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My Son Has Endoscopy On Friday

nikki-uk

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nikki-uk Enthusiast
nikki-uk
Posted

Those of you that have seen my posts before will know that my 13yr old son had a 'high positive 'result on his tTg blood test,and we've been waiting for an appt for biopsy.

I've just had a GI ring me( who works in a hospital the other side of London) to say that he's had a cancellation and can do my son's biopsies on Fri morning.(It seems my son's paediatrician 'called in' a favour to get it done so quick)

Although I'm relieved as this means I can get him on the diet after Friday-I'm a little nervous :blink: as he's had lot's of heart surgeries in the past and still has a leaky valve.

Do they just heavily sedate kids or use a general anaesethic?? :unsure:

Anyway,I'm sure it'll go okay-but you know we Mums like to worry!!

Fingers crossed he will have a positive result on his biopsy-keep you posted!! :D

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Canadian Karen Community Regular
Canadian Karen
Posted

Hi Nikki!

I think it's wonderful that they are getting him in sooner instead of having to wait. I just had the biopsy last month, and here in Canada, they don't use general, they just sedate you, you don't go right under, you are still aware, you just don't feel anything (personally, what a wonderful high it is for me!!! LOL!)

I am with you in the mums always worry. With four children, boy, do I hear ya!

Try not to worry, it will be over before you know it and you can start him on the road to recovery that much quicker!

Sending hugs over the water!

Karen

nikki-uk Enthusiast
nikki-uk
Posted
  • Author

:) Thanks for the hugs across the Atlantic Karen!!!!

I just want it done and dusted-diagnosis given and get him on the diet :D

I know it's a relatively simple procedure (and what with him having had heart surgery twice,this should be a walk in the park in comparison!)

But,-it's all relative.I'm a Mum,and it's my job to worry!!

Hope you and your crew are well ! :):)

C&M Newbie
C&M
Posted

My three year old had an endoscopy almost 2 months ago and they totally put her out. Her father and I were in the room when she went under sedation and were there when she woke up. She didn't remember or feel a thing.

Good luck Friday!

jayhawkmom Enthusiast
jayhawkmom
Posted

My daughter was 4 when she had her endoscope, and she was completely under. She was *mean* waking up from anethesia, but fell back asleep - and then once she really woke up, she was great, no problems at all.

It's horribly nervewracking to have your child go through any medical procedure. But, I do think it's worse for the mom who's sitting in the waiting room.

My very best wishes to you!

jcc Rookie
jcc
Posted

In the US, I was told by the GI that the recommendations are to heavily sedate adults, but use general anesthesia for children. My daughter, at age 15, was under a general. The anesthesiologists will give special consideration for your son, I'm sure. They are pretty cautious.

We were sent home the first time because my daughter's oxygen level was low so he wouldn't put her under a general because it can further compromise lung function. He said he could have done it under sedation, but preferred to just wait for another day. She had just come down with a cold that morning, and of course, and her asthma was flaring a bit.

When she finally had it done a week later, she was a little nervous about it before hand, but once she was out...everything went perfectly from then on.

Good luck! Hopefully you and he will sail right through it.

Cara

AndreaB Contributor
AndreaB
Posted

Thoughts and prayers will be with you both on Friday. When is Friday in the states? I think you guys are about 9 hours ahead of us on the west coast. It's heading toward 8:30 pm over here.

It is great that they can get him in so early. Thanks to your ped....sooner to start the diet and for him to feel better. :)

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nikki-uk Enthusiast
nikki-uk
Posted
  • Author

AARGH!! It's been cancelled until next Friday (29th Sept)-they just phoned me <_<

Thanks for all your well wishes!-Hold on to them until next week.

I'll have to sweat it for another week :( !

queenofhearts Explorer
queenofhearts
Posted

Sorry you have to wait so long-- I fully sympathize with the raging mommy anxiety, & everything is always so much worse in the imagination than it turns out in reality!

Hang in there,

Leah

TCA Contributor
TCA
Posted

Nikki,

I hope things go well for him next friday. When Megan had hers done they got the cardiac anesthesiologist for her, just to be sure everything was covered with her heart. I'll be praying for both of you! Megan came through splendidly and had no problems and that was even before her last surgery to finalize the repair on her heart. Keep us posted!

jerseyangel Proficient
jerseyangel
Posted

Nikki--

I'll be sending my good thoughts your way and saying a prayer for your son :)

It's so much harder when it one of our kids, isn't it? I always wished it could be me instead of them going through these kinds of things.

Sorry you have to wait the extra week--that's always hard...

DingoGirl Enthusiast
DingoGirl
Posted

Oh not another week! That is heinous and don't you hate it when they do that! I hope you can somehow relax all week.... :)

beaglemania Rookie
beaglemania
Posted

Its not that bad, I'm 14, had my endoscopy almost a year ago. My mom freaked out but it was fine. You have to take nasty tasting stuff, and do they prick u with a needle or no?? I forget. Anyways once they give you the stuff I just fell right asleep and then afterwards I woke up and I felt groggy, but other than that I was fine. I think I might've woken up a bit during the procedure. I remember someone holding me and telling me to lie still. And I think I remember something in my throat but I'm not sure. I fell back asleep then.

nikki-uk Enthusiast
nikki-uk
Posted
  • Author

Just to update-it's been cancelled-AGAIN!!!!!

GRRRRR!!! <_<

Booked in for next Friday......

AndreaB Contributor
AndreaB
Posted

Can't you tell them you've been cancelled twice and set up a definate appointment?

My husband surgery was postponed a week and since he had to take a day off without pay he asked that they book him for the next week. He was first one in, so they couldn't bump him.

VydorScope Proficient
VydorScope
Posted

Nikki,

First of, I have personaly had the endoscopy TWICE, and my son had it at 20 months (if I could go back and do it over I would have skipped it knowing what I know now about celiac disease and the worthelessness of the bisopy...)

With a decent doc/staff its not normaly a big deal. Our son showed absolutly no indication of any side effects or discomfort once the drugs wore off. I had a mild sore throat after my first one, but not after my second one.

TCA Contributor
TCA
Posted

still praying for you guys!

  • 2 weeks later...
nikki-uk Enthusiast
nikki-uk
Posted
  • Author

Thanks to everyone for your support!!

My son had his endoscopy on Friday at last with no problems.

He was put under a general anaesthetic-so he doesn't recall any of it!

He woke up a little confused but ravenously hungry!

They took around 18 samples for biopsy and some more bloods to do another coeliac panel and we get the results next week.

The staff were absolutely fantastic with him (and me!) but I'm glad it's done!!

:):)

AndreaB Contributor
AndreaB
Posted

We'll be waiting for the results along with you Nikki. :)

Ursa Major Collaborator
Ursa Major
Posted

Oh, finally! I am glad you're both okay. And 18 biopsies, that's great, hopefully they didn't miss all the bad spots then (if there are any). It sounds like they knew what they were doing, anyway.

nikki-uk Enthusiast
nikki-uk
Posted
  • Author

Finally the results are in and.....(drum roll).....

They were positive!!

So,it's official.

Docs said the biopsies showed damage consistent with coeliac disease.

Feeling slightly 'down' actually. <_<

I know that's crazy, as it's been caught fairly early, and it's within our power to right everything with diet, but....,he's doesn't really understand why he can't eat his favourite things anymore, and well it's just another thing that sets him apart from other kids. :(

I have told him that he has to eat what Daddy eats otherwise he will get a tummy ache but as he has Downs Syndrome it's *hard*.

One of his real pleasures in life is eating!!!

Well, must snap out of it!- I'm sure I'll be feeling more positive tomorrow!!

Thanks to all for your kind words and support. x

jerseyangel Proficient
jerseyangel
Posted

I'm sorry, Nikki :( It just dosen't seem fair that Alan will have this to deal with too. At least he has his dad to partner with.

I think you're an absolutely amazing mom :)

AndreaB Contributor
AndreaB
Posted

I wish I could help with ideas. :(

Hugs for you.

Ditto what Patti said.....you're great!

TCA Contributor
TCA
Posted

I'm sorry for the positive diagnosis, but glad that you know now. I will be praying for you!

nikki-uk Enthusiast
nikki-uk
Posted
  • Author
I think you're an absolutely amazing mom :)

Ditto what Patti said.....you're great!

I'm sorry for the positive diagnosis, but glad that you know now. I will be praying for you!

Thankyou all!! :):)

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      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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      By barb simkin · Posted

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    • trents
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    • barb simkin
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      By barb simkin · Posted

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      celiac, chocolate and alcohol

      By trents · Posted

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