Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here

SchnauzerMom

By SchnauzerMom
in Coping with Celiac Disease

Recommended Posts

SchnauzerMom Rookie
SchnauzerMom
Posted

I just joined today. I have been reading and learning here for several weeks. I have never been diagnosed with celiac or gluten intolerant. The main reason is because I can't afford insurance and the price for the tests would have to come out of pocket and my pocket doesn't hold much. My DH and I both have problems that the doctor called IBS. It was my DH's idea to learn about celiac disease. We have been on a gluten free diet for about 2 weeks now and both of us can tell the difference. I get really bad acid stomach when I eat something with gluten. Yesterday I ate some candy that had gluten and was sick most of the evening. It may be inconvenient but the diet is worth the trouble just to be free of pain. A book I have said to concentrate on what you can have instead of what you can't. I have been doing some baking with alternative flours and have gotten some really good results. Our eating the last couple of weeks has been the healthiest in years.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Corkdarrr Enthusiast
Corkdarrr
Posted

Welcome to the forum! I'm glad you found us and if you have any questions, don't hesitate to ask. Odds are that someone here has already wondered the same thing and would be happy to help.

Courtney

jerseyangel Proficient
jerseyangel
Posted

Well hi and welcome to the board! :D

Looks like you and your husband figured out for yourselves that you have problems with gluten. The positive response to the gluten-free diet is a valid diagnostic tool--it's great that you figured this out, and you now can start to feel better and be healthier in the long run.

Continue to read through old posts for tons of ideas--and I hope you'll jump in and post often! :) Let us know if there's any way we can help.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hello and welcome! You will find lots of answers to many questions on this board. If you have any yourself, please dont hesitate to ask. This is the best group of people I have come across.. someone is always around to help.

I am glad that you both just decided to stick with the diet without those test results. You will find quite a few people on here have done the same thing. Keep up the good work!!

Guest nini
Guest nini
Posted

welcome welcome! and yes positive dietary response is a very valid diagnostic tool and I'm glad you guys have figured out that gluten is a problem for you.

If we can help you with any recipe conversions or product questions, never hesitate to ask!

Canadian Karen Community Regular
Canadian Karen
Posted

Hi and Welcome!

I'm glad you found us - there are sooooo many here who have discovered the benefits of gluten-free living without actually going through the gauntlet getting an official diagnosis. The best way to determine if you have a problem with gluten is by applying the diet anyway, as both bloodwork and biopsies have a high rate of false negatives.....

Any questions you have, no matter what it is, just go ahead and ask us, and we'll try our best to help out. There's a great bunch of really knowledgeable people here who will chime in......

Again, Welcome!

Karen

lonewolf Collaborator
lonewolf
Posted

Welcome! Sounds like you're on the right track. Good for you to take your health into your own hands! Please stick around and feel free to ask lots of questions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


zachsmom Enthusiast
zachsmom
Posted

nice to meet you .

dlp252 Apprentice
dlp252
Posted

Hello and welcome! Dietary response is just as valid as other methods! My GI doctor (mainstream) doesn't agree with the Enterolab testing, but he can't argue with a positive dietary response!

spunky Contributor
spunky
Posted

Welcome!

I never got any diagnosis either. I've been gluten free for 9 months and feel better than I have for 15 years.

Actually, I forgot what it was like to just live, and not always worry about bathrooms, farting around people, feeling terrible, not being able to plan on doing things because you don't know how bad you're gonna feel, and all of that. I really forgot what it was like to just live. Forget the trouble of leaving out the gluten! Feeling really good and getting your life back is well worth the trouble for me!

Gamecreature Rookie
Gamecreature
Posted
Welcome!

I never got any diagnosis either. I've been gluten free for 9 months and feel better than I have for 15 years.

Actually, I forgot what it was like to just live, and not always worry about bathrooms, farting around people, feeling terrible, not being able to plan on doing things because you don't know how bad you're gonna feel, and all of that. I really forgot what it was like to just live. Forget the trouble of leaving out the gluten! Feeling really good and getting your life back is well worth the trouble for me!

I'll second that. I've just begun my diet (gluten-free for 5.5 weeks now) and while my body is still healing, the difference is great. A lot of the stuff I took for granted before has now ceased to be a problem. Good luck. Oh, and be sure to check out the "newbie survival kit" in Nini's sig.

Creative-Soul Newbie
Creative-Soul
Posted

Hello and welcome! Like you I couldn't afford all the "official" tests, and my wonderful doctor agreed with me that my dietary response was enough proof that I was gluten intolerant/celiac. There are wonderful people here, and you have a safe place to gain support, get advice and vent when you need to!

SchnauzerMom Rookie
SchnauzerMom
Posted
  • Author

Thanks everyone for the great welcome. I have already learned a lot here. I think this is a great place! :D

Guhlia Rising Star
Guhlia
Posted

Just saw your post now. Welcome welcome welcome!!! :D

bearly Newbie
bearly
Posted

I too was just diagonised on the 2nd of Oct. Has been a really rough month getting use to the diet with no improvement. Was back to the Dr. today and even with a positive bisopy he thnks there may be something else going on. Also did some research and found the protonics i'm on is not gluten free and maybe that is part of the problem. Does anyone have any ideas or suggestions. Am open to any help I can get right now.

Ursa Major Collaborator
Ursa Major
Posted

SchnauzerMom and Bearly, welcome to this board!

Bearly, you will get a much better response if you start your own thread to ask your question.

But if your probiotic has gluten, it is definitely a huge problem, and you need to switch to one that is gluten-free to get better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,919
    • Most Online (within 30 mins)
      7,748
    Zemiloie
    Newest Member
    Zemiloie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, Migraines ran in my family as well.  Correcting my Thiamine insufficiency made a dramatic improvement in frequency and duration.   If you take Thiamine, B12 and B6 together, they have analgesic (pain relieving) properties.  Taking thiamine every day has cut down on their occurrence and severity for me.   Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide).  These forms get into the brain easily.  Magnesium Threonate gets into the brain easily, too, and helps thiamine work.  My gave a sigh of relief when I first took it, and no migraines. Yes, lowering histamine levels helps one feel better, too.  Vitamin C and B12 help reduce histamine.  A low histamine diet can help, too.  DAO supplements lower histamine, as well.  DOA is a digestive enzyme we can run short on.  
    • knitty kitty
      Refractory Celiac disease - what to do

      By knitty kitty · Posted

      @ehb   Great you're going to start the AIP diet!  I know it's scary and stressful, but you'll soon start feeling better.  It's a challenge, but you can make it.  Do ask for a Erythrocyte Transketolace test which tests for Thiamine level.   I hope your Vitamin D level is between 70 and 100 nmol/L.  In this optimal range, Vitamin D can act like a hormone and regulate the immune system.  Vitamin D 3 is the form that the body can utilize well.  I was prescribed the synthetic firm D2 and my body didn't like it.  I know getting my Vitamin D up in the eighties made a world of difference to me.  My depression improved and I felt so much better at higher levels.   I prefer Life Extension brand for many vitamins.  The important thing is to read the label and watch out for fillers like rice flour.  This may help. Keep us posted on your progress!  
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’m still having a hard time sorting through all of the different brands and possible combinations
    • cristiana
      confirmed via biopsy, quite depressed

      By cristiana · Posted

      We've definitely all had such thoughts.  But as Scott says, it does get easier with time.  I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes.   I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day  was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?"  The list is long, and it did help - sort of!  
    • Scott Adams
      Quaker Instant Grits, gluten-free?

      By Scott Adams · Posted

      It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain
×
×
  • Create New...