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How About New Jersey?


Mayflowers

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Amethyst* Newbie

I might be interested in a Union group, I don't think that is too far from where I live (in the Long Valley area). By the way, if anyone is in Hackettstown, Mama's pizzeria has a new and seemingly very good gluten free menu with pizza. It looks good.


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megsmom Newbie

Hi Karen & Deb-

I live in New Providence & work in Summit. Would love to meet some other Celiacs. I was diagnosed in 6/07 & have been doing this all by myself -- didn't know this chat room was here. There is a Whole Foods in Chatham that I use. They actually have relatively decent hamburger buns :D & there prairie bread makes great bread crumbs.

I would be very interested in a Union County support group. I am a colon cancer survivor, so Celiac Disease on top of that is a real shock! Would love to meet & talk!

  • 10 months later...
Amy Gallagher Rookie
I live in Vineland, NJ. Was just diagnosed a week ago.

We're in Vineland too. Have you tried Conte's Gluten free Pasta? We are using Conte's for the Pasta dish in our wedding in August. No one will be able to tell it's gluten free!

debmidge Rising Star

How/where do I get Contes? mail order?

Amy Gallagher Rookie

Here's Conte's information..You're going to love it! I love the perogies.

www.contespasta.com

310 Wheat Rd, Vineland - (856) 697-3400

Cinnamon Apprentice

The Gluten Free Market carries Conte's products. they are in Fair Lawn. I don't know how far you are from there, but we live near Parsippany and it takes about 1/2 hour to get there, up 287 to 208 and they are right off 208. I was trying to find out their store hours the other day, though, and had typed their name into a search engine to see if they had a website (they don't seem to, I couldn't find it) but a For Sale listing for them popped up from Craigslist! I didn't know they were selling the store! I hope whoever buys it keeps it a gluten free market!

  • 8 months later...
Kimmy913 Rookie
I'm recently diagnosed and I'm looking for friends in NJ :) I live in central Jersey, Metuchen, Edison area.

Hello,

My name is Kim. I know you had posted this post quite a while ago, I don't know if you found anybody from New Jersey or not Gluten Free. I know it is a bit of a small distance but I am from Burlington County area. I am also gluten free, and looking for some gluten free friends.

Well I hope to talk to you soon.

Kim


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njakgirl Newbie

I'm in Jersey. I live in Middlesex county and was just diagnosed with it yesterday. Any words of advice from anyone?

  • 1 month later...
maureen r Newbie

I'm in S. Jersey. Diagnosed 18 mos. ago. I knew I was in trouble when my GI doc asked me if I had a threshold for gluten containing products!!! Am having a terrible time with DH...just won't go away! Any and all help would be appreciated.

mediaseth Newbie

I grew up in Wayne, in North Jersey and although I don't live there anymore, I'm down there often enough to make checking this thread worthwhile. I hope to learn where to go for a good meal next time I'm there! Last time, I went to a pizza place with lots of gluten-free options on Allen St. in the L.E.S. (not in NJ).

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  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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