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Please Consider The Diet!

Terch

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Terch Apprentice
Terch
Posted

Hi,

I just want to say that I have had an endoscopy that came up negative. My GI did not do any blood work for Celiac, and it's too late now for that since I have been gluten free for 9 weeks and I am never going to go back on it. I am still waiting for more medical results and do see my GI in two weeks again. He is testing me for Crohns now. I told him I was on this diet and he said to keep it up! I would recommend to anyone that has any digestive problems to go gluten dairy and soy free just to see if they improve some of their symptoms. I kept thinking the diet wasn't working because after 6 weeks I still didn't notive an improvement but I was told to keep hanging on and I did. Finally 2 weeks ago I noticed a good couple of hours. I said to my husband " I don't have any pain right now!" and I kept on the diet and soon I was having a couple of good days and now I am having a GOOD WEEK! Thanks to all who said to keep this up, I am still going to be tested by enterolab for curiosity sake. And no matter what the diagnosis even if it is Crohns I will know that this diet has helped.

Once again THANK YOU for this site, this advice and my hope is that all those that are suffering will find some resolution.

Thank you.

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jerseyangel Proficient
jerseyangel
Posted

Hi Terch, I'm so glad that you're feeling better! :D

happygirl Collaborator
happygirl
Posted

Terch,

whatever the "reason"---celiac, gluten intolerance, gluten sensitivity etc.---I am so happy to hear that you are feeling better because of diet changes. Good for you----it sure does feel better, doesn't it?

we are happy to have you here and happy that you are doing better. I hope it continues :)

Laura

par18 Apprentice
par18
Posted

Hi,

When I read a post like yours in which you are taking control of your health I am really encouraged about the future. I think it will be the "preventive medicine" approach that will ultimately make the biggest impact to getting more and more people to try the diet first. I applaud you for not being afraid to go forth without getting an "official" diagnosis. The idea of still getting a blood test is good in that it gives you a reference point in which to gauge your progress. Anyone who can improve the quality of their life without having to get really ill is a plus. Congratulations on what you are doing.

Tom

Nantzie Collaborator
Nantzie
Posted

I also had completely negative test results. If it wasn't for me finding this forum and doing the diet no matter the test results, I would have still been trapped in my house because of "bathroom problems". I also would have had a handicapped placard for my car and probably a Lark scooter of some sort by now.

Gluten is a horrible thing for those of us who react to it. It just overwhelms me how many people out there must be suffering and have no idea that the "cure" is SOOOOO close.

Nancy

daffadilly Apprentice
daffadilly
Posted

Congratulations on your better health and also for going on the diet without the need for "doctors orders". It is so refreshing to hear from people that have learned to think for themselves!!!!

Yes, the blood test might be a good idea, but be prepared for it to be negative. I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

Nantzie Collaborator
Nantzie
Posted
I would encourage you to go the Enterolab route & check the genes also.

wow, those people must be busy, two of my family members have a test in there at the moment and two friends, & I keep reading about all the new people that are testing there, even the new people at my support group are using them!! The word is out :D

That's true. Even a friend of mine, who moved away three years ago, told me that her sister did a stool test for celiac at her M.D.'s office and that it would be a few weeks before the tests came back. As far as I know, Enterolab is the only lab that even does a stool test. Celiac runs in her family too.

Nancy

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daffadilly Apprentice
daffadilly
Posted

yes, the doctors are now using them also, from what I hear, and some doctors are also reading these boards...

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      By trents · Posted

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      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
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