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General Malabsorbtion Questions


Mellie

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Mellie Newbie

So I'm reading all about people losing hair and teeth and gum issues and skin issues and all kinda of stuff I had never thought about. And I'm wondering too....I haven't had hair loss (then again my hair used to be SOOO thick that if I've lost some maybe I just didn't notice?) but I have noticed a change in my hair these last few/couple years. It used to be soft and shiny and healthy and it's not anymore. No matter what I do or don't do to it as far as washing and styling and all that. It's not shiny...it's very dull....and more wirey feeling -not soft.

I just saw skin issues brought up here but didn't read about it- will have to look into that more too. I don't have many skin problems- and when I was younger I had NONE but these last few years I've dealt with breakouts and stuff...but that could be a lot of things and might not even be the type of problems associated with the gluten stuff.

Then there's the weight stuff....I've never been a bean pole but when I was toward the end of college I really started putting on weight and have been ever since. I can't seem to lose. or this last year or two- even gain. Although I have gained a few pounds recently. :( I've tried the cruves diet, atkins diet and Weight watchers...all for at least a month each. When I did the curves diet I was also working out a few days each week at curves. Nothing. Nada. Zilch. No differences. Except maybe very minute.

And then I have major bathroom problems....pooh. :( bleh. So I've thought it sounded like a malnutrition/malabsorbtion problem....and it's all starting to make more sense...

But my one big question is.....now I'm wondering what OTHER things could be the culprit? If it's not the gluten stuff....I don't even know where else to begin looking.

anyway- guess I'm just rambling and venting. Don't mind me. ;)


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Nancym Enthusiast

Thyroid issues can cause all those symptoms: Hair, weight gain. You might want to look up thyroid symptoms and see if you match up. It'd be "hypothyroid" that you're looking for.

Mellie Newbie

they've tested 'my thyroid' several times and it always comes back normal. ??

happygirl Collaborator

Mellie,

I just wanted to recommend a great book that helps explain potential links between Celiac and "other stuff". It is Dr. Peter Green's (a leading Celiac researcher and physican at Columbia University) "Celiac Disease: A Hidden Epidemic" ... it was really helpful for me to put a lot of the pieces together. You can get it off amazon and some people have found it at local bookstores (Borders, B&N, etc). My mom just started reading it, and she is just amazed by it all.

Hope this might help,

Laura

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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