Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Issues And Celiac?

Jolanta

Recommended Posts

Jolanta Newbie
Jolanta
Posted

I have been dealing with symptoms that include chronic diarrhea that is the absolutely worst! I have been dealing with anemia and a slew of other issues! Well, my primary decided to test my thyroid and looks like I am hyper. I have gone to the Endocrinologist and have been diagnosed with Graves Disease. After stopping gluten now for almost 1- 1/2 months, I feel wonderful! My thyroid is actually repairing itself. Also, my blood pressure has gone from a constant 160/90 to 110/80!

The primary even stated that I will probably be taken off meds for blood pressure and I probably do not have Graves disease!!!! My primary told me that I definitely have celiac. I was tested for celiac, but since I have been gluten free for this period, all tests came back negative. She does not think I need any additional tests. She said this is proof enough!

I did see a Gastro and he thinks I should be tested anyway - endoscopy and colonoscopy. I feel that these are just very nice expensive tests for the doctor to get reimbursed, and that I should probably just follow my primary doctors recommendations.

What do you think? Should I have the tests? Or does this prove that I have celiac?

Jolanta

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Welcome!!

If you've been off gluten for some time, those other tests will probably be negative as well. I don't know why they're wanting to do more tests as dietary response IS clinical proof. I wouldn't bother. You feel better, and your primary doc is working with you on it.

Jolanta Newbie
Jolanta
Posted
  • Author
Welcome!!

If you've been off gluten for some time, those other tests will probably be negative as well. I don't know why they're wanting to do more tests as dietary response IS clinical proof. I wouldn't bother. You feel better, and your primary doc is working with you on it.

That's exactly how I feel. But, there is always that little voice saying maybe it's something else. But, as you said, the diet is proof itself. My blood pressure has not been so low in over 5 years. I've been battling chronic diarrhea and unexplained anemia even longer. The docs always said the anemia was since I was a woman and had my periods. Hmmm...

I will be seeing the Endo in December and will see if the thyroid has gone back to normal. Seems that I have many antibodies... Graves or Hashimoto. Doctor said Graves most likely.

We will see... Has anyone heard of Celiacs having Graves???

Jolanta

Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

I agree that the tests will basically be worthless anyway, now that you are gluten free. Even if you were still consuming gluten, the endoscopy and biopsies are basically a hit and miss situation, depending on the amount of damage done. If the damage is only sporatic, then in all likelihood the spots they pick to biopsy very well may not be the damaged parts and will come up as a false negative.

Dietary response is the most important indicator, IMO.

I have hypothryoidism, so it's a bit different from yours. I can tell you about the chronic diarrhea though, since I have not had anything but water for a BM for over a decade! The doctor also found (during the colonoscopy) that I have collagenous colitis. It can only be diagnosed via biopsy as it can only be seen by a pathologist through a microscope. Here is a link you might find interesting:

Open Original Shared Link

Oh, maybe PM KaitiUSA, I believe she has Graves......

Karen

Nancym Enthusiast
Nancym
Posted

Wow! That's' terrific. I wish I had known about the gluten/thyroid thing almost 20 years ago. Dr. Fine says that 30% of thyroiditis sufferers can go into remission on a gluten-free diet. But I went and had RAI done. :(

But I am so happy for you!

Ruth52 Newbie
Ruth52
Posted

I'm very pleased that you are feeling well. An overactive thyroid makes life really difficult. Hopefully your recovery will continue and you will be back to full health before you know it.

I was diagnosed with Graves Disease in early 2004 and was put on medication. I had a dream run through to remission, only needing to be on medication for 11 months. My thyroid levels have been constant for the past two years.

I didn't know anything about Celiac Disease or Gluten Intolerance until my cousin told me about how it effected her. It was like an awakening - what she described was exactly how I had been feeling for a couple of years. I started to dable in eating gluten free in September 2004. I say dable because I would do it for a few months, feel really great and go back to the gluten diet only to get sick again. Anyway the long and short of it is that for the past twelve months I have been totally gluten free and have finally got back the stamina that I lost through a combination of Graves Disease and Gluten Intolerance.

I know there is a lot of debate about whether or not a gluten-free diet can improve thyroid disease , but I because I have stayed in remission (Graves Disease) for two years I am a believer.

Jolanta Newbie
Jolanta
Posted
  • Author

I am relieved to hear that there is some hope out there. I have been having so many issues that my life is just so crazy! I have a pretty stressful job and have been dealing with anxiety on top of all this. I was NOT able to drive my car for over a 2 years. My husband would drive me everywhere. Being diagnosed with something was a relief that this was not all in my head! It was real! and stopping gluten made such a difference.

I wish the best for you. Sounds like we are all finding the right path!!!!!!

Jolanta

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

When I was hyperthyroid I was wired all the time and had a hair-trigger temper. My anxiety levels were astronomical. It was like running on adrenoline constantly.

Well, anyway, hope you have the thyroid thing beat!

georgie Enthusiast
georgie
Posted

Jolanta, I have Thyroid and Celiac. ( think its celiac). Some Drs don't have a clue re Hashis. With Hashis you alternate between hyper and hypo as your thyoid dies. You need Armour meds to suppress the Antibodies attacks.Synthetics don't work very well. My guess is that you have Hashis as that goes with Celiac a lot. I haven't had all the tests for Celiac. My Dr thought it wasn't necessary for me. But read this site to learn about Thyroid www.stopthyroidmadness.com

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,518
    • Most Online (within 30 mins)
      7,748
    Jon D
    Newest Member
    Jon D
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By trents · Posted

      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      Jersey Mike’s option: Gluten-free bread

      By Scott Adams · Posted

      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By cristiana · Posted

      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.