Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Before Going gluten-free Was Anyone Else Always Hungry?

Guest buzzinboston

By Guest buzzinboston
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

anerissara Enthusiast
anerissara
Posted

I didn't read all the replies, but I wanted to let you know that I had a similar pain in the upper right side, right under my lowest ribs. It almost felt like a muscle catch, or something...the golfball analogy really fits. As if there were something there. Thats the place where the small and large intestine connect, and it's an area that can really get inflamed when you're eating gluten. Also, gas (which is worse with gluten) can get trapped there...my dr. told me that area can blow up as big as a soft ball!!!!! No wonder something doesn't feel right.

When I went gluten-free after several months the discomfort gradually dissapeared. It's been nearly 2 years now and i never get that feeling any more. Sometimes I will get pain in the lower right side if I get glutened, but I don't have the upper pain anymore.

I have to echo what eveyrone is saying...go back on the gluten-free diet!!! It will probably take care of that discomfort, plus it will save your life long-term, plus you will probably lose a lot of weight. I had about 15 or so extra pounds packing around on me, that wouldn't go away no matter what I did and after going gluten-free the weight just came off like nothing. Plus my skin cleared up, i had 100% more energy, i felt better, I could think clearly again, I slept better, my anxiety dissapeared....the list goes on and on. It is SOOOOOOOO worth it! Do it and do it right, and you will be a new person, no kidding. There are so many great gluten-free products out there and every day they come out with new ones, although it's more expensive you can almost eat like anyone else with gluten-free breads, cookies (the KToos OREO knock-offs are as good as the real thing, no joke!) and even bagles and muffins. And those are just the things you can buy, if you bake you can do jsut about anything gluten-free with a little practice. Please, please do yourself a favor and make the decision to go gluten-free for life! Your quality (and quantity) of life will be so much better.

Oh, I forgot (sorry about the double post!)....I get *starving* when I have been glutened. No kidding, I just want to eat and eat and eat. It's like my body craves *everything*, and I'm eating for a "cure" for the gluten in my system. This will last several days after the glutening incident, then fade away. Without gluten in my system, my body works much better at telling me what it needs. Also, I will gain 3 pounds overnight (seriously) without eating *anything* if I've been gluetned...I retain a ton of water. It's miserable, but I didn't know the difference before going strictly gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


casnco Enthusiast
casnco
Posted

I am glad you brought up this topic. I too had a problem with being full. My stomach would hurt, and rather than obstain from eating, I would eat something and the pain would go away. Then the food would begin to "digest" and the pain would come back. Again I would eat more and the pain would subside. This has gone on for most of my life. I have developed the worst eating habits known to man. Now that I am gluten free (for 3 yrs) I do not have the stomach upset. Now I am working on changing my eating habits. Now that is a chore. I have always been about 50 lbs overweight and hoped when diagnosed with Celiac I would lose some weight. I haven't, darn it. And now I realize it is because I have bad eating habits due to the constant cycle of stomach pain and using food to comfort it. What a vicious cycle. When there was no pain in my stomach I was hungry because of all the food I was eating most of it was gluten containing carbs so there was no nutrition for my body. Therefore I was hungry for nutrition. Wish they taught more about nutrition in high school.

  • 2 months later...
e&j0304 Enthusiast
e&j0304
Posted

I just stumbled upon this and I see that it's a really old thread, but I just wanted to add a little of our story for you. My then 2-year-old dd was ALWAYS hungry. Hungry to the point of eating 2 sandwiches, a bowl of grapes, apples, bananas, bowls of cereal, 3 glasses of milk, animal crackers, etc. IN ONE SITTING.

She was so ravenous that we took her to dr. after dr. to see what on Earth was wrong with her. She was also not really growing and VERY short for her age. She had totally fallen off the growth chart. She then started to lose her hair (as you can see in the pic in my avatar) due to not really getting any nutrients even though she was eating so much.

She was blood tested and it was negative. She was never biopsied. We just started the diet the day of the blood test. She responded very quickly, but still eats quite a bit for her age. However, we just had her at the dr. today and she is now in the 20% for height and 40th for weight, which is HUGE for her.

I just wanted to share a little. It always helps to know that others are going through the same thing.

Shannon

Electra Enthusiast
Electra
Posted

Yup definitely have starvation here. I just don't eat dispite the pain and constant growling because hunger pains are so much more tolerable for me then Celiac symptoms :-(!! It gets worse too UG!!! I swear I can eat and 5-10 min later I'm famished!! Like I haven't eaten in days. I just want to sleep my life away at this point so I don't have to live with this any longer!!

ARK Apprentice
ARK
Posted
Yup definitely have starvation here. I just don't eat dispite the pain and constant growling because hunger pains are so much more tolerable for me then Celiac symptoms :-(!! It gets worse too UG!!! I swear I can eat and 5-10 min later I'm famished!! Like I haven't eaten in days. I just want to sleep my life away at this point so I don't have to live with this any longer!!

My 14 year old son was constantly hungry and usually ate every one to two hours throughout the day and was complaining again about being hungry in a few minutes.

Within a week of going gluten free, that all disappeared and we were really shocked. I STILL cant get over him eating small meals three times a day, with maybe only one afternoon snack. It is unreal. I had NO idea how big of a problem it was because I was so used to it!

He is so much happier in so many ways. :D

Looking for answers Contributor
Looking for answers
Posted

I agree with others, as I was constantly hungry before going gluten free. I would eat and then go through my kitchen cabinets to try to find something to satisfy me. Sometimes I would eat two or three small meals after dinner, trying desperately to make the urge to eat go away . . . but it never would. Trust me when I say that going gluten free is a lot easier than dealing with this.

Ann1231 Enthusiast
Ann1231
Posted
I agree with others, as I was constantly hungry before going gluten free. I would eat and then go through my kitchen cabinets to try to find something to satisfy me. Sometimes I would eat two or three small meals after dinner, trying desperately to make the urge to eat go away . . . but it never would. Trust me when I say that going gluten free is a lot easier than dealing with this.

This sounds just like me. I could not find "full" for anything! It was nothing to eat 3 or 4 bowls of cereal, then make several slices of toast. I was eating low fat and everything was wheat products. I felt horrible too and gained so much weight, because of the celiac and also the massive amounts of food I was eating. My appetite changed dramatically when I went gluten free. I was like a different person.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


amber-rose Contributor
amber-rose
Posted

Same here, nothing could ever actually fill me up.

lonewolf Collaborator
lonewolf
Posted

The whole time I was growing up and well into adulthood I was always hungry. It's a lot better now, but I still have a few extra pounds.

Mary Contrary Rookie
Mary Contrary
Posted

Boy this is so me, I am always starving to death it seems..I can eat like a logger...I eat a meal and can still eat more. It has been worse recently, I thought it was because I have had constant D for 3 months and everything is just running right through me..been gluten free for about 2 months now and the D is starting to just barely get better, but I am ravanous all the time....After work I can, or would like to eat non-stop and then still have dinner...I am a bit overweight, but not obese, but I have noticed I can eat alot lately and not gain weight, now that I am no longer eating any wheat/gluten. I am trying to control my eating because large meals just seems to make things worse at the mo, the D, I hope as I continue to heal that this goes away, the feeling I am starving alll of the time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive. The endoscopy and biopsy is looking for damage to your small intestine. I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy...
    2. Scott Adams
      0

      Gluten-Free Diet Burnout: Why It Happens and How to Get Your Motivation Back (+Video)

    3. Midwesteaglesfan
      - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      At 41 years old I have been fighting fatigue and joint pain for a couple months. My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right. Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist. He was extremely thorough and sat with me and m...
    4. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    5. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748
    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Gluten Issues and Vitamin D

      By Wheatwacked · Posted

      And more:
    • Wheatwacked
      Going for upper endoscopy today

      By Wheatwacked · Posted

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.