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Just Got Bad News

Nikki2003

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Nikki2003 Contributor
Nikki2003
Posted

I had my older daughter tested for celiac because of nicole. And she tested positive so the dr said to schedule an endoscopy an a reg appt. tomorrow.

But I don't get it because withing the past month or 2 she has been doing great she is gaining weight and growing.

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Ursa Major Collaborator
Ursa Major
Posted

Nikki, I am sorry that now your second child has been diagnosed. The good thing is, that you already know what to do, and it will simplify some things for you, as the kids will now eat the same diet.

Guest nini
Guest nini
Posted

Try to look at this from the other side, it's good news, even though it's a challenge, you will be able to prevent her from many further complications from showing up on down the road.

We are all here for you, and regardless of what the biopsy shows, she will need to be gluten-free. Trust me on this one.

Guest Robbin
Guest Robbin
Posted

I agree, take this as a mixed blessing. Being dx at a young age will save her a lifetime of crippling illness and a premature death. You have saved her life by finding this out. I know it is an upsetting thing to learn though. I have two boys with a lot of health problems, and it is a double blow to have both sick so much. Take care.

Luvs to Scrap Apprentice
Luvs to Scrap
Posted

Celina, I will be praying that it will be a smooth transition for your daughter. It is a blessing that they were both diagnosed as children so that they will be able to enjoy a healthier life and not have so much to recover from. My DH was diagnosed first and then my DS. The 2nd diagnosis is easier in that you already know what to expect. DS's has been harder since he is a kid and I am trying to learn how to deal with all the extra challenges that come with a kid on a special diet. But now DS has someone to eat like at our house and that helps a lot. I have DD on an almost gluten free diet so that she and her brother can be eating the same things. I try to bake gluten-free treats so that they both can enjoy. Take care! :) Kendra

AndreaB Contributor
AndreaB
Posted

I'm sorry, but happy that she will be spared years of ill health by being diagnosed early. I had my family tested through enterolab so I don't have an official diagnosis, but the 2 children I had tested and myself are intolerant. My oldest son has/had mild malabsorption also. They both didn't have any obvious symptoms and were growing normally. My youngest I hope to get tested next year. He was cranky the whole week I had him on oatmeal.

I don't know how much older your oldest girl is but it would probably be easier for the two of them to go through this together.

sparkles Contributor
sparkles
Posted

I don't understand why your child needs to go through the endoscopy if the test came back positive for celiac disease. A positive diagnosis is a positive diagnosis...what more can the endoscopy prove??? I wouldn't subject my child to this unless the doc could give me a really VALID reason. It seems to me that with a posivie test result for celiac disease the only thing that needs to be done is getting your child off G. I don't mean to sound harsh or unfeeling because I know how hard it is to have sick children but if the test is not really necessary, why do it? Maybe I am missing something in your post. It is late and maybe I am just not thinking but I don't understand why the test needs to be done. I hope that your little one is able to do well on the gluten-free diet.

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Nic Collaborator
Nic
Posted

Maybe the doctor just wants to confirm the diagnosis with the biopsy. I asked about this on a thread once. Since my father and my son have been diagnosed through blood and biopsy, is it necessary for my youngest to have a biopsy if his blood should come back positive. It is up to you. I am sorry for the bad news but be thankful she has not had symptoms. You have spared her what your other daughter is going through. Good luck.

Nicole

Guest nini
Guest nini
Posted

the biopsy can only confirm if there is damage YET, it cannot tell you if there is going to be damage in the future, what tells you that is the positive blood test you got... so yeah, don't do the biopsy unless they give you a very convincing reason to do so. Neither my daughter nor myself had one, and we are quite happy being gluten-free.

My perspective on looking at this as a happy thing is that I was sick as a child and all my life. I was told I was just a hypochondriac and making myself sick, and I was made fun of in class as a child for "stinking up the bathroom AGAIN"... I had chronic upper respiratory infections, tonsillitis many many times until having them removed, very skinny until early twenties, suffered with depression (severe) and anxiety throughout my teen years and adulthood (before dx), vomiting and diarrhea on a daily basis for most of my life... anyway, just miserable. I am so so happy that by me finally getting dx'ed that I can prevent my daughter from having the same issues, especially since she was such a sickly little baby and toddler... now she is so healthy. Even though your daughter may not be showing obvious symptoms, the fact that bloodwork is positive is enought to know that eventually SHE WILL if she continues to eat gluten, so be happy that she can grow up healthy!

GFBetsy Rookie
GFBetsy
Posted
I had my older daughter tested for celiac because of nicole. And she tested positive so the dr said to schedule an endoscopy an a reg appt. tomorrow.

But I don't get it because withing the past month or 2 she has been doing great she is gaining weight and growing.

Out of curiosity, was she doing poorly prior to the last month or two? And has she been more gluten free during the past month as a result of nicole's diagnosis? If the answer to the second question is "yes", that might explain some of the recent improvements.

FaithInScienceToo Contributor
FaithInScienceToo
Posted

...also happy that she will be spared years of poor health - and that your daughters will share this, and be able to support each other over the years ahead.

Keep the Faith,

Gina

nikki-uk Enthusiast
nikki-uk
Posted
I had my older daughter tested for celiac because of nicole. And she tested positive so the dr said to schedule an endoscopy an a reg appt. tomorrow.

But I don't get it because withing the past month or 2 she has been doing great she is gaining weight and growing.

I know how you feel,my son has just had a positive blood test-and I was really hoping he wouldn't have celiac disease.He too seems to be growing and putting on weight normally.

I suppose you've got to turn it around,and think that they are lucky to be dx as a child,thus saving them from the terrible effects this disease can have on your body when un diagnosed for many years

I know my husband suffered for many years before being dx with celiac disease-and I would never want that for my child.

:)

Nikki2003 Contributor
Nikki2003
Posted
  • Author

She is going to be 7 in october. She ahs never been gluten free. And the last 2 months have been her best,She put on 7 lbs and grew 1/2 inch. But before that she was not a very good eater and sometimes when she was she couldn't gain weight. She was with my mother in law for the summer and they ate mostly organic. But she loves her oatmeal and yogurt. She started having severe constipation problems at 3 even on miralax (didn't help) but has been doing better since.

Celina

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