Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

As Time Passes, Why So Many New Intolerances?


CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast

Hi Everyone,

I just do not understand how a person can continue to develop new intolerances as time passes. I was diagnosed with Celiac 3 years ago and now I feel like I can barely eat anything. I assume some of the intolerances were always there, but now I am getting direct reactions from all sorts of foods. I used to be able to just avoid gluten and everything was fine. Now I cannot eat rice, corn, soy, dairy, tomatoes, bananas, beans....It's driving me crazy! I am afraid that eventually I will be allergic to everything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Canteveneatrice---

I feel like I am in the same boat with you...I am still determining my intolerances, but no matter what they are---it just doesn't make sense to me. I have been gluten-free/dx Celiac for 2 years now. In the past six months I began having troubles and now think that I have multiple food intolerances. I'm guessing it has something to do with leaky gut and the fact that our bodies went wrong somewhere with gluten and it is a downward spiral. I'm sorry that you are going through this. How did you determine your intolerances? Elimination diet or testing? It seems like there are a growing number of people on this board with more than one (and usually more than two) intolerances. We must be a special group.

So---my big question is...what do you eat?!

RiceGuy Collaborator

I can also relate to your situation. I just found out I can't tolerate nightshade foods like potatoes and tomatoes. At first I thought it might be the rice, but now I'm hopeful that I can continue to eat rice. I have not yet tried though as I'm still recovering from the nightshades :(

Perhaps what happens is the immune system is recovering, but is still on high alert from the glutening it was addressing for so long, so reacts too much. Or maybe it's just the leaky gut, and the body was just too overloaded to react to the smaller stuff. I'm not any more certain than the rest of you I suppose :unsure:

The nightshade thing hit me out of the blue, and like a brick - after what must be a solid 2 years or more gluten-free.

CarlaB Enthusiast

Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

kabowman Explorer

Hey, your list is almost identical to mine, except I can still have rice and nightshades (tomatoes, white potatoes, peppers, eggplant). I can't have bananas either but it isn't in my sig.

I occasionally still have problems and continue to become more sensitive. I figured out why I cannot have most non-dairy milks (rice & nut) is because of the calcium they add - not sure what it is but it doesn't like me. I have the same problem with OJ with the calcium added. Along with some preservatives.

Hubby is a little concerned about what I will be able to eat in another few years if I keep eliminated foods. Well, I haven't really eliminated too many foods recently, just preservatives and additives - the foods have remained the same.

key Contributor

I thought for awhile I was intolerant to all kinds of foods, but I found I was still getting gluten. These are some things I quit doing and it made me feel like a different person! I can't eat out at all. I end up getting sick eating out at least 80% of the time and so it isn't worth it to me. I am not saying I will never eat out, but if I want to feel well, I had to stop. Also, I am not sure, but I did give up my lipstick I was using. There were also some foods that said they were gluten free, but after months of them making me sick, I found out some must be cross contaminated from the plant. If I can eat beans from one can, but not another, that just doesn't make sense. I wish that we could trust companies more.

I do believe people have other intolerances, but for awhile I was thinking I couldn't eat any food without getting sick. Now when I am 100% gluten free, I am fine. It took me over a year to figure all this out and I am still a work in progress. I don't think I handle soy very well either, but I don't avoid it like gluten. I just don't eat large amounts of it.

The one thing I thought was messing me up was caffeine, but I am fine with that too, if I am gluten free.

I hope you start feeling better soon. There is nothing worse then feeling like everything makes you feel sick. It did get MUCH better for me, so there is hope. I was very depressed from being sick all the time. It can really mess with your mind!

Take care,

Monica

gooddawg315 Newbie

hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CantEvenEatRice Enthusiast
hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!

Bananas make me so sick too! I have read that you can eventually re-tolerate foods in the future that you cannot tolerate now. I sure hope that is true because I feel like I can't eat anything anymore! I have a really hard time with brown rice too so I have cut out all rice. I have also cut out dairy. I am hoping that I just feel so lousy due to all the changes and detoxing. However, I haven't been able to tolerate rice for a long time and it actually seems like I can tolerate less and less as time goes on. I am hoping it is just a phase and I will be able to reintroduce foods in the future, but I am not so sure.

RiceGuy Collaborator
Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

Well, for me it was basically what nightshades actually do, only heightened to an extreme. I found out that the poison in nightshades is poison to everyone, only most people don't notice the effects of the typical dose. Take a look Open Original Shared Link for the symptoms. That's what told me I was being poisoned by it. Muscle and joint pains, twitching, spasms, weakness, stiffness, etc. Not to mention the digestive difficulties :(

kbtoyssni Contributor
(like in cereal such as Brown rice crisps or the "gluten free" granola)

Gluten free granola? Oats are usually contaiminated and I've never seen a granola without oats. Is this an oat-free granola that you've found? Anyhow, sorry if you already know about oats, just want to make sure you're not accidently eating gluten :)

  • 3 weeks later...
LoriCF Newbie

I have the same questions for my son. He has multiple food intolerances already (the big 8 except for corn, plus artificial colors, chocolate, strawberries) and since going gluten-free 3 months ago he's becoming more intolerant--citric acid and tomatoes, maybe potatoes? are causing problems (behavioral) too. I'm glad he's not the only one. I feel like a crazy mom, being suspicious of every food he eats!

Lori

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...