Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take You To Get Over A Glutening?

danikali

By danikali
in Coping with Celiac Disease

Recommended Posts

danikali Enthusiast
danikali
Posted

I was just wondering if everyone could post a little bit about what happens when they get glutened........ I haven't been like this for a LONG time and I know I'm being a little baby here (for those of you who keep reading my reccent posts), but it's been 10 whole days and I'm not better yet! I used to think it only took about a week, but now it seems like it's going on forever, no matter what I do to speed up to process! But if you guys tell me that it sometimes take you this long to get over it , then I'll at least feel better knowing it's not some like bad bad thing that will never go away! (I know, I'm a total pesamist now, but when I'm sick, it's hard not to wonder 'what if') So any thoughts or advice. I'm not really new to this, but like I said, it has only happened two times in the past 8 or 9 months or so, so when I get this bad again, I get mad/scared/frustrated..........Thanks guys...........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I find the length of time differs from person to person. It also seems relevant in how severly it affects you. For me it takes a minimal amount to cause me to have DH and be terribly ill. I have been totally gluten-free

for almost a year. I miss eating turkey sandwiches but the pain and dh is not worth having any gluten. Unofrtunately I have been glute-ed by accident.

danikali Enthusiast
danikali
Posted
  • Author
I find the length of time differs from person to person. It also seems relevant in how severly it affects you. For me it takes a minimal amount to cause me to have DH and be terribly ill. I have been totally gluten-free

for almost a year. I miss eating turkey sandwiches but the pain and dh is not worth having any gluten. Unofrtunately I have been glute-ed by accident.

Well I had gluten not last Friday, but the Friday before that..........I was extremely bad last week, and it has gotten better, but I still keepg etting bad gas pains in my back and lower abdomen, I'm still extremely bloated, and I'm still naseous.........how long does it take you to get 'better' after you get sick from eating gluten?

DingoGirl Enthusiast
DingoGirl
Posted

Hi Dani -

My response is almost exactly 12 hours later, and lasts a half-day to a day. SEvere D and cramping - it is fierce and miserable - but then I am fine by that night or the end of the day.

Am wondering if something else is going on with you? Can't imagine a glutening lasting that long, but, it IS different for everyone....

blessings.

danikali Enthusiast
danikali
Posted
  • Author
Hi Dani -

My response is almost exactly 12 hours later, and lasts a half-day to a day. SEvere D and cramping - it is fierce and miserable - but then I am fine by that night or the end of the day.

Am wondering if something else is going on with you? Can't imagine a glutening lasting that long, but, it IS different for everyone....

blessings.

Well, it for sure always lasts about a week. It's not just digestive things that I get though, it's disrupts my whole system....I get muscle aches, feels like I have black and blue marks all over my body, sore insides, pretty much everything hurts. It always last at least 7 days but I was just wondering if anyone knew of it lasting longer......This time was realllllly bad....and all of the body aches and everything, all the 'weird' symptoms are gone, but now I just have a weak digestive tract all over again.

oceangirl Collaborator
oceangirl
Posted
Well, it for sure always lasts about a week. It's not just digestive things that I get though, it's disrupts my whole system....I get muscle aches, feels like I have black and blue marks all over my body, sore insides, pretty much everything hurts. It always last at least 7 days but I was just wondering if anyone knew of it lasting longer......This time was realllllly bad....and all of the body aches and everything, all the 'weird' symptoms are gone, but now I just have a weak digestive tract all over again.

Dani,

I am going through something similar right now and I don't even know what the culprit is/was! The low back pain and distention and joint aches and cracks are very bad! This has been over a week as well. If you continue to do better- I'd say it was the gluten. If not, you should probably check in with your doctor. Get well!

lisa

gfp Enthusiast
gfp
Posted

So far as measurable damage then best figure seems to be 4-6 WEEKS....

However that's all a bit relative....

Different symtoms seem to have different timescales and as said it differs p[erson to person BUT I'd also say it differs in a single person according to other health issues.

For me I have a short 1-2 hour delay before stage 1 which is fever and sweating ... and brain fog starts setting in.. then usually 4-6 hours later the cramps and D.... this then cycles for a week or more...

During this time the symptoms come and go.... sometimes I have C and sometimes D....and sometimes I feel otherwise OK.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tracey* Rookie
tracey*
Posted

Do you have a good gluten-free probiotic handy?

I find that if I need it to move along quicker, I start taking my probiotic in the morning and night and it shortens the recovery time by a few days. It helps me flush out the gunk in my digestive system

gabby Enthusiast
gabby
Posted

6 weeks for me to get back to feeling 'normal'.

eleep Enthusiast
eleep
Posted

Okay -- here's my issue right now -- it's been a week since the glutening and I'm mostly now dealing with extreme depression-type issues -- blowing small things out of proportion, feeling hypersensitive, feeling hopeless about problems, etc.....

The rest of the time, I'm fine.

Any temporary solutions for dealing with the depressive aftermath? I've been exercising, taking my supplements and getting rest. I'm trying not to let this topple me, but could use a leg up -- someone mentioned something recently about Relacore -- would that help?

jerseyangel Proficient
jerseyangel
Posted

Hi Dani--sorry you're still not feeling well :(

I start within about 2 hours with gas that progresses to D and nausea. This gets worse the next day or two. At this point, the anxiety, grouchiness and fatigue set in. This is the worst part.

It does take a while for me to feel completely better. Sometimes a week or more. During that time, I can go from feeling ok to not and back again. It's never an exact thing, and I notice that the longer I'm gluten-free, the more it varies.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...