Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Where I Introduce Myself?


Adelle

Recommended Posts

Adelle Enthusiast

Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Turtle Enthusiast

That's AWESOME!

Welcome to the boards!!

You'll love it here!!

mouse Enthusiast

Welcome to the forum. Just remember that we do not consider any question stupid. That is great that doctor #10 listened to you and ran the blood tests. That is totally awesome.

AndreaB Contributor

Welcome Adelle! :D

You've come to the right place. This is a very warm and loving community.

BTW....I'm about 2 hours North of you....SW Washington, north of Vancouver about 1/2 hour.

ÆON Newbie

Howdy hi!

I'm happy to hear that you found the problem and are feeling better. I'm kinda new here too and have found this to be the greatest place for information and support. :)

Guest ~jules~

Hi, I am from salem also! Wow there really is someone else in this town with celiac....If you don't mind me asking, are you seeing a gi? I see Dr. Em at salem gastroenterology, he's awesome. I actually only had to see him twice before diagnosed, imagine that! My family doctor is the stubborn moron, he's over at the salem clinic, I'm looking to change that soon. I saw him about 6 times over a period of a year and a half before he even gave me a refferal, that I had to ask for. :blink: Well, welcome to the group, if I find any good gluten-free stuff here in town I'll be sure to share, or don't hesitate to ask....Julie

Adelle Enthusiast

No I'm not seeing a GI yet, I did about 4.5 years ago. He said I was, "just fine". So I really don't want to see another doc, yet. Yay more people in salem!! I'm me or something sometime :). Anyway, I'm so happy to find a place like this. I just got a bread maker today. Mmmm gluten-free sandwiches. Well, I have nothing else to say. Thanks for bein here ya'll!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome Adelle:

I just wanted to add that the poster "Nini" has a gluten free startes list, that has lots of great information for those begining the diet. Just remember, being gluten free, is not all about food. Gluten can be found the shampoos, soap, cat food, dog food, face creams and and basically anything that can get into your mouth.

Do a members search for her name and personal message her and it will be there for you.

Again, welcome to the world of Celiacland.

Lisa

par18 Explorer
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Hi,

I am really impressed that you were able to find out on your own. Also that you feel confident that the diet is your answer. Just keep listening to your body. Having a spouse willing to support you makes all the difference. I feel 100% that you will continue to progress. My wife supported my diet and our home is gluten free. Good luck and welcome. Your success is our success!

Tom

Adelle Enthusiast

I know I'm uber lucky! Yay! So far things are going well (3.5 weeks!). Someone mentioned to look in unexpected stuff, all clear, I randomly got lucky with my bath products, I already cleared/washed the cupboards. But I forgot to check my guinea pig food! I have 2 piggies, boudika and maeve. Their food contains wheat. Oh no! I can't just not feed them. Luckily ryan (my husband) volunteered to feed them (and buy the food etc) so I don't have to touch it! I also work with horses (many of whom eat oats), so I'l have to wash my hands a ton and be extra careful. Anyway I feel so welcomed! Yay!

AndreaB Contributor

I love horses!!!!!

I had one in high school. Now I collect breyer custom painted horses. :)

cowrdlyon Rookie

Conragtulations on finding the site. I too was only diagnosed recently. August 16th to be exact. I was on vacation at the beach and got a call from the doctors office...Happy Birthday, I know your on vacation so enjoy the sun...By the way, stop eating all wheat and products containing gluten bacause that's what has been making you sick for the last 4 months!!! Not the perfect way or day to find out but what can ya do? I've been gluten free since 3 days after that and I feel so much better. So......Welcome, Welcome, Welcome and hang in there!

lovebug Newbie
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

thats great you are lucky. i was diagnosed in april and have been on the gluten-free diet ever since but i am very sick. i myself am so week i cant work.

debmidge Rising Star

Adelle

Welcome! You'll be glad that you came aboard. There's a great group of people here who are very eager to share tips, hints and commiserate with you if you need it.

Don't be bashful about joining in any of the threads.

Deb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.