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How About New Jersey?

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Amethyst* Newbie
Amethyst*
Posted

I might be interested in a Union group, I don't think that is too far from where I live (in the Long Valley area). By the way, if anyone is in Hackettstown, Mama's pizzeria has a new and seemingly very good gluten free menu with pizza. It looks good.

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megsmom Newbie
megsmom
Posted

Hi Karen & Deb-

I live in New Providence & work in Summit. Would love to meet some other Celiacs. I was diagnosed in 6/07 & have been doing this all by myself -- didn't know this chat room was here. There is a Whole Foods in Chatham that I use. They actually have relatively decent hamburger buns :D & there prairie bread makes great bread crumbs.

I would be very interested in a Union County support group. I am a colon cancer survivor, so Celiac Disease on top of that is a real shock! Would love to meet & talk!

  • 10 months later...
Amy Gallagher Rookie
Amy Gallagher
Posted
I live in Vineland, NJ. Was just diagnosed a week ago.

We're in Vineland too. Have you tried Conte's Gluten free Pasta? We are using Conte's for the Pasta dish in our wedding in August. No one will be able to tell it's gluten free!

debmidge Rising Star
debmidge
Posted

How/where do I get Contes? mail order?

Amy Gallagher Rookie
Amy Gallagher
Posted

Here's Conte's information..You're going to love it! I love the perogies.

www.contespasta.com

310 Wheat Rd, Vineland - (856) 697-3400

Cinnamon Apprentice
Cinnamon
Posted

The Gluten Free Market carries Conte's products. they are in Fair Lawn. I don't know how far you are from there, but we live near Parsippany and it takes about 1/2 hour to get there, up 287 to 208 and they are right off 208. I was trying to find out their store hours the other day, though, and had typed their name into a search engine to see if they had a website (they don't seem to, I couldn't find it) but a For Sale listing for them popped up from Craigslist! I didn't know they were selling the store! I hope whoever buys it keeps it a gluten free market!

  • 8 months later...
Kimmy913 Rookie
Kimmy913
Posted
I'm recently diagnosed and I'm looking for friends in NJ :) I live in central Jersey, Metuchen, Edison area.

Hello,

My name is Kim. I know you had posted this post quite a while ago, I don't know if you found anybody from New Jersey or not Gluten Free. I know it is a bit of a small distance but I am from Burlington County area. I am also gluten free, and looking for some gluten free friends.

Well I hope to talk to you soon.

Kim

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njakgirl Newbie
njakgirl
Posted

I'm in Jersey. I live in Middlesex county and was just diagnosed with it yesterday. Any words of advice from anyone?

  • 1 month later...
maureen r Newbie
maureen r
Posted

I'm in S. Jersey. Diagnosed 18 mos. ago. I knew I was in trouble when my GI doc asked me if I had a threshold for gluten containing products!!! Am having a terrible time with DH...just won't go away! Any and all help would be appreciated.

mediaseth Newbie
mediaseth
Posted

I grew up in Wayne, in North Jersey and although I don't live there anymore, I'm down there often enough to make checking this thread worthwhile. I hope to learn where to go for a good meal next time I'm there! Last time, I went to a pizza place with lots of gluten-free options on Allen St. in the L.E.S. (not in NJ).

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    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Pain in the right side of abdomen

      By Theresa2407 · Posted

      Have they checked her Adrenal glands.    
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
    • Aretaeus Cappadocia
      celiac disease and braces

      By Aretaeus Cappadocia · Posted

      Your concerns are reasonable about the celiac risk aspect, and getting additional medical input is a good idea. Obviously I don't know the extent of your child's misalignment, but please don't think of it as just a cosmetic issue. Braces improve bite alignment and typically provide long term health benefits.
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