Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Down To 97 Lbs.what Is The Name Of Generic Imodium That Can Be Used?


Anne AMP

Recommended Posts

Anne AMP Apprentice

I'm down to 97 lbs. and need help. I don't seem to absorb any food. I only eat boiled beef, chicken, greenbeens, butternut squash, baked pears and baked plumbs and I am not tolorating these. I continue with very loose stoll and diarrhea all the time. All suggestions appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anne AMP Apprentice

Please help. Is it normal to have chronic diarrhea while being off off glutens, egg, soy, rice, corn & dairy for 3 weeks now?

Ursa Major Collaborator

Hi Anne, and welcome to this board. I also get diarrhea from potatoes (besides all the foods you listed), so there may be intolerances there you haven't figured out yet. Besides, three weeks off gluten isn't very long, and some people take longer than that to start feeling better.

Plums act like a laxative, and might be part of your problem. Green beans are hard to digest. How did you arrive at those few foods you're eating now, did you do an elimination diet?

Anne AMP Apprentice
Hi Anne, and welcome to this board. I also get diarrhea from potatoes (besides all the foods you listed), so there may be intolerances there you haven't figured out yet. Besides, three weeks off gluten isn't very long, and some people take longer than that to start feeling better.

Plums act like a laxative, and might be part of your problem. Green beans are hard to digest. How did you arrive at those few foods you're eating now, did you do an elimination diet?

I tried to find food I could cook and remove lectins. Don't know if lectins are a problem or not . What foods are you able to eat?

TCA Contributor

You might try cooking with something called MCT (Medum chain Triglyceride) oil. It is easier to break down and can add a lot of good calories for you. We mixed it with my daughter's formula and breast milk to help her gain and it really helps. You have to get a prescription for it, but I highly recommend it. We get it through our home health agency.

happygirl Collaborator

Anne,

I am sorry to hear you are struggling so much. I am very similar to you--I am at 100 lbs right now and have removed most (if not all) lectins from my diet....this is all recent to me (Celiac has been for 2 years, the other stuff is more recent). Make sure you are rinsing/scrubbing everything you are eating as corn (as a derivative) can be used to spray fruits, veggies, meats, etc. Even organic stuff. I might look into taking out green beans---aren't they a legume? I dont know, honestly, but they aren't on my safe list. How are you preparing your food? I can't do any fats or oils right now. I obviously don't have the answers as to what is going on, but I'm just trying to think of things that have helped me. have you read about lectins on Open Original Shared Link

Unfortunately, most doctors don't have a clue about this. PM me if I can help in any way.

Take care,

Laura

Anne AMP Apprentice
You might try cooking with something called MCT (Medum chain Triglyceride) oil. It is easier to break down and can add a lot of good calories for you. We mixed it with my daughter's formula and breast milk to help her gain and it really helps. You have to get a prescription for it, but I highly recommend it. We get it through our home health agency.

The nutritionist suggested olive oil. I think I will ask abouth the MCT. She doen't seem to be very knowledgable. Keeps suggesting that I take corn products which make me very ill.

Anne,

I am sorry to hear you are struggling so much. I am very similar to you--I am at 100 lbs right now and have removed most (if not all) lectins from my diet....this is all recent to me (Celiac has been for 2 years, the other stuff is more recent). Make sure you are rinsing/scrubbing everything you are eating as corn (as a derivative) can be used to spray fruits, veggies, meats, etc. Even organic stuff. I might look into taking out green beans---aren't they a legume? I dont know, honestly, but they aren't on my safe list. How are you preparing your food? I can't do any fats or oils right now. I obviously don't have the answers as to what is going on, but I'm just trying to think of things that have helped me. have you read about lectins on Open Original Shared Link

Unfortunately, most doctors don't have a clue about this. PM me if I can help in any way.

Take care,

Laura

Laura, please tell me what fruits and veggies you eat. Do you eat any meat or chicken. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Anne,

Check out my signature. It gives the most updated overview. Don't do soy or canola (they are lectins!). I don't know about olive oil...it was just easier for me not to try.

I broil all my meat, (or, sometimes grill on foil over the flame), and for shrimp I will boil it.

Have you read up about corn derivatives? They are in everything and might be a problem if you haven't (I don't know, so I'm sorry if you already have!)

if not, read: www.cornallergens.com (full of great info) and check out the delphi forum for avoiding corn. it will be your best resource.

don't use iodized salt-it has corn derivatives.

even pepper bothers me. honestly, the food that is on my list is the ONLY food I am eating---no other ingredients whatsoever.

and, i'm sorry to say this, but most nutrionists, once you get to this point, have no clue.

jknnej Collaborator

Sometimes eating high fiber foods like veggies make your D worse...I would stick to bland foods like plain chicken and rice for awhile and see if your body can tolerate that.

Fruits and veggies are so healthy but NOT necessarily good for someone who has bowel issues. Usually if you find out what's wrong you can add them back in later.

I am so sorry you're feeling this way-have the doctors performed tests on you; colonoscopies and such? I assume they have if you are down to 97 lbs. and I assume they can't help you?

Anne AMP Apprentice
Sometimes eating high fiber foods like veggies make your D worse...I would stick to bland foods like plain chicken and rice for awhile and see if your body can tolerate that.

Fruits and veggies are so healthy but NOT necessarily good for someone who has bowel issues. Usually if you find out what's wrong you can add them back in later.

I am so sorry you're feeling this way-have the doctors performed tests on you; colonoscopies and such? I assume they have if you are down to 97 lbs. and I assume they can't help you?

I had a CT scan last week. Everything looked normal. I can't eat rice. I get a gluten like reaction. They are planning a colonoscopy/ upper endoscopy for next Tuesday. I don't think I'm up to it though. I would have to drink oral phosphate soda and no food for the day. I don't think I am strong enough. I wonder if the chicken and beef are giving me the problems? I started eating vegetarian two years ago because I would get D sometimes when I ate beef.

jknnej Collaborator

Hmmm...have you had a food allergy panel done? If not, I would do that asap.

Talk to your doctor about your strength. You really need to get those tests done; especially with your symptoms. You could have something worse than a food allergy and those tests will tell them for sure.

Wow, so I'm not sure what you can eat if all of those things bother you....What happens when you eat gluten free bread, nuts, corn, potato? Do they make you sick as well?

Also, do you have any problems with acid reflux or anxiety? Both of these used to cause MAJOR digestive upset for me, regardless of what I ate. Once I got them under control I got healthier myself and gained some weight.

Ummm, what else? Could you have a candida issue or a leaky gut problem? Both of those could make you terribly ill as well. I doubt you'd have a candida issue, though, with what you explained your diet to be.

Lastly, it takes some people a long time to feel better once going gluten free, so hang in there. Also, if hidden gluten is getting into your diet via make-up, old pots and pans, soap, products with vinegar,etc, it could be causing reactions. Once you go gluten free even tiny reactions seem to make us very ill.

Budew Rookie

Speaking of make up? What brands are safe?

I too struggle to keep my weight up.

I was frustrated at work by co-worker's lack of compassion.

They thought I was so lucky. Lots of folks only have compassion for people who are overweight.

kimjoy24 Apprentice

I agree not too many people understand that being severely underweight is an actual health issue. I don't have any specific answers for Anne, but would just like to give a glimmer of hope. When I was at my worst, I dropped down to 105 lbs (I'm over 5'8" tall). All of my clothes just sagged on me, I had to wear a belt with everything, for fear that my pants would fall down in public. Then I started the gluten-free diet in earnest, no deliberate digestion of gluten, and slowly but surely, now almost a year and a half later, I'm up to 140 lbs. I'm actually starting to do additional exercises in addition to my daily walking because I'm getting a little flabby in the stomach area.

I never thought I would weigh this much in my life, not that I'm saying it's a bad thing, I'm actually at a normal weight now. But after a decade of suffering from digestive issues, suffering from malabsorption, I just had no idea what healthy was like.

So there is hope, just try to focus on improving little by little, day by day. At some point it just becomes a way of life.

Budew Rookie

Going gluten-free has stabalized my weight too. Now instead of dramatic changes they are gradual and I can focus on calories to keep it in check. Before gluten-free high calories had no effect.

5'6" 112 lbs goal 125

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.