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Jennifer111

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Jennifer111 Newbie
Jennifer111
Posted

Hi to everyone just wanted to introduce myself...my Name is Jennifer I am from Philly and 26 yrs old. Recently as of last week I discovered that I have Celiac...I am just tryin to find others who also have this condition since this is all new to me and cannot seem to find a support group or others who I can talk to about it...thanks hope to talk soon

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mommida Enthusiast
mommida
Posted

Welcome to the board!! :D

I think you will find everything you need from a support group to the information you need to get and stay healthy.

Nini has a newbie starter kit just PM her.

Any questions just ask.

L.

Lisa Mentor
Lisa
Posted

Welcome Jennifer:

You have just found the most wonderful support group.

Many people on this site have been dealing with Celiac their whole life and many others are new to it such as yourself.

Just about everything you will need to know can be found here. Questions are always welcome.

My first suggestions for you is to read the posts on this site. Learn as much as you can from that and ask questions.

If you need suggestions to get started on the diet....it will be posted shortly.

jerseyangel Proficient
jerseyangel
Posted
Hi to everyone just wanted to introduce myself...my Name is Jennifer I am from Philly and 26 yrs old. Recently as of last week I discovered that I have Celiac...I am just tryin to find others who also have this condition since this is all new to me and cannot seem to find a support group or others who I can talk to about it...thanks hope to talk soon

Hi Jennifer! Welcome to the board :)

Here is a recent thread talking about support groups in Philadelphia.

Open Original Shared Link

Hope that helps a little--at least it's a starting point! You can always come on here and talk to us--there are lots of very nice people here who have been where you are and would be more than happy to help you out--feel free to ask anything!

I'm in south Jersey--Burlington County :D

Jennifer111 Newbie
Jennifer111
Posted
  • Author

Thanks so much...I have been checkin out the site the past few days and it has been full of info...also thanks alot for the link really appreciated will talk soon take care

Guhlia Rising Star
Guhlia
Posted

Welcome, welcome, welcome! I live just north of Lancaster, PA. If you ever come out this way, let me know and I'll tell you where the Celiac safe restaurants are. :)

tarnalberry Community Regular
tarnalberry
Posted

Welcome!

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Guest nini
Guest nini
Posted

Welcome! Check out my newbie survival kit, it may help you get a handle on things more quickly. Simply click on the link in my signature below for my web page, scroll to the bottom and there you will find the link for the Newbie Survival Kit.

happygirl Collaborator
happygirl
Posted

Jennifer,

Welcome to the board! I am happy you have found us---it is great that you found this site so early on. :)

Also, the parent site to this forum, celiac.com, is full of articles, lists of ingredients, faqs, and all kinds of great info to "get you started." I still refer back to it regularly. Also, my favorite celiac book is by Dr. Peter Green "Celiac Disease: A hidden epidemic"---I highly recommend it. It was just recently published and I wish I had it when I was first dx'ed---it covers SO many things.

Let us know what we can do to help :D

Laura

dlp252 Apprentice
dlp252
Posted

Hi Jennifer, WELCOME!!!!

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      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
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      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
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