Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Development-nothing To Do With celiac disease

debmidge

Recommended Posts

debmidge Rising Star
debmidge
Posted

I am opening up this topic as these are our two choices as to

what Mike may have (yes, he belongs to the "Ailment of the Month" club - each month a new and exciting disease! Only $29.99 to join!, Each new month you get a new condition to deal with! The fun part is you never know what it could be and you find such enjoyment discovering the medical specialists in your area. Who needs vacations when you can be a member of "Ailment of the Month club"! Exciting medical procedures, vists to hospitals and delicious new prescriptions to take! You'll be the envy of all your friends..so be the first in your group to join "Ailment of the Month" club!)....

Ok, sarcasm over....but what I want to talk about is:

1) anyone have these conditions? (I realize it's a "man's disease" but please wives, if you know somethingp please chime in. As a wife, I usually am the one who ends up listening to the doctor and I then filter the info to my husband at home while he's muttering and swearing under his breath over the new dilema).

2) how did you handle the diagnosis?

3) what meds did you get? which ones are gluten free? Does Proscar really take 6 mos to start working?

4) did you have any surgergies or procedures to alieviate the Benign enlarged prost.?

5) how are you doing now?

I apologize for opening up a serious thread here, but I am really scared to the point I can't eat. I am going to make appointment for urologist for Mike (he went to GP and GP just did a urine test and brushed us off - told him to see urologist, which is for the best, but had I known we would have went to urologist first. GP didn't even do a PSA nor a physical exam, if you know what I mean :huh::ph34r::o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


spunky Contributor
spunky
Posted

I don't really know much about it but my dad keeps his under control by taking the herb, saw palmetto. He's done this for about 10 years now.

Hope things work out and he improves soon.

TriticusToxicum Explorer
TriticusToxicum
Posted

I don't have any answers for you, but I'm sure somebody on here has some insight. Here's a little "bump" to keep this where people will see it.

I hope you find the answers you're seeking.

CarlaB Enthusiast
CarlaB
Posted

You're definately going to want to get a PSA. My dad had prostate cancer last year and had his prostate removed. Fortunately, it was all in the prostate and no further treatment was necessary. They can tell so much from the PSA, I definately think he should have it done, it will also settle your own mind a bit. Dad did tell me waaayyyy TMI!!! He says he's starting to feel like, um, activity is returning.

Edit -- don't worry, he'll be fine!

jerseyangel Proficient
jerseyangel
Posted

Deb--I wanted to offer support--and say that the PSA is vital. My husband has been getting one yearly, along with a prostate exam for a while now--they draw blood anyway during his physical every year. Glad you're getting him into a urologist.

My dad had prostate cancer about 11 years ago. He had the prostate removed, and although the operation and recoperation was a little rough on him at that age (69 then), he's fine today.

I'll be thinking about you guys--please let us know :)

CarlaB Enthusiast
CarlaB
Posted
Deb--I wanted to offer support--and say that the PSA is vital. My husband has been getting one yearly, along with a prostate exam for a while now--they draw blood anyway during his physical every year. Glad you're getting him into a urologist.

My dad had prostate cancer about 11 years ago. He had the prostate removed, and although the operation and recoperation was a little rough on him at that age (69 then), he's fine today.

I'll be thinking about you guys--please let us know :)

My dad was 69 for his, too. It was a tough couple weeks for him afterward, but he did fine after that.

Rachel--24 Collaborator
Rachel--24
Posted

Debbie,

I dont know anything about this so I cant tell you anything useful but just wanted to say how sorry I am for all that you and Mike have had to deal with. Stay strong and I'll be keeping both of you in my prayers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

Debbie ---

And yet, ANOTHER condition to deal with. You are in my thoughts and prayers. I don't see how you do it, my friend . . . . .

Benign Prostate Hypertrophy is pretty common in men -- moreso if they've had a vasectomy, for some reason. As far as treatment, don't know much about that. I agree a PSA is an absolute -- regardless of his age.

My father was diagnosed with prostate cancer 13 years ago. They told him he had little more than 6 months to live . . . . he's 72 and will working. He did the radiation treatment (direct radiation, not the implants), takes Lupron shots once a month and I believe takes Eulexa (?) every day.

Oddly, he told my cousin, who was 39 at the time, to make sure that beginning at age 50, make sure he got a PSA done every year. My cousin got freaked out, insisted that his doctor do a PSA -- ended up with Prostate Cancer. He had his prostate removed, don't know if he had any other treatment (really didn't feel comfortable asking -- he's my cousin), but he's fine, as well.

debmidge Rising Star
debmidge
Posted
  • Author

Mike's last PSA was done during Jan 05 and it was a low normal number....he skipped getting one in 2006; so he's due.

I don't know - if this turns serious prostrate probem - if he is strong enough for the harsh chemo/laser or radioactive treatments. He's very frail (he's only 56 years old).

My current quest it to find out if meds like Proscar are gluten free and what brand of saw palmetto is gluten-free; info like that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,625
    • Most Online (within 30 mins)
      7,748
    Barb2
    Newest Member
    Barb2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.