But it happens within 20 min to an hour of eating. I went gluten-free immediately after being diagnosed, and I'm still in the process of checking all my cosmetics, toiletries, etc.

When you had that problem before going gluten-free, could you pinpoint a cause? Or was it just one of your Celiac-related symptoms?

Yes I absolutely had this. It is why I lost so much weight immediately after going gluten free. It is such a weird feeling. I would not feel full even after I ate, but I would feel nauseated, no matter what I ate. Eventually after seeing my GI dr. I had an endocopy and he said the only thing wrong was reflux....so I chalked another strange symptom up to gluten withdrawl!!!!!!

Whew! Yes, it is a really weird feeling. I was wondering about reflux. I've never had it before How did you treat it? How long did it take to go away?

I think I may be gaining weight, but I've been eating a ton of meat...pretty much every meal (bleh). Jeans are a little tighter. Gaining weight isn't necessarily a bad thing for me, but it's definitely an incentive to turn it back into muscle when I gain back my energy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Hi Chrisser,

I am pretty positive I know the feeling you are getting. Are you combining proper combos of fat/proteins/carboyhydrates in your meals (or at least in your days)? You mention you are eating a lot of meat, and too much protein isn't a good thing.

Chrisser Explorer
Hi Chrisser,

I am pretty positive I know the feeling you are getting. Are you combining proper combos of fat/proteins/carboyhydrates in your meals (or at least in your days)? You mention you are eating a lot of meat, and too much protein isn't a good thing.

I usually have some sort of meat with rice or potatoes with some vegetables here and there. I'm still at the point where I'm eating a lot of safe foods, and because I have hypoglycemic tendencies and my body sucks up food quickly, when I eat I have to EAT. I can't just snack here and there. Protein is actually good to stabilize and carry blood sugar throughout the day. I usually eat chicken, some sort of red meat, pork, etc. I'm starting to try new things, but I'm still hesitant because I don't know of any other intolerances just yet or know how my body reacts to certain foods.

RebeccaMSL Rookie

Chrisser, I know exactly what you are talking about. I get it too. I have celiac and type 1 insulin dependent diabetes, and I relate it to blood sugar fluctuation. If I have given too much insulin for a meal, then afterward I feel nauseous and hungry and full and awful, and have to drink juice to get my blood sugar back up. If you are hypoglycemic, then your body is putting out too much insulin when you eat, and so I am not surpsised you are having this symptom. If anything, I would talk to a dietician and also an endocrinologist. Since you can't reduce your insulin, your options are to eat really really low carb diet, (which will mean that your body will not excrete so much insulin for your food intake) with frequent smaller meals, or when you get that feeling after eating, have a glass of juice and wait 20 minutes. Good luck. Rebecca

I usually have some sort of meat with rice or potatoes with some vegetables here and there. I'm still at the point where I'm eating a lot of safe foods, and because I have hypoglycemic tendencies and my body sucks up food quickly, when I eat I have to EAT. I can't just snack here and there. Protein is actually good to stabilize and carry blood sugar throughout the day. I usually eat chicken, some sort of red meat, pork, etc. I'm starting to try new things, but I'm still hesitant because I don't know of any other intolerances just yet or know how my body reacts to certain foods.
Chrisser Explorer
Chrisser, I know exactly what you are talking about. I get it too. I have celiac and type 1 insulin dependent diabetes, and I relate it to blood sugar fluctuation. If I have given too much insulin for a meal, then afterward I feel nauseous and hungry and full and awful, and have to drink juice to get my blood sugar back up. If you are hypoglycemic, then your body is putting out too much insulin when you eat, and so I am not surpsised you are having this symptom. If anything, I would talk to a dietician and also an endocrinologist. Since you can't reduce your insulin, your options are to eat really really low carb diet, (which will mean that your body will not excrete so much insulin for your food intake) with frequent smaller meals, or when you get that feeling after eating, have a glass of juice and wait 20 minutes. Good luck. Rebecca

Hmm, that's kind of scary to hear. I get hypoglycemic symptoms, but I'm not truly hypoglycemic. My meter readings have never been below 75ish, and usually those lowest #'s are when I wake up in the morning or several hours after eating. After a meal it can read anywhere from 85-110. I've spoken to both my GP and my endocrinologist about my hypoglycemic symptoms, though not about this new strange symptom, and they both they that my readings are normal and even "perfect." I'm waiting until I see the gastroenterologist, but after your response I guess I should check with my endo again. Thanks.

JennFog Rookie

I know that exact feeling!!! I have noticed since going gluten free, I require a lot more water to feel ok, I am not thirsty, just require more fluids, which is though because I don't drink anything at work all day. So after dinner, I get a nauseated hunger, the only way I have found to get rid of it is to drink a huge glass of water sometimes with lime or lemon juice and I don't mean chug it, just drink it normally.

Simply-V Newbie
But it's not a true hunger feeling...it's a combination of hunger and nausea. I feel it like at the top of my stomach, up my esophogus, and when it's bad it's in my throat and almost hitting my gag reflex. Sometimes it's worse than others depending on what I eat or how much.

Yep I know that feeling. And I have a feeling yours might be caused by hidden food allergies as that is often an allergic response.

Many gluten intolerant or allergic people probably have it prior to going gluten-free. Those that have it after going gluten-free probably also have something else causing problems, either caused by their eating gluten for so long or totally unrelated and was masked by the body.

I'd recommend keeping a food journal of wht you eat and how much. Circle in red meals that you ate right prior to getting this feeling since you said it comes right after eating ? about 20 min or so later?

I'm sure that you'll start seeing foods consistantly showing up, or maybe a dye? or preservative?

I used to have that feeling constantly and no doctor could ever tell me what it was except acid reflux. Once I clued in that it was food related and figured out which ones, it went away. (Well unless I happen into those foods by accident of course.)

You could also look into an ELISA food assay and that might help you figure things out. The IgE results of those are much more accurate than any RAST test. IMHO

Chrisser Explorer
Yep I know that feeling. And I have a feeling yours might be caused by hidden food allergies as that is often an allergic response.

Many gluten intolerant or allergic people probably have it prior to going gluten-free. Those that have it after going gluten-free probably also have something else causing problems, either caused by their eating gluten for so long or totally unrelated and was masked by the body.

I'd recommend keeping a food journal of wht you eat and how much. Circle in red meals that you ate right prior to getting this feeling since you said it comes right after eating ? about 20 min or so later?

I'm sure that you'll start seeing foods consistantly showing up, or maybe a dye? or preservative?

I used to have that feeling constantly and no doctor could ever tell me what it was except acid reflux. Once I clued in that it was food related and figured out which ones, it went away. (Well unless I happen into those foods by accident of course.)

You could also look into an ELISA food assay and that might help you figure things out. The IgE results of those are much more accurate than any RAST test. IMHO

I do keep a food diary, but I get it pretty much after every meal. I eat pretty plainly and naturally...meat, rice, potatoes, vegetables. I can get it after a meal of chicken or rice, or after a meal of beef stew. And yes, it shows up anywhere between 20 minutes to an hour after eating.

Simply-V Newbie
I do keep a food diary, but I get it pretty much after every meal. I eat pretty plainly and naturally...meat, rice, potatoes, vegetables. I can get it after a meal of chicken or rice, or after a meal of beef stew. And yes, it shows up anywhere between 20 minutes to an hour after eating.

Only thing I can recommend without butting into your every cooking move, is for you to look closer into your cooking. Spices, peppers, certain veggies, iodized salt, beverages.

The easiest way is to get an ELISA test. There is a place here in Austin that does the test, but I don't know about Dallas.

Btw I'm a misplaced Northerner as well, though after 5 yrs of living here in Texas its growing on me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,395
    • Most Online (within 30 mins)
      7,748

    Graceland.h
    Newest Member
    Graceland.h
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.