Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Ulcerative Colitis

bumblebby

By bumblebby
in Related Issues & Disorders

Recommended Posts

bumblebby Newbie
bumblebby
Posted

I was diagnosed with UC 13 yrs ago. Since then I have been hospitalized more times then I can count, often for conditions not directly related to UC.

I started reading up about celiac disease recently and decided to try a gluten free diet. Many of my worst symptoms have subsided drastically.

Anybody else see a drastic improvement in their UC on a gluten free diet? Makes me wonder why in all these years I was NEVER tested for celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Noel1965 Apprentice
Noel1965
Posted
I was diagnosed with UC 13 yrs ago. Since then I have been hospitalized more times then I can count, often for conditions not directly related to UC.

I started reading up about celiac disease recently and decided to try a gluten free diet. Many of my worst symptoms have subsided drastically.

Anybody else see a drastic improvement in their UC on a gluten free diet? Makes me wonder why in all these years I was NEVER tested for celiac disease.

Hi Bumblebby - I don't know if what I will have to say will help you but you sure have me questioning a link between celiac and UC as well. When my son was born in 1993 he cried constantly and his doctor said it was colic. As time went by (weeks) he continued to cry nonstop and could not keep his formula down. A few tests were done but did not get a diagnosis soon enough to avoid the tragedy soon to come. My husband (at the time) shook my son and damaged his brain very badly. He was left severely brain damaged, blind, cerebral palsy, seizures.... After this his crying and inability to keep food down was thought to be related to his brain damage. He had surgery so his food would go directly to his stomach and a fundo. to keep the food down. A few years after that he was diagnosed with UC and based on the symptoms I believe it was diagnosed correctly. He got a colostomy bag and had constant D which I thought was because of the shortening of the length of intestine he had. My Jordie passed away last year due to RSV and pneumonia.

A few months ago I saw an episode of "House" with the outcome being the mother had celiac and her baby also had it. I now question whether or not my Jordie had celiac and that was the start of our"new lives". My friends say not to think about it as it doesn't change anything but I wonder if that was the problem.

So yes, if I was told there was a link between celiac disease and UC I would believe it.

bumblebby Newbie
bumblebby
Posted
  • Author

Sorry to hear about your son. That is just horrible.

It would be interesting to see if there are more people who have had experiences that they believe relate UC and celiac disease.

bmzob Apprentice
bmzob
Posted

i have a feeling it might be related too b/c i ended up with uc and celiacs as well. I know UC is a very common misdiagnoses of celiacs. i'm planning on doing more research on it online.

mouse Enthusiast
mouse
Posted

I am so sorry Noel for the hardship that you and your son had to go through. I am sending you many Hugs.

I was diagnosed about 40 years ago with UC. Over the next couple of years it went away. Before it disappeared, I was in the ER several times and put on so many drugs to control the pain. Which leads me to believe that it was not UC but probably my undiagnosed Celiac Disease.

Noel1965 Apprentice
Noel1965
Posted
I am so sorry Noel for the hardship that you and your son had to go through. I am sending you many Hugs.

I was diagnosed about 40 years ago with UC. Over the next couple of years it went away. Before it disappeared, I was in the ER several times and put on so many drugs to control the pain. Which leads me to believe that it was not UC but probably my undiagnosed Celiac Disease.

Thanks for the hugs mouse.....unfortunately I am still needing them. So based on the responses so far it does look like there could be a connection. It just angers me so much if celiac disease was what my son had to start and the doctors missed it and the death of my son and the pain for all of us could have been avoided! Sorry for ranting just so much pain

jerseyangel Proficient
jerseyangel
Posted

Noel, please accapt a hug from me, too. I don't know much about UC, but it does seem like there could be a link. I know that a lot of UC patients do better on a gluten-free diet.

I'm so sorry about what happened to your Jordie. Your story made me so sad. I also don't blame you for still trying to get answers for him. Not being able to change what happened is no reason to tell you to move on and not think about it. It's quite possible that the poor little thing had Celiac--of course you'll never know for sure but it's clear that there was something else going on with him.

Take care :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


spunky Contributor
spunky
Posted

I'm sorry for your pain, Noel. Doctors seem to be of no help in these things and much suffering comes because of their inadequacy, many times.

I've read of a curious link between nicotine and ulcerative colitis. Some people with ulcerative colitis get sick of the awful, often ineffective drugs, and use either a nicotine patch, or real tobacco in the equivalent of around 4 cigarettes' worth per day to control uc symptoms.

I've run across another study that says celiac disease doesn't happen as much in smokers as in nonsmokers, same as uc. Sometimes when people stop smoking they get smacked with sudden onset of celiac or uc.

I've read another study that says canker sores are a common complaint in people who stop smoking...canker sores can sometimes be a symptom of celiac disease.

I think if doctors had as much brain power as they want us to believe, research would be ongoing to find a safe way to deliver nicotine to people who could benefit from it medicinally, not to mention just learn to accurately diagnose people so that they can fight a disease before it destroys life and health.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    2. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
    3. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Oops! @Staticgypsy, I’ll get the book! Thank you!
    5. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was man...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748
    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.