Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Months After Starting Diet Did It Take You?


IrishKelly

Recommended Posts

IrishKelly Contributor

I would like to start a research poll for the newbies on here. I'm curious as to how many months of a gluten-free diet it took until some of us started to feel better? I know the first couple weeks i used to get a little paranoid wondering if this "d" would actually ever go away. I'm 3 months in (still a newbie) and i still sometimes experience "d" and once in a while constipation. I learned from people on here that i ended up with a dairy problem too. All of this has gotten about 50% better at this point but i am still defintitely not healed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



carriecraig Enthusiast

Hi Kelly,

It took me a good 8 months to feel better, and then a whole year to feel pretty much back to normal. I still get "d" because I am lactose intolerant and am too stubborn to not eat dairy. I have also noticed that I don't have severe reactions anymore when I do have a glutening.

Hang in there.

IrishKelly Contributor
Hi Kelly,

It took me a good 8 months to feel better, and then a whole year to feel pretty much back to normal. I still get "d" because I am lactose intolerant and am too stubborn to not eat dairy. I have also noticed that I don't have severe reactions anymore when I do have a glutening.

Hang in there.

Wow, anyone else wish to leave their comments?

ravenwoodglass Mentor

I noticed a difference in the amount of D I had right away, perhaps because I had D every day multiple times for 15 years before I did the elimination diet. I was very, very sick for a very long time so even a bit of improvement was cause for great joy. That said it took almost a year for all of the gluten related issues resolve for the most part, I attribute some of this to my being clueless about issues like CC and nonfood gluten for the first 6 months. I am now 4 years into the diet and except for some residual neurological damage that is still slowly resolving I am healthier and have more energy than I have had since I was very young. Seeing as I have been celiac since about the age of 5 when neuro symptoms first appeared and had severe GI troubles (misdiagnosed as IBS, take immodium, have a prozac and learn to live with it) starting at 30 I consider myself very fortunate that I have recovered as much as I have. Healing can be a long process and for me it required going to a diet that contained almost no processed foods but heal I have.

spunky Contributor

I knew things were "different" after two careful weeks of totally gluten free...but I wasn't actually "better," if that makes any sense. My "intestinal" activity was behaving differently, different patterns, but I was messed up pretty bad. After 3 months, I started having good days that felt like a normal person, but not every day was good, some were as bad as ever, it seemed. I had trouble seeing the difference between just setbacks and accidental glutenings for a while, and I don't know if it's always possible to know the difference in the early months. Finally, now at 8 months, I am having a pretty long normal time, and I feel so good it's amazing. I've noticed major mood improvements too, recently. I used to have sort of a despair feeling, but have felt very optimistic and hopeful with this new normal, well-feeling stage. I hope it lasts forever! Eating just feels better too. I think my entire digestive system is vastly improved now and I love to eat (it just feels better to eat now than it used to) and just need the bathroom once a day, except for the multiple coffee-induced, bladder visits, of course.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,260
    • Most Online (within 30 mins)
      7,748

    HaleighA
    Newest Member
    HaleighA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...