Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Rejecting Food..


Mahee34

Recommended Posts

Mahee34 Enthusiast

I'm really confused right now. I feel like anytime I eat anything my body rejects it. I put on a pair of gray pants that I bought a little bit ago, size 4, (i used to be a steady size 8 or 6) and they're hanging off of me. I ate lunch and my body rejected it and my stomach still hurts...it's almost like no matter what I eat, good or bad, my body doesn't keep it down. If it isn't a huge gas bubble upseting my stomach, it's explosive D...and I'm really careful about what I eat that I barely eat at all anymore just to at least try to feel somewhat normal, which i haven't since i was diagnosed 3 1/2 years ago...I feel like I"ll have spans of 2-3 months where I feel really good and have little to no problems and then 6 months where every day is a struggle...I don't have much if any health coverage, so I really don't know what to do.....Recently I've posted several questions on here and get little or no one responding...I hope this time is different, I'm really scared about this...

Today I packed my lunch...had some american cheese with oscar meyer honey ham...I thought that was on the "ok"list and the ingrediants seemed ok, but maybe that's the culprit for todays' issue..i don't know


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Could the dairy be bothering you?

evie Rookie
I'm really confused right now. I feel like anytime I eat anything my body rejects it. I put on a pair of gray pants that I bought a little bit ago, size 4, (i used to be a steady size 8 or 6) and they're hanging off of me. I ate lunch and my body rejected it and my stomach still hurts...it's almost like no matter what I eat, good or bad, my body doesn't keep it down. If it isn't a huge gas bubble upseting my stomach, it's explosive D...and I'm really careful about what I eat that I barely eat at all anymore just to at least try to feel somewhat normal, which i haven't since i was diagnosed 3 1/2 years ago...I feel like I"ll have spans of 2-3 months where I feel really good and have little to no problems and then 6 months where every day is a struggle...I don't have much if any health coverage, so I really don't know what to do.....Recently I've posted several questions on here and get little or no one responding...I hope this time is different, I'm really scared about this...

Today I packed my lunch...had some american cheese with oscar meyer honey ham...I thought that was on the "ok"list and the ingrediants seemed ok, but maybe that's the culprit for todays' issue..i don't know

Mahee..sorry you are having such a problem this far out from your DX. One suggestion I have is to watch liquids taken in as you eat meals, it was suggested to me to not use more than 1/4th cup @ mealtime. theory is that it thins food too much and food goes thru like 'dumping syndrome'. It sure helped me. Also wondering if you could have become sensitive to more foods than you were when DX'd?. The foods you mentioned I am not aware of problems with but other posters will have more info am sure. Do not give up, things will get better for you!! :) Take care of yourself, evie

tarnalberry Community Regular

you may want to stick with whole, unprocessed foods for a little while. the stuff you listed (american cheese and oscar meyer ham) have a bunch of ingredients in them, and I know that if my stomach isn't happy, those things aren't going to sit well in it. (well, I can't do the cheese anyway... that will never sit well in my stomach.) you don't have to eat plain (spices are also whole foods, with lots of flavor!) but unprocessed and whole foods may help for a while.

have you ruled out other food intolerances? (soy and dairy are big ones.)

Ursa Major Collaborator

I agree with Carla, Evie and Tiffany............it sounds like other food intolerances. All of the foods high in lectins will do the same thing as gluten to me (possibly without the villi damage, but not necessarily). The other day I got SO utterly sick of being on such a restricted diet, that I caved in and ate egg salad on gluten-free bread sticks (which are made with rice and potato flours), as well as some (a small bowl full) of mashed potatoes, and a little cheese.

And yesterday I had explosive D all day, sitting on the toilet for hours. NOTHING I ate on this binge contained ANY gluten at all (and this 'binge' really wasn't huge, I didn't eat large amounts of anything). But those foods contained rice flour, potatoes, soy (in the mashed potato flakes), corn starch and dairy. Also, I am quite achy, my joints are really hurting (which was predictable, of course).

You may want to eliminate ALL lectins for a while (for more info click on the 'lectins' link in my signature), unfortunately, this may very well be your answer. But better to lose some more foods, than being sick indefinitely, right? :unsure:

Guest nini

I went through this, which is why the majorityof my diet consists of foods that are naturally gluten-free and minimally processed. I avoid foods with a lot of additives and processing... whenever I get in a hurry and buy something that has more additives and is more processed I end up feeling terrible for days.

IrishKelly Contributor
I'm really confused right now. I feel like anytime I eat anything my body rejects it. I put on a pair of gray pants that I bought a little bit ago, size 4, (i used to be a steady size 8 or 6) and they're hanging off of me. I ate lunch and my body rejected it and my stomach still hurts...it's almost like no matter what I eat, good or bad, my body doesn't keep it down. If it isn't a huge gas bubble upseting my stomach, it's explosive D...and I'm really careful about what I eat that I barely eat at all anymore just to at least try to feel somewhat normal, which i haven't since i was diagnosed 3 1/2 years ago...I feel like I"ll have spans of 2-3 months where I feel really good and have little to no problems and then 6 months where every day is a struggle...I don't have much if any health coverage, so I really don't know what to do.....Recently I've posted several questions on here and get little or no one responding...I hope this time is different, I'm really scared about this...

Today I packed my lunch...had some american cheese with oscar meyer honey ham...I thought that was on the "ok"list and the ingrediants seemed ok, but maybe that's the culprit for todays' issue..i don't know

I found i also had dairy issues after taking suggestions from others ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mahee34 Enthusiast

I've attempted the removing from dairy from the diet...it's strange...some days i can eat tons of ice cream and be completely fine, cheese...you name it, i'm golden...other days it seems to upset me...i talked to my doctor back at the beginning of this and he said it wasn't that......something about my bad vs. good bacteria being out of wack and taking medicine. which i'm horrible about taking medicine...but i'm trying!!

i try the unprocessed foods thing too, but it's pretty expensive and i'm struggling with finances right now...i used to eat a lot of rice but that bothered my stomach...the liquid thing could be a problem. i never thought of that, i drink more soda than I probably should with the amount of food that i actually take in...the carbination could be negatively affecting my stomach.

i just want to be normal :blink:

jerseyangel Proficient

I'm sorry that this is happening to you--sometimes it seems that no matter what we eat and how careful we are, something is going to make us sick! :angry:

I am like Ursula--I could binge all day on foods that would make me sick and never consume a drop of gluten. Especially when our systems are damaged from gluten, there are many other foods or ingredients that can cause us reactions. I'm so much more sensitive to everything--gluten, tomatoes, all of my other intolerances (lectins, corn, tapioca, coconut, dairy).

I can only suggest what works for me, and that is to go to only whole, naturally gluten-free foods. Not always fun, but usually pretty effective. ;)

Mahee34 Enthusiast

it definately makes you wonder, hey why not go ahead and eat that yummy pizza...or that magically fluffy hamburger bun...don't worry...i haven't done anything drastic!!! but it sure makes you want to since you already feel like crap!

daffadilly Apprentice

Just make some better choices with the same type foods you are eating, not necessarily more expensive. for one thing most of have a problem with lunch meats due to the sulfites, nitrites etc etc.

Try the Hormel all natural lunch meat, it comes in a brownish package in the regular lunch meat section and it says gluten free right on the package and all natural etc. this stuff is delicious (& I am a picky eater).

You can take this and take a big leaf of kale (I am on a kale kick at the moment) or leaf lettuce or a cabbage leaf, spread on some mayo, add the meat, grate a carrot on top of it, add some sliced tomato, and a slice of red onion, then I like to squit a little mustard on top of this - eat with a knife and fork & add in a huge dill pickle spear, YUMMY... forget the cheese :rolleyes::D

or cut it up and add to a salad.

or just make a roll up with the meat and lettuce, or roll up in a heated corn tortilla...

also, since it is getting close to the holidays, anyone that wants a Honey baked Ham, just call your store & ask for a ham without the glaze on it, they usually ask for one day's notice. but one time I walked in and got the other half of a ham that someone had ordered without a glaze!!! The lady said that they keep it for one day before adding the glaze to it...

emcmaster Collaborator

Hi there -

Just wanted to echo what the other posters said - whole, naturally gluten-free foods are the best for you. They also happen to be the cheapest (most of the time). Good luck!

loraleena Contributor

I echo the other suggestions. I would also take a good digestive enzyme before you eat. It helps me with pain, bloating and gas.

Budew Rookie

Echo too!

I feel for you. I can be doing so well. Not even making changes and POW! Can't even keep water down.

It is really scarey.

Last August I was on vacation the maid called an ambulance I looked so bad. They made sure I wasn't on drugs and sent me home in the same condition. A few days later it went away as fast as it came on. It has hapened twice since.

I have no clue. I am gluten free, dairy free, vegetarian, low acid, no spices......and it still happens.

Good luck! Post the answer if you find one. I'll be watching. : )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748

    Mabelie
    Newest Member
    Mabelie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.