Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else Doing A Total Elim Diet....gluten, Dairy, Soy Etc Free


kimber

Recommended Posts

kimber Enthusiast

Hi

My ds has been a medical mystery since he was born and is currently at 3yrs being treated with a high dose of reflux meds as well as 3 allergy meds

I am positive he is sensitive to dairy/soy...though all allergy testing came back neg.

I currently have him dairy, soy, gluten, corn free

he is doing GREAT, but I am stressing over his food options...upcoming b-day parites, holidays etc

We see a new GI soon and if he is responding to the diet, i am not sure I want to put him through any testing

He had GI b/;w over 1 yr ago that came back normal..I am not sure the specifics

We have no family history of allergies/celiac but mil has many GI issues (upper/lower) and Dh can not tolerate gluten well...but eats it anyway (ugh!)

Thanks, kim


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

One of my daughters is a gluten, casein, soy free vegetarian. I'm thinking she might need to eliminate peanuts now. Are you avoiding eggs? My sister's children avoid gluten, casein, soy, eggs, and peanuts so when I make things I watch out for eggs, too.

Have you tried the 'Cause Your Special cake mixes? I'm not sure if they have corn, but they can be made with an egg replacer if you are avoiding eggs. I make them with coconut oil and almond milk. I've made frosting with Spectrum Organic shortening, powdered sugar (maybe has corn?), and almond milk. My kids also like them with no frosting. I ordered these mixes online. I send them a cupcake of their own to birthday parties. I might even serve them to all the kids at our birthday parties.

We have also replaced ice cream with sorbet. It seems like a lot of the sorbets will say they may contain traces of milk and I avoid those because my daughter seems to react to those.

kimber Enthusiast

Thanks for responding...I haven't tried any cake/cupcake mixes...but will give it a try!

Yes, we are also avoiding eggs...last time he had scrambled eggs we saw blood in his stool

The real problem here going gluten, dairy, soy free is avoiding corn...is seems like a lot gluten-free foods contain corn

I am avoiding corn because he reacts to corn/veggie but also popped corn

The allergist think it might be a high fiber issue...we'll see what the GI has to say

Thanks, kim

Any other rec for foods/mixes would be greatly appreciated

One of my daughters is a gluten, casein, soy free vegetarian. I'm thinking she might need to eliminate peanuts now. Are you avoiding eggs? My sister's children avoid gluten, casein, soy, eggs, and peanuts so when I make things I watch out for eggs, too.

Have you tried the 'Cause Your Special cake mixes? I'm not sure if they have corn, but they can be made with an egg replacer if you are avoiding eggs. I make them with coconut oil and almond milk. I've made frosting with Spectrum Organic shortening, powdered sugar (maybe has corn?), and almond milk. My kids also like them with no frosting. I ordered these mixes online. I send them a cupcake of their own to birthday parties. I might even serve them to all the kids at our birthday parties.

We have also replaced ice cream with sorbet. It seems like a lot of the sorbets will say they may contain traces of milk and I avoid those because my daughter seems to react to those.

celiacgirls Apprentice

I looked at some of the 'Cause Your Special mixes that I have in my pantry and some of them have corn. The chocolate pound cake does not.

I also have Namaste mixes which say they are corn free as well as gluten, soy, casein, etc. They give advice on how to substitute for eggs. I have bought these at the regular grocery store, I think, and at Whole Foods. We have liked all of these that we've tried, too.

I also looked at the powdered sugar and it does have corn starch. Probably someone knows how to substitute, if you do a search here, you may find it.

I've been buying Enjoy Life chocolate chips and there is a recipe on there for frosting where you melt the chips and add milk (or substitute.). Enjoy Life is allergen free so I doubt it has corn but I have read corn is one of the worst to get rid of.

AndreaB Contributor

We are gluten, soy and dairy free as a family and will be going egg free for my husband and daughter. None of us are intolerant to corn though.

For the allergy testing, is that IgE? We had IgG done for the kids and IgE/IgG for us. You will probably find much more on the intolerances than you would on the allergies.

shayesmom Rookie
Thanks for responding...I haven't tried any cake/cupcake mixes...but will give it a try!

Yes, we are also avoiding eggs...last time he had scrambled eggs we saw blood in his stool

The real problem here going gluten, dairy, soy free is avoiding corn...is seems like a lot gluten-free foods contain corn

I am avoiding corn because he reacts to corn/veggie but also popped corn

The allergist think it might be a high fiber issue...we'll see what the GI has to say

Thanks, kim

Any other rec for foods/mixes would be greatly appreciated

I don't know if you've ever bought Living Without magazine, but they have WONDERFUL recipes which I think that you could use to create meals and snacks for your son. And they also give you ideas for substitutions on other allergens. So if you're baking sweet treats, they may tell you to use applesauce instead of eggs. Or to substitute arrowroot instead of cornstarch in a gluten-free flour mix. The magazine is worth its weight in gold and I have yet to try a recipe that I didn't like. They have some sample recipes on their website. www.livingwithout.com. They only publish 4 editions per year and a year subscription is $23. Plus, their magazine contains great articles, advertises new specialty foods and even gives you coupons on gluten-free brands. All recipes are gluten-free.

The other site that has been extremely helpful has been www.paleofood.com. Their recipes are all grain and dairy-free. Some recipes contain nuts and/or eggs.....but overall, it's been a great place to get recipes. They even have recipes on how to make your own breakfast sausage without all the additives and MSG. And the recipes are quite simple (some surprised me at how fast they were to make).

We also avoid gluten, dairy, soy, eggs, food colorings. I limit corn but only because I don't believe it's a very healthful food. We all seem to tolerate it in moderation. You may have to watch the xanthan gum in foods due to the corn allergy. Although xanthan gum is not corn-derived, I do believe that there is an issue with cross-contamination. Guar gum may be a better choice.

kimber Enthusiast

Thanks Vicky!!

I'll have to check out the magazine...I could use as much guidance as possible

zach is already feeling better today, so I am sure corn with the culprit...Grrrrr

Thanks again

Kim

I don't know if you've ever bought Living Without magazine, but they have WONDERFUL recipes which I think that you could use to create meals and snacks for your son. And they also give you ideas for substitutions on other allergens. So if you're baking sweet treats, they may tell you to use applesauce instead of eggs. Or to substitute arrowroot instead of cornstarch in a gluten-free flour mix. The magazine is worth its weight in gold and I have yet to try a recipe that I didn't like. They have some sample recipes on their website. www.livingwithout.com. They only publish 4 editions per year and a year subscription is $23. Plus, their magazine contains great articles, advertises new specialty foods and even gives you coupons on gluten-free brands. All recipes are gluten-free.

The other site that has been extremely helpful has been www.paleofood.com. Their recipes are all grain and dairy-free. Some recipes contain nuts and/or eggs.....but overall, it's been a great place to get recipes. They even have recipes on how to make your own breakfast sausage without all the additives and MSG. And the recipes are quite simple (some surprised me at how fast they were to make).

We also avoid gluten, dairy, soy, eggs, food colorings. I limit corn but only because I don't believe it's a very healthful food. We all seem to tolerate it in moderation. You may have to watch the xanthan gum in foods due to the corn allergy. Although xanthan gum is not corn-derived, I do believe that there is an issue with cross-contamination. Guar gum may be a better choice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jukie Rookie

Hi, Kim-

So far corn is one of the few things my family hasn't eliminated, but I've been taking note of where it's hiding just in case...and it is everywhere! Anyway, another resource is allergygrocer.com. It's great because you can do an "allergen free of" product search (i.e., search for all products without gluten, soy, egg, corn for example). They also have a corn-free powdered sugar and Frontier has a corn-free vanilla. You can also make your own powdered sugar in a blender or coffee grinder with arrowroot or potato starch, but I personally haven't tried it. Hope that helps!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,177
    • Most Online (within 30 mins)
      7,748

    BriaelG
    Newest Member
    BriaelG
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...