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What Should I Do?

Natlay

By Natlay
in Coping with Celiac Disease

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Natlay Apprentice
Natlay
Posted

These last few days have been horrible. Went off gluten in march, dairy free for years, and went off soy and corn about a month or so ago. Was doing mostly ok eating just fruit, vegetables, and meat as all grains seemed to upset my stomach. But then suddenly I have had D for the past few days no matter what I eat. And I'm losing weight again...just when I had finally started to get back to normal. I'm trying to get a doctor's appointment, but that's going to take a while. Would it be that bad to just not eat today? It's not like anything is staying in anyway :blink: I just don't know what else the problem could be...I've cut out every food I can think of that would be the problem and I am very careful about the things that I do eat (very paranoid about cc :P ) Oh yeah...and I've only slept about 2 hours each night.

Help!! Any ideas?

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jerseyangel Proficient
jerseyangel
Posted

How do you feel otherwise? Could it be a virus? It's that time of year...

Maybe stick with liquids like broth and diluted juices for a day or so and see how you feel. :)

Natlay Apprentice
Natlay
Posted
  • Author

I feel completely fine otherwise...my stomach is the only problem, so I don't think I'm sick.

tarnalberry Community Regular
tarnalberry
Posted

could easily be a stomach virus. they often only give GI distress.

loraleena Contributor
loraleena
Posted

What supplements are you on? Too much vit c or magnesium can give you the runs.

Natlay Apprentice
Natlay
Posted
  • Author

I don't take any vitamins or any medications. I've been eating well lately but I don't think I'm absorbing what I'm eating because (sorry...tmi) I can tell what I just ate after I go to the bathroom.

RiceGuy Collaborator
RiceGuy
Posted

How are your soluble and insoluble fiber intake levels? Without any grains those might be way off balance. Just a wild guess on my part, but can't hurt to mention it.

When you say all grains upset your stomach; what would happen? Or should I not ask that question? :lol: Did you try millet? I read it's supposed to be very easy to digest, nutritious, and very few people are allergic to it.

Depending on the way certain foods like grains effect you, another possibility might be a nutrient deficiency. For instance, vitamin B12 is important for the digestion of proteins, fats and carbohydrates. I've read that Celiacs are often deficient in this vitamin, which would help explain why so many find high fat/carb/protein foods troublesome. You will find some interesting threads by searching the board for "methylcobalamin", which is one form of B12.

I'm sure there are numerous possibilities though, and others may have suggestions which can help you pin down the trouble. Just try not to get caught up in addressing only the symptom (the D), but to locate the cause.

Hope you get relief soon!

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Natlay Apprentice
Natlay
Posted
  • Author

I think my fiber intake is pretty good. I eat a lot of vegetables and fruit. It seems like all grains make me feel very bloated...my stomach sticks out a few inches farther than normal. I never thought of a nutrient deficiency...I'll have to look into that. I can tolerate the D...the worst part is that bloated uncomfortable feeling.

lindalee Enthusiast
lindalee
Posted

Your body cannot heal if you are not sleeping. I took melatonin when I was sleep deprived and it helped me so much. I always make chicken soup to calm things down and an epson salt bath. The magnesium in in will relax you and your muscles so you sleep better.

I am also on no grains. If grains bother you - I would not eat them.

I also eliminated corn. That bothers me.

I also avoid nightshades, soy, dairy except sourcream , butter, yogurt.

Are you drinking good water?

Hope you feel better. :)

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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