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Lisa

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Lisa Mentor

Is this what is making me sick? I can't figure where the gluten is comming from, but I am having a strong reaction.

Lisa

and to continue...Aciphex.


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mouse Enthusiast

I am sorry you are so sick Lisa. I take Advil Gel Caplets. Hope you feel better soon.

Lisa Mentor

A:

If it is not the Aleive, or Aciphex then I think it is going to a cassin issue, but the stress can't be ruled out.

I look like I could give birth in a few months, at my age, it could be a record. :(

If I remember correctly, once going gluten free, other intollerants may show up. If I have to give up butter, I will just die. :(

I had a full blood work-up Friday and will wait for the results...and little concerned about MS.

Thanks for being there. I'll keep you posted.

xxoo Lisa

jkmunchkin Rising Star

I'm pretty sure Aleeve is gluten free but I actually don't take it because I find it does bother by stomach. I pretty much stick with Tylenol or Advil for headaches. I get a lot of migraines and Excedrin Migraine is like a miracle pill, but unfortunately it bothers my stomach so much.

It might just be to harsh for you.

mouse Enthusiast

I hope this is just stress as you are certainly under a lot of it. I don't want you to have intolerances that will limit your use of dairy (butter). I can't remember Lisa if you had food allergies before Celiac? I have had food allergies since childhood. They would come and go over the years until one would really get bad and I would have to limit that one to nothing. The first one I had to cut out was dairy, about 20 years ago. I can now eat mashed potatos' when eating out and I don't worry what is in the desert I might have at a restaurant. I do not react, but I also NEVER have dairy at home. So, hopefully if you have not had food allergies this will not be it. Nor WILL IT BE MS!! I am sending you lots of hugs to help you through this.

As far as giving birth - think how Jim could buy the bigger boat - he he. Have to try and get some humor in our complex (healthwise) lives.

TinkerbellSwt Collaborator

Hi. Aleve has always bothered my stomach. I think it was too harsh or something. I use what the others have suggested, Advil or Tylenol.

I hope you feel better soon!

Shalia Apprentice

The inactive ingredients don't look like they contain gluten on Aleve (I panicked for a second since it's the only pain killer I'm not allergic to!) but there's one I can't even tell what the heck it is!

Maybe someone smarter than me will come along.

Magnesium Stearate, Microcrystalline Cellulose, Opadry YS-1-4215, Povidone, Talc


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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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