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What Should I Do?

Natlay

By Natlay
in Coping with Celiac Disease

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Natlay Apprentice
Natlay
Posted

These last few days have been horrible. Went off gluten in march, dairy free for years, and went off soy and corn about a month or so ago. Was doing mostly ok eating just fruit, vegetables, and meat as all grains seemed to upset my stomach. But then suddenly I have had D for the past few days no matter what I eat. And I'm losing weight again...just when I had finally started to get back to normal. I'm trying to get a doctor's appointment, but that's going to take a while. Would it be that bad to just not eat today? It's not like anything is staying in anyway :blink: I just don't know what else the problem could be...I've cut out every food I can think of that would be the problem and I am very careful about the things that I do eat (very paranoid about cc :P ) Oh yeah...and I've only slept about 2 hours each night.

Help!! Any ideas?

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jerseyangel Proficient
jerseyangel
Posted

How do you feel otherwise? Could it be a virus? It's that time of year...

Maybe stick with liquids like broth and diluted juices for a day or so and see how you feel. :)

Natlay Apprentice
Natlay
Posted
  • Author

I feel completely fine otherwise...my stomach is the only problem, so I don't think I'm sick.

tarnalberry Community Regular
tarnalberry
Posted

could easily be a stomach virus. they often only give GI distress.

loraleena Contributor
loraleena
Posted

What supplements are you on? Too much vit c or magnesium can give you the runs.

Natlay Apprentice
Natlay
Posted
  • Author

I don't take any vitamins or any medications. I've been eating well lately but I don't think I'm absorbing what I'm eating because (sorry...tmi) I can tell what I just ate after I go to the bathroom.

RiceGuy Collaborator
RiceGuy
Posted

How are your soluble and insoluble fiber intake levels? Without any grains those might be way off balance. Just a wild guess on my part, but can't hurt to mention it.

When you say all grains upset your stomach; what would happen? Or should I not ask that question? :lol: Did you try millet? I read it's supposed to be very easy to digest, nutritious, and very few people are allergic to it.

Depending on the way certain foods like grains effect you, another possibility might be a nutrient deficiency. For instance, vitamin B12 is important for the digestion of proteins, fats and carbohydrates. I've read that Celiacs are often deficient in this vitamin, which would help explain why so many find high fat/carb/protein foods troublesome. You will find some interesting threads by searching the board for "methylcobalamin", which is one form of B12.

I'm sure there are numerous possibilities though, and others may have suggestions which can help you pin down the trouble. Just try not to get caught up in addressing only the symptom (the D), but to locate the cause.

Hope you get relief soon!

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Natlay Apprentice
Natlay
Posted
  • Author

I think my fiber intake is pretty good. I eat a lot of vegetables and fruit. It seems like all grains make me feel very bloated...my stomach sticks out a few inches farther than normal. I never thought of a nutrient deficiency...I'll have to look into that. I can tolerate the D...the worst part is that bloated uncomfortable feeling.

lindalee Enthusiast
lindalee
Posted

Your body cannot heal if you are not sleeping. I took melatonin when I was sleep deprived and it helped me so much. I always make chicken soup to calm things down and an epson salt bath. The magnesium in in will relax you and your muscles so you sleep better.

I am also on no grains. If grains bother you - I would not eat them.

I also eliminated corn. That bothers me.

I also avoid nightshades, soy, dairy except sourcream , butter, yogurt.

Are you drinking good water?

Hope you feel better. :)

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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