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Nov 2006 Self Magazine!

Adelle

By Adelle
in Publications & Publicity

Recommended Posts

Adelle Enthusiast
Adelle
Posted

Omg I just opened the nov issue of "self" magazine... There's a brief mention of celiac disease! There's a little chart thing for how to host/plan for someone on a special diet. There is lactose intolerant, vegan, and "celiac disease sufferer". I'm not craaaazy abt the wording, but it does say what it does, "hidden holiday hazards", and "she'll be thankful if you..." (Read labels, get "gluten free" foods, and use separate utensils to prepare and serve food)

Not terribly in depth, but AWWWWW! I'm gonna write in and say thanx for even the smallest mention!

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Guhlia Rising Star
Guhlia
Posted

Wow, they mentioned to use seperate utensils!!! That's pretty good for a short blurb. :) Thanks for sharing.

floridanative Community Regular
floridanative
Posted

Thanks for posting and I'm going to get a copy tomorrow so I can share with friends.

angel-jd1 Community Regular
angel-jd1
Posted

Publicity in a well known magazine..............sounds like a good thing to me!! I'll have to see if I can get ahold of a copy.

Thanks for sharing.

-Jessica :rolleyes:

phakephur Apprentice
phakephur
Posted

Fellow Sufferers,

I just have to chime in and say how much it hacks me off that in almost every article about celiac disease, the author feels the need to tack on "sufferer" after the disease. Like we're all walking around with sweaty foreheads and fingernails chewed to a nub. All that suffering, and for lack of a Twinkie.

Well, gotta get back to my suffering.

Sarah

jennyj Collaborator
jennyj
Posted
Fellow Sufferers,

I just have to chime in and say how much it hacks me off that in almost every article about celiac disease, the author feels the need to tack on "sufferer" after the disease. Like we're all walking around with sweaty foreheads and fingernails chewed to a nub. All that suffering, and for lack of a Twinkie.

Well, gotta get back to my suffering.

Sarah

heeheeheehee. You cracked me up. :lol:

Canadian Karen Community Regular
Canadian Karen
Posted

<_<:unsure: )

Fellow Sufferers,

I just have to chime in and say how much it hacks me off that in almost every article about celiac disease, the author feels the need to tack on "sufferer" after the disease. Like we're all walking around with sweaty foreheads and fingernails chewed to a nub. All that suffering, and for lack of a Twinkie.

Well, gotta get back to my suffering.

Sarah

Actually, I am on the other end of the spectrum...... <_<:(

It always ticks me when I hear or read articles saying once you start the gluten-free diet, "PRESTO"!!!! all your troubles go away.....

I, for one, wish that were the case......

I like it acknowledged every once in awhile that even those who religiously follow the gluten-free diet sometimes doe not improve...... as hard as it is to say, it does happen....... so yes, in a sense, we are sufferers (those of us who fall into the "no improvement" category, anyway...... <_<:unsure: )

Karen

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Guest Kathy Ann
Guest Kathy Ann
Posted

I second that observation, Karen! I'm at 8 months of being super careful. Still no improvement. Seems like I'm allergic to nearly everything now.

Judyin Philly Enthusiast
Judyin Philly
Posted

DITTO KAREN AND KATHY ANN-- :(

MY ' STIFF UPPER LIP... :blink: IS DOWN AROUND MY ANKLES' AND I AIN'T TOO HAPPY ABOUT THE PERVASIVE ATTITUDE'S OF JUST 'SUCKING IT UP AND GET ON WITH LIFE...' WELL HECK, WE'RE TRYING HERE..AND IT SOMETIMES JUST ISN'T ENOUGH :ph34r: GRRRRR! :huh:

JUDY

Saz Explorer
Saz
Posted

I actaully don't like the term Disease, I always think of a disease being something catching. If I'm telling someone I just say I've got celiac, so I cant have gluten.

It also annoys me that the list the treatmeant as just following a gluten-free diet, Imo a treatmeant means it will go away, managment would be a more appropriate term.

I can't imangine how all you super sensitives and people who have health problems because of this feel, I have neither of these, so try to be thankful about that, but even sometimes have to adopt the "this really sucks attitude" Like today when I saw the yummiest piece of chocie cake ever.

Anway Im getting off topic, Its great to see it mentioned in a magazine!

I should have said the Yummies LOOKING piece of choccie cake, I thankfully had the sense to not eat it, just thought Id clear that up

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      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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