Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Biopsy Experience

wonkabar

Recommended Posts

wonkabar Contributor
wonkabar
Posted

So, now that I'm more coherent I can explain my experience. I have been to many doctors for many things and have NEVER been treated like this or found anyone to be this rude.

After waiting an hour and half after my scheduled time b/c the same day surgery center was packed (standing room only!), the doctor walked into the procedure room. He never made eye contactwith me and gave a half-@$$ apology as he walked by. I introduced him to my husband and he barley said hello, never looked up from what he was reading or extend his hand. RUDE! Once my husband left the room, the doctor never said another word to me. He just told me to open and close my mouth while he stuck the mouth piece in without telling me what he was doing, he spoke around me while I was laying there and asked the nurses if I were late (I took the mouth piece out and responded to him myself.), and the *biggie* was that he started to inject the sedative into my IV without telling me!!!!!! Can you believe it!? :angry: After I saw him inject the second syringe, I pulled out the mouth piece again and firmly asked if he were in fact administering the sedative; he flatly stated, "yes". My little heart moinitor was beeping away after that!

I honestly found the whole experience to be very unsettling and down right rude. He seemed to have lost the fact that I was a person not just a procedure. Have any of you had any experiences like this? *Nothing* like this has ever happened to me with a doctor. I'm gonna get my results and then I'm done with him. I don't care how much knowledge he has and how "specialized" he is in Celiac Disease. No one deserves to be treated like this. I may not even go back; I may just call for the results because if they are positive I'll be finding a new GI anyway. What a jerk!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


spunky Contributor
spunky
Posted

some of them have terrible manners.

I don't blame you for leaving him!

Michi8 Contributor
Michi8
Posted

What a horrible way to be treated! That dr obviously has no bedside manner. :angry:

Unfortunately, it's way too common for some specialists to be like that (I'm betting my GI will be like that, just based on her curt manner during my initial appointment.) I've found anesthetists to be especially bad/cocky. And you wouldn't believe some of the chatting and comments surgeons make during procedures.

The worst can be during a cesarean section when the mother is awake and aware the whole time, and the surgeon & staff are chatting about all sorts of irrelevant stuff and completely ignoring the mother who is going through what is supposed to be the most amazing moment of her life: having a baby.

Michelle

jerseyangel Proficient
jerseyangel
Posted

That doctor really was rude! :angry: I'm sorry that you were treated that way.

I feel kinda bad because I was one of the people who told you it was nothing to be afraid of--and then this happened. :ph34r:

Rusla Enthusiast
Rusla
Posted

The famous saying is that specialists "are a special breed." I found that true on dental specialists also. They are a breed of their own. Most of the ones I have met have no manners either and they think they are royalty. I have met a few who were just terrific but most seem to be like the one you met.

dlp252 Apprentice
dlp252
Posted
I feel kinda bad because I was one of the people who told you it was nothing to be afraid of--and then this happened. :ph34r:

Ditto!

Green12 Enthusiast
Green12
Posted

So sorry you had such a terrible experience :( . Some doctors, although they may be "specialists" in their field, just don't have a very good bedside manner.

I have had my fair share of these, and it isn't worth it to stay with them, imo. I think their should be a partenership between patient and doctor, and it definitely sounds like you didn't have this with yours.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

Well, if it is any consolation to you, doctors that act like that tend to get sued a lot more than nice ones... :P

azmom3 Contributor
azmom3
Posted

Kristy,

Sorry you had such a bad experience....I at least hope you get teh answers you're looking for, and then switch to a wonderful doctor after that.

I've unfortunately had a similar experience with my previous OB/GYN doctor. He was awful! Since then, I get recommendations from numerous people before choosing any dr. My current OB/GYN, our allergy/asthma dr., and our GI doctor are probably teh 3 best doctors of any kind I have ever gone to my entire life. I actually found our GI doctor by posting a "help" ad on craigslist. I had dozens of responses and when the same name kept popping up, that's who I ended up using. She spent over an hour with us on our initial appt, was so thorough, understanding, patient, etc. We had to wait 4 1/2 months to get in but I think it was worth it. If you haven't used craigslist before, you might give it a shot. Or if you can find other people on this board in your area who could recommend someone that would be even better. Good luck to you!

O

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

If you do leave that doctor, I would recommend writing a very calm, polite letter telling him exactly how awful you felt during the procedure and why, and explaining that that is why, no matter how skilled he is technically, you are looking for another doctor. Then at least, he doesn't have the excuse that he doesn't realize this, and he won't do it to another patient (hopefully).

AndreaB Contributor
AndreaB
Posted

I can't believe it! :o:angry:

I'm sorry you had to go through that. :(

Canadian Karen Community Regular
Canadian Karen
Posted

What a maroon!!!! Geez, doctors like that deserve to get slapped silly!!! :angry:

Another one who thinks he's God, obviously........ <_<

Hugs to you,

Karen

Ursa Major Collaborator
Ursa Major
Posted

Kristy, I am sorry you had to go through this, I wouldn't stay with somebody like that, either. But Alison is right, you ought to write a letter, explaining why you're switching doctors.

I hope that at least you're getting the answers you are looking for.

georgie Enthusiast
georgie
Posted

Sorry Kristy that you had to have that experience.

I always thought it would be a good idea for Drs to have a feedback system like ebay where you could leave public comments about them ! :)

wonkabar Contributor
wonkabar
Posted
  • Author
That doctor really was rude! :angry: I'm sorry that you were treated that way.

I feel kinda bad because I was one of the people who told you it was nothing to be afraid of--and then this happened. :ph34r:

Ditto!

Please don't feel badly; it wasn't your fault the doctor was such a jerk. The procedure itself truly was a piece of cake. The only downside was that it took me the entire day and night to shake the effects of the sedative. I had the hangover but missed the party! :P

I don't know if I'll get any answers about anything. The only reason I pursued this is because of Zachary and his obvious problems with gluten. I know how the gluten-free diet works so I certainly don't need the doctor's guidance to try it, and I know it's a much healthier diet than I'm eating now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748
    Gabs
    Newest Member
    Gabs
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.