Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sudden Urges To Throw Up?

key

By key
in Coping with Celiac Disease

Recommended Posts

key Contributor
key
Posted

This is really bothering me. The past few weeks on and off I will be doing anything or be somewhere and just feel like I am going to throw up. I get panicky and it is an aweful feeling. My heart starts racing and I feel a bit nauseated. I have never thrown up when this happens, but I am extremely good at not throwing up. Knock on wood, I haven't thrown up in about 20 years. When this happens, I will try and breathe deep and I have to get away from wherever I am and sort of calm down. It goes away, but usually I do seem to have some indigestion with it. I am wondering specifically if it is from reflux. I seem to get reflux when gluttened. This was happening to me sometime a year ago or so when I tried introducing "gluten free oatmeal". When I stopped it went away that time.

I have been pretty unsuccessful with Prilosec for heartburn. It seems to make me sick after four days or so on it.

This happened to me last week while I was getting my hair done and I had to tell her I couldn't finish it, because I wasn't feeling well. I felt like a freak! I am really sick of this and want to know what is going on.

Sometimes I don't seem to be able to figure out how I have been gluttened. I don't eat out anymore at all. I do still make my son sandwiches for his lunch out of regular bread. I also still use shampoo and conditioner with wheat (I know horror of horrors!!!), but I can't find a shampoo that I like that is gluten free.

I am doing so much better, but I feel like I am still getting gluttened more often then I would like.

Thanks for any advice,

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mtndog Collaborator
Mtndog
Posted

Hi Monica- This is my primary symptom when I've been glutened. I just feel like I'm gonna lose my cookies (and I usually do). i have reflux too so I think that plays into it as well.

Honestly, you've got to STOP using shampoo with wheat in it. There are tons of brands without gluten. In my shower right now I have Neutrogena shampoo and conditioner with no gluten, a Sebastian shampoo with no gluten, Burt's bee's conditioner with no gluten. most companies will clearly list gluten but I've had the best luck with Neutrogena, Burt's Bee's and sebastian.

i bet if you stop using a shampoo with wheat in it, you'll get glutened much less!

Hope you feel better.

Lisa Mentor
Lisa
Posted

Monica:

Bev said some really good things. If you don't want to be sick, you have to make some changes.

I would also like to add, that you can make your son lunch that is not gluten free, but wash your hands well and all the utensils that you use. That would make a big advancement in a gluten free environment for you.

You should also check your hair products, getting color, or shampoo and conditioner, at the hairdresser.

I have learned here on the forum that some people who have been gluten free for some time, often find their reaction to gluten more intense. If you remove gluten from your diet, your body recognizes the invasion of gluten more distinctly and responds as such.

I do hope that you feel better soon.

Lisa

NoGluGirl Contributor
NoGluGirl
Posted
This is really bothering me. The past few weeks on and off I will be doing anything or be somewhere and just feel like I am going to throw up. I get panicky and it is an aweful feeling. My heart starts racing and I feel a bit nauseated. I have never thrown up when this happens, but I am extremely good at not throwing up. Knock on wood, I haven't thrown up in about 20 years. When this happens, I will try and breathe deep and I have to get away from wherever I am and sort of calm down. It goes away, but usually I do seem to have some indigestion with it. I am wondering specifically if it is from reflux. I seem to get reflux when gluttened. This was happening to me sometime a year ago or so when I tried introducing "gluten free oatmeal". When I stopped it went away that time.

I have been pretty unsuccessful with Prilosec for heartburn. It seems to make me sick after four days or so on it.

This happened to me last week while I was getting my hair done and I had to tell her I couldn't finish it, because I wasn't feeling well. I felt like a freak! I am really sick of this and want to know what is going on.

Sometimes I don't seem to be able to figure out how I have been gluttened. I don't eat out anymore at all. I do still make my son sandwiches for his lunch out of regular bread. I also still use shampoo and conditioner with wheat (I know horror of horrors!!!), but I can't find a shampoo that I like that is gluten free.

I am doing so much better, but I feel like I am still getting gluttened more often then I would like.

Thanks for any advice,

Monica

Dear Monica,

That is exactly how I felt when being glutened as well. The nausea could just come out of nowhere. It got to the point I could not even leave the house for a long time. The reflux even with a double dose of Prilosec daily was so bad, I actually had to sleep practically sitting straight up! Since going gluten-free, it has improved. Getting glutened can happen in a variety of ways. Your shampoo is a possibility. Check your make-up, too. Toothpaste is something else you need to watch out for, along with mouthwash. It is overwhelming the possibilities. Dishes are a possible source of gluten. You need to be careful and make sure they are properly cleaned, especially if food containing gluten has been cooked in them. According to the threads I have read, you need to be using your own cooking utensils and pots. Also, one woman got glutened from her food storage containers not too long ago. Make sure to have your own. Do not let anyone else use them! I am the only gluten-free person in our family, so you can imagine how paranoid I feel. Be sure to clean off the can opener, too. People who are not gluten-free in your home may use it to open something with gluten in it, and that could make you ill, too. :( I hope this information is helpful.

Sincerely,

NoGluGirl

darlindeb25 Collaborator
darlindeb25
Posted

I never get glutened in my home, unless I do buy something without reading the ingredients. I use Pantene shampoo, Garnier Nutresse for hair color, I have used Gleem toothpaste since I was a child.

I had a friend spend her vacation here with me this fall. She knows all about my celiacs and yet I was so nervous with her in the house. She had cookies everywhere, crackers, etc--I was afraid so much of the things being here as I was of her wiping up crumbs and me getting them from the dish cloth or something. I did all the dishes, just to be sure. I was totally exhausted after she left.

My daughter gets the nausea and vomiting, yet she doesnt want to be tested, doesnt want to know.

key Contributor
key
Posted
  • Author

Thanks for your help guys. I think it is probably related to reflux. I haven't had it happen since I started Prilosec four days ago. I think I will go to a GI doctor here and have a scope done. I haven't ever had one done yet. The prilosec hasn't completely improved my symptoms, but seems to have helped a little bit. I am going to go dairy free and sugar free for awhile and see if that helps. I already don't eat meat, so it is hard to give everything up.

I hate to throw up, so I will do anything not to. Which is what I do, so I don't actually throw up, but just feel like I might and then it passes, but I almost always have indigestion when it happens.

Thanks,

Monica

ashlpiatt Newbie
ashlpiatt
Posted

i get really sick when i eat an kind of breads, wheats, and milk....i throw up at least 3 times a day. i don't know if i have ciliac disease , i haven't been tested yet, but i really do belive that there is a chance that i do. iam usually very drowsy and sluggish after i eat. the other big problem that i have is that my body is completely swollen, especially my face. after i eat i feel like i have just been Poisoned. i use to be very very thin, and now iam at about 200 lbs...but it doesn't feel like fat, it feels like water bags. last year i went on a diet to were all i ate was meats and sourcruat and pickles..i lost 20lbs with in three weeks...and i stopped throwing up, the swelling went down completely, and i felt very energetic. however i gave in and began to eat breads again..and again the weight and sluggish feelings all came back..i know that iam not supposed to be this big and swollen, i wish someone could just look at the stretch marks that are all over my body...i would be very greatful if anyone could give me some advise.....

*ash*

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted
  • Author

I think if you are sick that many times a day, you could have celiac disease. AT least see a GI doctor to run blood tests and do a biopsy of your small intestine. Celiac disease can cause weight gain in some people.

Sorry you have been sick. I hope you find the answers soon.

Monica

Guest Norah022
Guest Norah022
Posted

I have this probalem with my reflux. I know exactly how you feel and everyone thinks I am crazy when i describe it to them. It happens a lot when i eat too much food...even though it really isn't a lot of food.

I am on Aciphex for my adic reflux and i am slowly starting to notice a change.

key Contributor
key
Posted
  • Author

Norah,

Have you tried Nexium or Prilosec?? I am taking prilosec now for four or five days. It is helping somewhat I suppose. I am vegetarian, gluten free and today just went dairy free and sugar free! IT SUCKS! I don't know what to eat and currently my stomach is growling, because I am SO hungry!

I have had baked potatoe (plain with salt), cooked carrots, banana and applesauce. I don't know what to eat! I just can't stand eating and then feeling sick. Sometimes I would feel fine after eating and then another time feel sick. It is crazy! I am not sure how this will work.

What does Aciphex do?

I am so glad I posted about this. I was thinking that I was losing my mind or something. I hate being 32 years old with all this stuff I shouldn't have until I am like 90 years old!

Monica

Amanda L Rookie
Amanda L
Posted

I used to feel like that a lot, which is NOT cool since I have this paralyzing fear of throwing up. I found that taking 40 mg of Nexium twice a day helps.

NoGluGirl Contributor
NoGluGirl
Posted
I used to feel like that a lot, which is NOT cool since I have this paralyzing fear of throwing up. I found that taking 40 mg of Nexium twice a day helps.

Dear AmandaL,

I have that fear too. I avoid vomiting whenever possible. It is horrible. I live in fear of stomach flus. I take Prilosec twice daily, 20mg. I do better now that I am not eating gluten. Even with all of that medication, it seemed to wear off after a short time when I ate anything with gluten. I got dry heaves so bad after I ate waffles, and could not figure out why. Since giving up gluten, that fixed that situation. I also had a gallbladder removed a few years ago, but nothing really improved. Finally, the gluten thing came to light after I switched doctors in May. The nausea was so bad and constant, it never went away. Reflux also can be caused by an overgrowth of Candida yeast in the system. I may have that as well. There is still testing needing done for that.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.