Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accused Of Neglect


sillyactsue

Recommended Posts

sillyactsue Explorer

My two year old has not gained any weight or rather kept any gained weight since December. I have had her to doctors and next month she is going to a gastrointerologist. She is breast fed and we have been gluten/casein free (interolab diagnosis) since April. I am told that it can take up to a year for her body's systems to adjust to a gluten free diet before she starts gaining. She is very healthy and since we started this new diet has gotten off of her allergy medicine. I suspect soy also and legumes, so I have her off of those until we can get more test done. I am also in the middle of a divorce. My husband who gets two one hour supervised visitations a week is accusing me of neglect. He's crazy but with all that I have been reading of ridicules accusations being acted on I admit I am a bit shaky. Please pray for us.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

That's all you need with everything else you little girl has gone through. :(

Will keep you situation in my prayers.

Ursa Major Collaborator

Are you able to get a doctor's note, stating that your daughter's weight problems are not your fault, that she has celiac disease, and that everything is being done for her, to show to the judge? Do you have people, other than family (like a minister for instance) who can testify on your behalf if necessary, to confirm that you're a good mother?

I hope everything goes well, I will pray for you and your little one.

Guest nini

DOCUMENT EVERYTHING... Get Dr.s notes specifying why she is small, not gaining weight and on the gluten-free diet... This is the last thing you and your daughter need right now, but I will pray that you will have a positive outcome from this. You are well within your rights to be feeling shaky right now, there has been too much of this going on, when will the world wake up and realize we aren't neglecting our kids, that there is something wrong... At least you KNOW what is making her small, when my daughter was a baby and I had a dr. threaten to call DFCS on me because she wasn't gaining weight, (and they mentioned the dreaded Munchausen Syndrome by Proxy) I was very freaked and very scared. I was lucky that the Dr. didn't pursue that line of reasoning and that eventually both my daughter and myself were correctly dx'ed with Celiac. Others have not been so lucky.

We have REALLY got to increase awareness of this insidious condition and get more support from people instead of accusations.

I'm so sorry you are going through a difficult divorce and your ex is being so nasty, I hope you have a really good attorney.

Rikki Tikki Explorer

I doubt the Court will give much weight to him if all he has is supervised visits but to be sure I would give her doctor records to your attorney

My prayers are with you and be sure to let us know

VydorScope Proficient

I fully agree, you should win this no problem. You have documented proof of seeing doctor visits to treat a food related condtion. If you have a good laywer and a decent judge, he should win this case with ease.

As for him. What a freaking {insert unchristian like comment} :angry:

Rikki Tikki Explorer

As for him. What a freaking {insert unchristian like comment} :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

will keep you and your family in my prayers.

hugs

Judy

mouse Enthusiast

I am sure that everything will turn out. But, be sure and give all documentation to your lawyer. Don't leave anything to chance. I will also pray for you and your daughter.

sillyactsue Explorer

Ursula,

Thanks for the doctors note idea. I will take it and medical records. Yes, I have friends rallying around.

She doesn't have Celiac, she has gluten/casien sensitivity. You know, so it's even harder to prove. All the doctors agree with Enterolab but are afraid to officially say that a non FDA approved diagnosis is accurate.

The bad part is that last year my husband was diagnosed with celiac. That is how I knew to have her tested. He knows what her problem is and is using it.

Thanks Nini, I do have a good attorney. He is behind me all the way. He is sick of my husbands insane abuse.

:D VydorScope, I laughed outloud at your unchristian like insert. Trust me, I have inserted several, several times.

Thanks everyone for your prayers. I know what kind of mom I am and so does he. I have a 22 yr. old and and 18 year old also and dozens of people who have watched me raise them. I guess the scary part is knowing that the courts have made bad decisions about so many good people. I need to go breath, turn to my Lord and remember that I'm not in control and that is a good thing.and the Judge isn't in control either. God is.

Thanks for your understanding and support.

KaitiUSA Enthusiast

That is so not cool. I will keep you all in my prayers. I hope things work out well

Canadian Karen Community Regular

Ooooooh, what a tool! :angry:

I hope that once the Judge is properly filled in on gluten intolerence and the fact that your HUSBAND is the one with Celiac Disease and should know better, I hope the Judge gives him a good tongue lashing for pulling a stunt like this!

Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr................. :angry:

Hugs.

Karen

kabowman Explorer

When my ex tried that with my boys, I called and saw their doctors and requested notes of how often Mom brought them in and how often Dad brought them in - some documented this, others did not but the ones that didn't, we started and still do. Even though my kids are older, he could try to pull this one again, sometime, even if we do get along now. The last time, I just gave in and said he doesn't have to pay any support ever again because he is self employed and I cannot prove his income, which he hid from the IRS when we were together so why would that change?

Like Nini said, document EVERYTHING!!!! I still do even though it has been about 6 years since we finished with all that. You just never know when it might come in handy again and it doesn't hurt or take much time.

Talk to their caregivers and see if they are willing to give a written statement that maybe they don't have to pick sides (I actually used teachers) and to tell the judge that you are not a bad person, not that he is either, even if he is unstable but not in public.

I didn't use most of my documentation (or much at all) but I had it to back me up just in case and I was able to read back and refresh my memory so that when it was time to talk to the judge, I had dates/times/issues.

Good luck.

StrongerToday Enthusiast

Document document document!! And the document it all again. Bring extra copies for the judge.

Stay strong!!

Mamato2boys Contributor

What a punk !! :angry: I agree with everyone about getting documentation, and I too think you'll win this with no problem - especially since your ex only has supervised visits and has the very illness that your dc has.

jenvan Collaborator
Ursula,

Thanks for the doctors note idea. I will take it and medical records. Yes, I have friends rallying around.

She doesn't have Celiac, she has gluten/casien sensitivity. You know, so it's even harder to prove. All the doctors agree with Enterolab but are afraid to officially say that a non FDA approved diagnosis is accurate.

The bad part is that last year my husband was diagnosed with celiac. That is how I knew to have her tested. He knows what her problem is and is using it.

Thanks Nini, I do have a good attorney. He is behind me all the way. He is sick of my husbands insane abuse.

:D VydorScope, I laughed outloud at your unchristian like insert. Trust me, I have inserted several, several times.

Thanks everyone for your prayers. I know what kind of mom I am and so does he. I have a 22 yr. old and and 18 year old also and dozens of people who have watched me raise them. I guess the scary part is knowing that the courts have made bad decisions about so many good people. I need to go breath, turn to my Lord and remember that I'm not in control and that is a good thing.and the Judge isn't in control either. God is.

Thanks for your understanding and support.

There is some really good advice here, so I will just chime in with some prayers. Praying faith, courage and perseverance for you.

OH, and praying that whoever is involved making a decision will be discerning and see the truth of it all...

  • 3 weeks later...
ylimaf Rookie

You should prepare yourself for all possibilities!!!! My daughters dad raped my sister and he still got custody. There was a lack of paper work!!!!!!!!!!!! She didnt file a police report!!!!!!!!!!!!!!! I did get one of them back. Take extreme care. Fare warnning in Texas they like giving custody to the dad!!!!!!!!!!!!

GET THAT PAPER WORK. It is really painfull to lose your children to someone you know will harm you kids.

aprilh Apprentice

I am sorry! I have heard of this happening and can not believe it does! It is terrible. My advice would be to keep records galore. No matter what happens at court. I would still keep records. You never know what your husband might do next! That way you don't have to scramble.

I would also get a lot of information together, print it out, about how celiac causing inability to grow in babies then outline in a letter what the dr's are advising you to do diet wise. Also, outline the dx and any other points you need to make. Make copies of the whole package and send certified mail with return receipt. That way he cannot deny he got it. You will have your ducks in a row if it ever came to DSS getting involved. And he cannot say he wasn't informed. I find that people like to point fingers and judge without knowing what the &*$% they are talking about!

Also, keep all records. Keep in date order listing what you and the dr. talked about, any dx, EVERYTHING. Keep it on your computer and just add to it.

YOu may even want to keep a feeding schedule since you are breastfeeding. With all of those notes and records I don't see how you could EVER lose.

Rusla Enthusiast

Anderea I am sure that SOB of an ex will get what he deserves. I am sure if they gave her to him she would go down hill rapidly because he would stuff her with gluten. It is horrible what some men will do to hurt the person they used to be married to and the lies they make up to get out of paying child support. This is a ploy to get out of paying you in the divorce.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,552
    • Most Online (within 30 mins)
      7,748

    judytay080
    Newest Member
    judytay080
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.