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Anyone Else In Central Upstate Ny?

TriticusToxicum

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TriticusToxicum Explorer
TriticusToxicum
Posted

Just curious. I know of 2 other individuals w/ Celiac's in my area. One of them is my sister! I figure there are others out there! Come on in!

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lorka150 Collaborator
lorka150
Posted

How about near Western New York across the Canadian border? It's the best I can do. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

ravenwoodglass Mentor
ravenwoodglass
Posted
Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

jerseyangel Proficient
jerseyangel
Posted

My husband and I are both from Syracuse--our families are still there. We used to have family picnics at Keuka Lake years ago--my mom's family also has people in Owego and Auburn.

Ravenwood--you're so right about how beautiful it is up there--especially this time of year.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

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jerseyangel Proficient
jerseyangel
Posted

This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

jerseyangel Proficient
jerseyangel
Posted
One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

Ouch is right :lol:

babygirl1234 Rookie
babygirl1234
Posted

buffalo ny here

ravenwoodglass Mentor
ravenwoodglass
Posted
buffalo ny here

The land of the snow. It must be nice to be so close to the falls. You are new, let me take this chance to welcome you. You have found a great place for info with a lot of very nice folks.

lorka150 Collaborator
lorka150
Posted

the falls are wonderful until you live there :P

jerseyangel Proficient
jerseyangel
Posted

We went to the Falls on our honeymoon! (I know, very original! :lol: )

lorka150 Collaborator
lorka150
Posted

i love niagara on the lake, but can do without the falls. some 'hidden' parts are nice. i live on the canadian side, though. the american side, in my opinion, is really grungy. although i am sure there are hidden parts on there i dont know, too.

Anteau25 Apprentice
Anteau25
Posted
buffalo ny here

Hey, I'm from Buffalo too!!

babygirl1234 Rookie
babygirl1234
Posted

cool :) ive been gluten-free since i was 16

utopia Newbie
utopia
Posted

Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

jerseyangel Proficient
jerseyangel
Posted
Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

Hi and welcome to the board :D Always great to meet a fellow Central New Yorker B)

I'm glad you found a doctor who will listen and work with you--you're right, that's half the battle right there! Yes, read up on the recipes and the products forums--lots of great info there. Good luck on the tests, and feel free to post with any questions you might have. Last year was my first gluten-free, so I know that the holidays can be successfully done on the diet.

Let us know how your tests come out :)

Canadian Karen Community Regular
Canadian Karen
Posted

Don't know NY very well, I am originally from Toronto, but now live about 1 hr east of Toronto. The only time I have been to NY is when I played baseball. We used to play tournaments on the weekend, and after playing 3 games on a Saturday, we would go home, shower and change and then drive down to Buffalo to party for the night at a place called "The Library". We had designated drivers so the rest of us could have a blast. We would get home around 3 a.m. and be up at 6:00 a.m. to play a 7:00 a.m. game!!!! Ahhhhh, those were the days!

The only other thing I am aware of in NY is my niece goes to university there, in Ithaca, NY. Anyone near there?

Hugs.

Karen

Anteau25 Apprentice
Anteau25
Posted
cool :) ive been gluten-free since i was 16

Hey. Did you lose power from the snow storm? I lost it Thursday night and just got it back on today!!

babygirl1234 Rookie
babygirl1234
Posted

yes i did got it back on sunday lost it thursday night

AmyMarie Newbie
AmyMarie
Posted

I'm live in upstate, Saratoga NY. About 30 min north of Albany.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I'm live in upstate, Saratoga NY. About 30 min north of Albany.

Welcome!

That's a great area. I used to live in Albany - absolutely LOVE hiking in the Adirondacks!

  • 1 month later...
jcgirl Apprentice
jcgirl
Posted

Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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