Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Rejecting Food..

Mahee34

Recommended Posts

Mahee34 Enthusiast
Mahee34
Posted

I'm really confused right now. I feel like anytime I eat anything my body rejects it. I put on a pair of gray pants that I bought a little bit ago, size 4, (i used to be a steady size 8 or 6) and they're hanging off of me. I ate lunch and my body rejected it and my stomach still hurts...it's almost like no matter what I eat, good or bad, my body doesn't keep it down. If it isn't a huge gas bubble upseting my stomach, it's explosive D...and I'm really careful about what I eat that I barely eat at all anymore just to at least try to feel somewhat normal, which i haven't since i was diagnosed 3 1/2 years ago...I feel like I"ll have spans of 2-3 months where I feel really good and have little to no problems and then 6 months where every day is a struggle...I don't have much if any health coverage, so I really don't know what to do.....Recently I've posted several questions on here and get little or no one responding...I hope this time is different, I'm really scared about this...

Today I packed my lunch...had some american cheese with oscar meyer honey ham...I thought that was on the "ok"list and the ingrediants seemed ok, but maybe that's the culprit for todays' issue..i don't know

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Could the dairy be bothering you?

evie Rookie
evie
Posted
I'm really confused right now. I feel like anytime I eat anything my body rejects it. I put on a pair of gray pants that I bought a little bit ago, size 4, (i used to be a steady size 8 or 6) and they're hanging off of me. I ate lunch and my body rejected it and my stomach still hurts...it's almost like no matter what I eat, good or bad, my body doesn't keep it down. If it isn't a huge gas bubble upseting my stomach, it's explosive D...and I'm really careful about what I eat that I barely eat at all anymore just to at least try to feel somewhat normal, which i haven't since i was diagnosed 3 1/2 years ago...I feel like I"ll have spans of 2-3 months where I feel really good and have little to no problems and then 6 months where every day is a struggle...I don't have much if any health coverage, so I really don't know what to do.....Recently I've posted several questions on here and get little or no one responding...I hope this time is different, I'm really scared about this...

Today I packed my lunch...had some american cheese with oscar meyer honey ham...I thought that was on the "ok"list and the ingrediants seemed ok, but maybe that's the culprit for todays' issue..i don't know

Mahee..sorry you are having such a problem this far out from your DX. One suggestion I have is to watch liquids taken in as you eat meals, it was suggested to me to not use more than 1/4th cup @ mealtime. theory is that it thins food too much and food goes thru like 'dumping syndrome'. It sure helped me. Also wondering if you could have become sensitive to more foods than you were when DX'd?. The foods you mentioned I am not aware of problems with but other posters will have more info am sure. Do not give up, things will get better for you!! :) Take care of yourself, evie

tarnalberry Community Regular
tarnalberry
Posted

you may want to stick with whole, unprocessed foods for a little while. the stuff you listed (american cheese and oscar meyer ham) have a bunch of ingredients in them, and I know that if my stomach isn't happy, those things aren't going to sit well in it. (well, I can't do the cheese anyway... that will never sit well in my stomach.) you don't have to eat plain (spices are also whole foods, with lots of flavor!) but unprocessed and whole foods may help for a while.

have you ruled out other food intolerances? (soy and dairy are big ones.)

Ursa Major Collaborator
Ursa Major
Posted

I agree with Carla, Evie and Tiffany............it sounds like other food intolerances. All of the foods high in lectins will do the same thing as gluten to me (possibly without the villi damage, but not necessarily). The other day I got SO utterly sick of being on such a restricted diet, that I caved in and ate egg salad on gluten-free bread sticks (which are made with rice and potato flours), as well as some (a small bowl full) of mashed potatoes, and a little cheese.

And yesterday I had explosive D all day, sitting on the toilet for hours. NOTHING I ate on this binge contained ANY gluten at all (and this 'binge' really wasn't huge, I didn't eat large amounts of anything). But those foods contained rice flour, potatoes, soy (in the mashed potato flakes), corn starch and dairy. Also, I am quite achy, my joints are really hurting (which was predictable, of course).

You may want to eliminate ALL lectins for a while (for more info click on the 'lectins' link in my signature), unfortunately, this may very well be your answer. But better to lose some more foods, than being sick indefinitely, right? :unsure:

Guest nini
Guest nini
Posted

I went through this, which is why the majorityof my diet consists of foods that are naturally gluten-free and minimally processed. I avoid foods with a lot of additives and processing... whenever I get in a hurry and buy something that has more additives and is more processed I end up feeling terrible for days.

IrishKelly Contributor
IrishKelly
Posted
I'm really confused right now. I feel like anytime I eat anything my body rejects it. I put on a pair of gray pants that I bought a little bit ago, size 4, (i used to be a steady size 8 or 6) and they're hanging off of me. I ate lunch and my body rejected it and my stomach still hurts...it's almost like no matter what I eat, good or bad, my body doesn't keep it down. If it isn't a huge gas bubble upseting my stomach, it's explosive D...and I'm really careful about what I eat that I barely eat at all anymore just to at least try to feel somewhat normal, which i haven't since i was diagnosed 3 1/2 years ago...I feel like I"ll have spans of 2-3 months where I feel really good and have little to no problems and then 6 months where every day is a struggle...I don't have much if any health coverage, so I really don't know what to do.....Recently I've posted several questions on here and get little or no one responding...I hope this time is different, I'm really scared about this...

Today I packed my lunch...had some american cheese with oscar meyer honey ham...I thought that was on the "ok"list and the ingrediants seemed ok, but maybe that's the culprit for todays' issue..i don't know

I found i also had dairy issues after taking suggestions from others ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mahee34 Enthusiast
Mahee34
Posted
  • Author

I've attempted the removing from dairy from the diet...it's strange...some days i can eat tons of ice cream and be completely fine, cheese...you name it, i'm golden...other days it seems to upset me...i talked to my doctor back at the beginning of this and he said it wasn't that......something about my bad vs. good bacteria being out of wack and taking medicine. which i'm horrible about taking medicine...but i'm trying!!

i try the unprocessed foods thing too, but it's pretty expensive and i'm struggling with finances right now...i used to eat a lot of rice but that bothered my stomach...the liquid thing could be a problem. i never thought of that, i drink more soda than I probably should with the amount of food that i actually take in...the carbination could be negatively affecting my stomach.

i just want to be normal :blink:

jerseyangel Proficient
jerseyangel
Posted

I'm sorry that this is happening to you--sometimes it seems that no matter what we eat and how careful we are, something is going to make us sick! :angry:

I am like Ursula--I could binge all day on foods that would make me sick and never consume a drop of gluten. Especially when our systems are damaged from gluten, there are many other foods or ingredients that can cause us reactions. I'm so much more sensitive to everything--gluten, tomatoes, all of my other intolerances (lectins, corn, tapioca, coconut, dairy).

I can only suggest what works for me, and that is to go to only whole, naturally gluten-free foods. Not always fun, but usually pretty effective. ;)

Mahee34 Enthusiast
Mahee34
Posted
  • Author

it definately makes you wonder, hey why not go ahead and eat that yummy pizza...or that magically fluffy hamburger bun...don't worry...i haven't done anything drastic!!! but it sure makes you want to since you already feel like crap!

daffadilly Apprentice
daffadilly
Posted

Just make some better choices with the same type foods you are eating, not necessarily more expensive. for one thing most of have a problem with lunch meats due to the sulfites, nitrites etc etc.

Try the Hormel all natural lunch meat, it comes in a brownish package in the regular lunch meat section and it says gluten free right on the package and all natural etc. this stuff is delicious (& I am a picky eater).

You can take this and take a big leaf of kale (I am on a kale kick at the moment) or leaf lettuce or a cabbage leaf, spread on some mayo, add the meat, grate a carrot on top of it, add some sliced tomato, and a slice of red onion, then I like to squit a little mustard on top of this - eat with a knife and fork & add in a huge dill pickle spear, YUMMY... forget the cheese :rolleyes::D

or cut it up and add to a salad.

or just make a roll up with the meat and lettuce, or roll up in a heated corn tortilla...

also, since it is getting close to the holidays, anyone that wants a Honey baked Ham, just call your store & ask for a ham without the glaze on it, they usually ask for one day's notice. but one time I walked in and got the other half of a ham that someone had ordered without a glaze!!! The lady said that they keep it for one day before adding the glaze to it...

emcmaster Collaborator
emcmaster
Posted

Hi there -

Just wanted to echo what the other posters said - whole, naturally gluten-free foods are the best for you. They also happen to be the cheapest (most of the time). Good luck!

loraleena Contributor
loraleena
Posted

I echo the other suggestions. I would also take a good digestive enzyme before you eat. It helps me with pain, bloating and gas.

Budew Rookie
Budew
Posted

Echo too!

I feel for you. I can be doing so well. Not even making changes and POW! Can't even keep water down.

It is really scarey.

Last August I was on vacation the maid called an ambulance I looked so bad. They made sure I wasn't on drugs and sent me home in the same condition. A few days later it went away as fast as it came on. It has hapened twice since.

I have no clue. I am gluten free, dairy free, vegetarian, low acid, no spices......and it still happens.

Good luck! Post the answer if you find one. I'll be watching. : )

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,667
    • Most Online (within 30 mins)
      7,748
    AubreyMBSMartin
    Newest Member
    AubreyMBSMartin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.