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DBRIDGEVEGAS

Help...does Anyone Have Swollen Glands On The Back Of Their Neck?

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Hello... I have a swollen gland on the back of my neck that seems to fluctuate whenever I get glutened. I want to know if anyone else has this problem... It causes me a lot of pain and frustration... I take pain killers, but they only slightly work. Also...How long did it take for any of you to fully heal your immune system after you went gluten-free? Thanks!

Dustin

gluten-free since August 06'

Brother is a diagnosed celiac.

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Hi Dustin, and welcome to this board. I used to get swollen, terribly painful glands in the back of my neck ALL the time. Since I've been gluten-free I have had that problem only when glutened (or having been 'poisoned' by something else I'm intolerant to). In fact, now that I think of it, I used to have swollen glands behind my ears and under my chin constantly, too, and almost never get those now, either.

So, be patient, it takes a while to heal. It took a while for my glands to stop being swollen and painful, definitely a few months.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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I find this fascinating. I actually went to the doctor when I was in college, because I thought the large knots on the back of my neck were a tumor. He laughed me out of his office, saying "They're just lymph nodes." (And then my mom called his office to berate him for laughing at a young girl who is trying to be responsible about her health--Go, Mom!). All I could say was, "But they hurt. Why are they swollen? If they're "just lymph nodes," then why have they been like this for four years?" Of course he had no answers.

I can still feel those two, behind my right ear, though they eventually stopped causing me any pain. If they go away altogether when I'm gluten-free, I'm throwing them a bon voyage party, and then I'm going to rejoice in finally finding out what's wrong with me!

I find this fascinating. I actually went to the doctor when I was in college, because I thought the large knots on the back of my neck were a tumor. He laughed me out of his office, saying "They're just lymph nodes." (And then my mom called his office to berate him for laughing at a young girl who is trying to be responsible about her health--Go, Mom!). All I could say was, "But they hurt. Why are they swollen? If they're "just lymph nodes," then why have they been like this for four years?" Of course he had no answers.

I can still feel those two, behind my right ear, though they eventually stopped causing me any pain. If they go away altogether when I'm gluten-free, I'm throwing them a bon voyage party, and then I'm going to rejoice in finally finding out what's wrong with me!


Enterolab:

Fecal Antigliadin IgA 20 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 1223 Units (Normal Range <300 Units)

Fecal Anti-Soy IgA 18 Units (Normal Range <10 Units)

Serologic equivalent: HLA-DQ 3,3 (Subtype 8,7)

Gastritis dx 10/24

Eosinophilia of large bowel dx 10/29

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Hi Dustin, and welcome to this board. I used to get swollen, terribly painful glands in the back of my neck ALL the time. Since I've been gluten-free I have had that problem only when glutened (or having been 'poisoned' by something else I'm intolerant to). In fact, now that I think of it, I used to have swollen glands behind my ears and under my chin constantly, too, and almost never get those now, either.

So, be patient, it takes a while to heal. It took a while for my glands to stop being swollen and painful, definitely a few months.

Thank you so much Ursula...I was starting to think I was crazy... every doctor I have seen just dismisses it and tells me that swollen nodes aren't the cause of my neck pain. Did get sick a lot when you were on gluten... It seems like I was sick every other week last year...

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Thank you so much Ursula...I was starting to think I was crazy... every doctor I have seen just dismisses it and tells me that swollen nodes aren't the cause of my neck pain. Did get sick a lot when you were on gluten... It seems like I was sick every other week last year...

Yes, I was also getting sick a lot. And your doctors were being stupid. I find that swollen lymph nodes can be excrutiatingly painful! I am so glad mine aren't like that anymore. And I hope that yours get better soon as well.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Hey jen! Iw as in college too when i first discovered a swollen gland on my neck and I too thought tumour :o luckily, a room mate was able to calm me down and explain what it was. turned out I had mono. ever since then, that gland has come up quite regularly when I'm run down, or even for no apparent reason. The heamatologist just said I must have a low grade infection, Another dr said it didn't mean anything. I think it has started subsiding now I am gluten-free - hopefully once I've sorted my other intolerances it will only swell when I have 'normal' illnesses!


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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I used to get swolen glands in my neck quite often pre gluten-free. Mine weren't in the back of my neck, they were behind my ears or down under my jawline. They were sometimes painful--and I felt sick all over with them.

In the 14+ months I've been on the gluten-free diet, I haven't had them once.

Susie--I like your new picture, how nice to see you! :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Hey jen! Iw as in college too when i first discovered a swollen gland on my neck and I too thought tumour :o luckily, a room mate was able to calm me down and explain what it was. turned out I had mono. ever since then, that gland has come up quite regularly when I'm run down, or even for no apparent reason. The heamatologist just said I must have a low grade infection, Another dr said it didn't mean anything. I think it has started subsiding now I am gluten-free - hopefully once I've sorted my other intolerances it will only swell when I have 'normal' illnesses!

Hey, it's kind of cool, though. Like a gluten barometer!


Enterolab:

Fecal Antigliadin IgA 20 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 1223 Units (Normal Range <300 Units)

Fecal Anti-Soy IgA 18 Units (Normal Range <10 Units)

Serologic equivalent: HLA-DQ 3,3 (Subtype 8,7)

Gastritis dx 10/24

Eosinophilia of large bowel dx 10/29

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Hey, it's kind of cool, though. Like a gluten barometer!

I think it really is! I never had swollen lymph nodes in my neck before being diagnosed with celiac. I have been following the gluten-free diet for 2 and a half years. My blood tests have been coming back fine over the last year.

Well about a month and a half ago I felt a couple of swollen lymph nodes in my neck and was feeling pretty awful all the time. Headaches, extreme fatigue, a bit of a sore throat. Not so terrible that I could not work, function, etc....but enough to know that something was not right with me! I went to the doctors twice testing for mono, strep throat and getting blood tests. There was nothing "apparently wrong" with me. Well a month later...still not feeling great and still noticing the lymph nodes in my neck. Just so happens it was time for my 6 month follow-up blood test with my GI. He called me a week later that my blood levels were slightly elevated and that I must be getting gluten from somewhere.

So now it makes sense....I must have been getting some source of gluten..causing an auto-immune reaction and ultimately the swollen lymph nodes and the other symptoms.

Not that I am a doctor, but it seems to make sense to me!


Megan

Diagnosed Celiac in Feb 2004

Boston, MA

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Yes.... and right NOW.....

ouch.....

and I hdn't really thought but I think you are correct and this is due to my glutening.....


Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

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I am sooooooooo soooooooo glad that other ppl have this :D ... I get it not only on my neck but my whole body where there is lymph glands. My Doctor looked at me like I was NUTS when I told them about it ... I have gotten so bad that my husband can't even hug me sometimes ! The Docs had no answers and didn't believe me when I talked about how painful it can be ! Mine swell when I accidentally eat gluten as well. I have a friend who is into the natural side of medicine and she has gotten me into the infrared saunas and they totally help me when I get like that ! I didn't think it would help me as much as it did.


>>>>>>>>>>>>>>>>>>

Diagnosed with Celiac on May 30th /06 with Biopsy

Started diet June 28th /06

Polycystic Ovarian Syndrome (PCOS)

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