Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

em2005 Rookie
em2005
Posted

POUTINE!!!!!!!!!!!

Mmm...fries with cheese curds and gravy...esp. the ones you get at the casse-croûte stands. Mmmmmmmmmmmmmmmm.........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
gdobson Explorer
gdobson
Posted

I miss being able to go into any restaurant and looking at the menu and saying, "hmmm, I've never had that before. I think I'll try that," and not having to wonder or care what was in it.

I also miss Pizza Treats!!!! And my memory of those Hostess Cupcakes and Snowballs - definitely Snowballs. I know it sounds way weird, but I just want to touch one to remember that spongey texture. Oh, and Miller Genuine Draft. sigh

jaten Enthusiast
jaten
Posted
Have you tried real latin american tortillas?

I'm not sure where to get them. Can you tell me? Thanks, Jennyj, for your suggestion of Mission brand, too. Yes, I've tried Mission. I don't know. There was a thread on here a couple of mos ago about corn tortillas. I've tried all of the ones that I could find around here. I get sick every time. But I can eat On the Border tortilla chips and many other corn products, but not a single corn tortilla. It doesn't make sense to me. (I wish On the Border made corn tortillas). I don't want to hijack this thread. Thanks for your suggestions, though!

Guest ~jules~
Guest ~jules~
Posted
I'm not sure where to get them. Can you tell me? Thanks, Jennyj, for your suggestion of Mission brand, too. Yes, I've tried Mission. I don't know. There was a thread on here a couple of mos ago about corn tortillas. I've tried all of the ones that I could find around here. I get sick every time. But I can eat On the Border tortilla chips and many other corn products, but not a single corn tortilla. It doesn't make sense to me. (I wish On the Border made corn tortillas). I don't want to hijack this thread. Thanks for your suggestions, though!

I buy the mission corn tortillas, and chips. I like mission products because it simply states "gluten free" so I can pick it up and throw it in the cart instead of standing there reading the label. Its just more convinient, any shot of eating being simple I'm taking it....plus they taste really good. Now I'm on a "tort. chip kick" I've been melting cheese over my tort. chips, and drowning them in Newmans Own chunky salsa...Yummmy

Also, (this may sound gross but its actually really good) Dip your cool ranch doritos in cottage cheese....Don't knock it till you try it....lol :D

jerseyangel Proficient
jerseyangel
Posted
Also, (this may sound gross but its actually really good) Dip your cool ranch doritos in cottage cheese....Don't knock it till you try it....lol :D

One of my favorite snacks, pre dairy free, was potato chips or Fritos dipped in cottage cheese! :D I really miss cottage cheese.....

Guest ~jules~
Guest ~jules~
Posted
One of my favorite snacks, pre dairy free, was potato chips or Fritos dipped in cottage cheese! :D I really miss cottage cheese.....

I'm sorry :( I really do feel for those of you with multiple food allergies. It really makes me appreciate the things I can eat. When I first got here I was so mad at doctors and the lach of food. Now that I've gotten to know more about the people here, and the extent of food allergies I'm a lot more posative about eating.... B)

L.A. Contributor
L.A.
Posted

Trashy breakfast cereal...Alpha Bits, Captain Crunch, Fruit Loops :rolleyes: Or maybe it's just the fact my choice is gone---sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I'm sorry :( I really do feel for those of you with multiple food allergies. It really makes me appreciate the things I can eat. When I first got here I was so mad at doctors and the lach of food. Now that I've gotten to know more about the people here, and the extent of food allergies I'm a lot more posative about eating.... B)

Oh, don't feel bad! It's ok, really :D I feel so much better, that it makes it pretty easy to stay away from the foods that I'm intolerant to.

I just had to comment on the cottage cheese dipping--I was surprised to see that someone else did that :lol:

burdee Enthusiast
burdee
Posted

My answer to that question would depend on when you asked ... When first was diagnosed with celiac disease, I found many great gluten-free substitute foods and didn't miss anything. After my dairy diagnosis, I tried to substitute soy products for dairy, but really missed cottage cheese. When I realized I also didn't tolerate soy, I really missed ice cream, yogurt, butter and other dairy products. Then I found almond milk, some sorbets and margarine substitutes as well as other new foods. So I stopped missing anything and enjoyed new favorites. However in August I was diagnosed with additional egg and cane sugar allergies (and confirmed soy intolerance). So I really missed mayonnaise at first. Then I started using guacomole or hummus spread in sandwiches. Strangely I did NOT miss eggs as a food. I also found many egg replacement foods for baking.

I don't miss cane sugar per se, but I SURE MISS CHOCOLATE!!! I had previously found some dairy/soy free chocolate which had sugar. I can't tolerate many artificial sweetners (especially alcohol derivatives like sorbitol, etc.). So I have not yet found a safe chocolate candy substitute. However, I suspect that once I start experimenting with recipes from my new food allergy cookbooks, I'll come up with a pretty good fudge substitute recipe.

Above all I miss spontaneity ... I can't just walk into any restaurant and find something suitable on the menu. I stick with classier ($$$) restaurants who want to please their patrons and prepare safe meals or Mexican restaurants where I can substitute corn tortillas, avoid deep fried foods possibly contaminated by gluten foods in the same fryer and pass on cheese. Frequently I order simple grilled meats and steamed vegies, while enjoying a glass of wine. Nevertheless, I sure don't miss that chronic cramping pain, bloating and gas. I'm happy to abstain from 5 different foods to avoid those symptoms.

BURDEE

Pearia Newbie
Pearia
Posted

Fish & chips, pizza, a GOOD sandwich, BEER, Big Mac & Filet of fish, french bread with pasta, the list goes on & on.

Mango04 Enthusiast
Mango04
Posted

Rubios...mmmmmm

Other than that I'm completey okay with being gluten and dairy free...but I miss soy!!!!!!!!! How sad is that? I miss Earth Balance!!!!!!! and all the yummy gluten-free stuff made with soy flour...and this is even more sad...the other day I saw some gluten-free, dairy-free, tofu cheesecake and I just looked at it longingly. Hehe how many "normal eaters" would laugh in my face if they knew all I wanted in life was some gluten-free tofu cheesecake? Okay I'm exaggerating a bit...but still....

ÆON Newbie
ÆON
Posted

Oh, this is an easy question. I'm a vegetarian and I miss meat substitutes so, so, so bad. Fake chicken, fake lunchmeats, I even had access to fake tuna for a while and it was soooo good.

I get overwrought just thinking about that stuff. :wub:

Guest ~jules~
Guest ~jules~
Posted
Oh, this is an easy question. I'm a vegetarian and I miss meat substitutes so, so, so bad. Fake chicken, fake lunchmeats, I even had access to fake tuna for a while and it was soooo good.

I get overwrought just thinking about that stuff. :wub:

I have a veggie friend, she eats alot of morningstar farms chic patties, are they gluten free? I have had them and they are really good. Just curious...

Carriefaith Enthusiast
Carriefaith
Posted

I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

ÆON Newbie
ÆON
Posted
I have a veggie friend, she eats alot of morningstar farms chic patties, are they gluten free? I have had them and they are really good. Just curious...

No, I'm sorry to say that they're not. Morningstar makes good stuff though, I agree. Alot of fake meat has wheat in it but there are a very few that don't.

Qourn makes some chicken bits (little chunks that go nicely in rice) that are gluten-free and really good and Gardenburger makes a grilled burger that's okay.

My all-time favorite was gravy with fake sausage crumbled up in it over biscuits - ohhh so yummy. That would incapacitate me now - oh well.. memories. :D

barbara3675 Rookie
barbara3675
Posted

One of the things I miss is oatmeal with brown sugar and milk on a cold winter morning......I tried it after being gluten-free for a while and it gave me problems. I know there are some gluten-free people that eat it, but it does not work for me. Some of the things that have been mentioned multiple times, like Pizza Hut pizza, KFC, and good crusty breads would be up there on my list of things that I miss also.

burdee Enthusiast
burdee
Posted

There are safe substitutes for most foods we miss. Our food preferences develop through habits. We can develop other food favorites if we look for appealing substitutes. Lots of people, who say they hate gluten free bread, have not tried all the many gluten free breads available. I dislike most gluten-free breads, but have a few (3-4) absolute favorites which I found after doing lotsa research. I've also found decent substitutes for other former favorites containing gluten, dairy, soy, eggs and cane sugar. Just don't eat choclate in front of me!!! LOL (I wear a teeshirt that says "Just drop the chocolate and nobody gets hurt".)

BARBARA: Quinoa flakes are very similar to oatmeal as a hot cereal or in cookies.

MANGO: Smart Squeeze makes a tasty gluten/dairy/soy free margarine in a squeeze bottle.

ANY VEGETARIANS: Look for soy based meat substitutes if you can have soy.

BURDEE

jerseyangel Proficient
jerseyangel
Posted

burdee--

Where do you find that Smart Squeeze Margarine? I have looked everywhere.

burdee Enthusiast
burdee
Posted

I found "Smart Squeeze" at my local QUALITY FOOD CENTER (QFC), but they're owned by Kroeger Foods who also owns Fred Meyer. So you might find them at Fred Meyer Stores. Maybe that's a Northwest Chain. You could also look up the "Smart Balance" (who makes "Smart Squeeze") and look for a store locator or 'google' Smart Squeeze.

BURDEE

Ashley Enthusiast
Ashley
Posted

Poptarts. I crave those things all the time! There's almost an edible substitute for everything, except for pastries. I don't miss regular pretzels because there's awesome substitutes. But, I do miss the mustard-flavored ones though. Can't find gluten-free ones.

-Ash

jerseyangel Proficient
jerseyangel
Posted
I found "Smart Squeeze" at my local QUALITY FOOD CENTER (QFC), but they're owned by Kroeger Foods who also owns Fred Meyer. So you might find them at Fred Meyer Stores. Maybe that's a Northwest Chain. You could also look up the "Smart Balance" (who makes "Smart Squeeze") and look for a store locator or 'google' Smart Squeeze.

BURDEE

Thanks! I went to their website and sent an email to customer service--they didn't have a store locater. There's also a phone # I can call on Monday :)

mouse Enthusiast
mouse
Posted

Does Smart Squeeze marg. have corn in it? I bought Spectrum marg. and it does not even melt on my baked potato.

jerseyangel Proficient
jerseyangel
Posted
Does Smart Squeeze marg. have corn in it? I bought Spectrum marg. and it does not even melt on my baked potato.

Hi Armetta

I've not actually seen the Smart Squeeze--so I don't know if it has corn in it. That's something I'd want to check when I can read the label.

I've never seen the Spectrum Margarine--dosen't sound too good, though, from what you said--I do love their shortening!

Why is it so hard to find a margarine without soy, corn and whey? :angry:

CarlaB Enthusiast
CarlaB
Posted

Have you tried Ghee? I use it or coconut oil exclusively -- and the benefit of coconut oil is that it's good for you!

jerseyangel Proficient
jerseyangel
Posted
Have you tried Ghee? I use it or coconut oil exclusively -- and the benefit of coconut oil is that it's good for you!

I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.