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For Lynne - Tiredofdoctors

mouse

By mouse
in Introduce Yourself / Share Stuff

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mouse Enthusiast
mouse
Posted
  • Author

the doctor thinks she has more crushed discs from the bad fall last week. she gets an MRI tonight.

this is also a bump.

i can't wait until i can use two hands to type. i hope i don't forget how LOL.

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happygirl Collaborator
happygirl
Posted

armetta,

I just got home from johns hopkins and had an endo/colonoscopy....hadn't been on in the past two days so I just saw this. will it be ok if i write it this weekend?

Laura

mouse Enthusiast
mouse
Posted
  • Author

laura, i just sent you an email. thank you for doing this.

i hope your tests went well and that you are not in too much discomfort.

also turtle, i sent you an email. and i appreciate your effort on behalf of lynne.

happygirl Collaborator
happygirl
Posted

haven't received a PM or email yet

Turtle Enthusiast
Turtle
Posted

No e-mail from you yet on my end either....

My letter is ready....so e-mail me at the e-mail address I PM'd you so I can send the letter to you! Thanks!

happygirl Collaborator
happygirl
Posted

got it...thank you. xoxo

mouse Enthusiast
mouse
Posted
  • Author

thanks for letting me know laura that you received it.

turtle did you finally get yours. i am going to bed now, but i will check in the morning to see if you got it.

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Turtle Enthusiast
Turtle
Posted

YES!!! I got it!!

Everything should be in your e-mail inbox when you check it in the morning!!

Mtndog Collaborator
Mtndog
Posted

i am SO in! If you want I can post my letter here to give other people ideas as I've never actually met Lynne in person, but somehow that doesn't seem to matter. :D She's crazy amazing and I shudder ti imagine how fabulous she is in person!

Just checked the website for Extreme Makeover Home Edition (ABC) and what they want to know if you are nominating someone is: What is you family's CURRENT situation and how does it affect your family's home? Why do you need a makeover? What makes you deserving? What makes your situation unique?

Rachel--24 Collaborator
Rachel--24
Posted
i am SO in! If you want I can post my letter here to give other people ideas as I've never actually met Lynne in person, but somehow that doesn't seem to matter. :D She's crazy amazing and I shudder ti imagine how fabulous she is in person!

Beverly.....I need ideas. I wanna write a letter...I dont know alot about Lynne except that she's very funny, kind and we both love scrapbooking. I need help....

jenvan Collaborator
jenvan
Posted
i am SO in! If you want I can post my letter here to give other people ideas as I've never actually met Lynne in person, but somehow that doesn't seem to matter. :D She's crazy amazing and I shudder ti imagine how fabulous she is in person!

Just checked the website for Extreme Makeover Home Edition (ABC) and what they want to know if you are nominating someone is: What is you family's CURRENT situation and how does it affect your family's home? Why do you need a makeover? What makes you deserving? What makes your situation unique?

She is pretty fab in person :) I'm one of the few lucky ones that gets to hang out with her on occasion!

mouse Enthusiast
mouse
Posted
  • Author

thank you beverly for the wonderful email letter. i can open attachments if they are attached priperly - he he. i am such a computer nurd LOL.

rachel, just speak from the heart. most of the people who are sending me letters have not met lynne in person, but only here on the forum or some talk to her on the phone.

i watched one show where a town nominated a family. so on the part of the form that asks who is nominating lynne, everyone's name will go there. then on the cover letter in the signature part will also be everyones name. momma goose is going to help me with the cover letter. i think all of the signatures will be attention grabbing and that is what we need as they get thousands of letters a week. they also do not let you know if they have received the application and video. so, i will use a signature required delivery card. i am also making back up copies of everything in case it gets lost in the mail. if they accept you, it might be up to two months before they call. karen thinks we have a good shot, since celiac is in the news. what i hope is that i can get this in the mail immediately after thanks giving. i want us to be first. dave has forms to fill out and a video to take. then needs to send them to me.

thank you also turtle for a fantastic letter.

and listen everyone, they do not all have to be fantastic. THE IMPORTANT THING IS THAT THE LETTER COMES FROM THE HEART.

mouse Enthusiast
mouse
Posted
  • Author

bump

lonewolf Collaborator
lonewolf
Posted

I've only PM'd Lynne a couple of times about things on the board, but have always appreciated her positive outlook and encouragement. I'm thinking about writing a short note - would that help?

Do you still need help copying the email into a post? It's really easy and simple to explain.

mouse Enthusiast
mouse
Posted
  • Author

somehow or other i deleted lynne's list of all the neuro diagnosious (sp). i had printed it out for the application, but i guess i was over zealous about deleting so many emails. when i feel up to it, i will try and type the main ones in.

and any letter, no matter how short is welcome. could you please do it as a attachment. i thank you on behalf of lynne.

Lisa Mentor
Lisa
Posted
somehow or other i deleted lynne's list of all the neuro diagnosious (sp). i had printed it out for the application, but i guess i was over zealous about deleting so many emails. when i feel up to it, i will try and type the main ones in.

and any letter, no matter how short is welcome. could you please do it as a attachment. i thank you on behalf of lynne.

Try looking for it in your "Trash Folder"?

mouse Enthusiast
mouse
Posted
  • Author

lisa, i am such a clean freak, that i empty my trash right after i delete.

here is the list:

gluten ataxia

occulomotor apraxia

word retrieval disorder - caused from the cerebellar damage

peripheral neuropathy - caused from the cerebellar damage

autonomic disfunction - inability to sweat (when goes out into the summer heat, she is literally cooking her muscles and organs) includes sporadicblood pressure changes with extreme lows where the doctor himself cannot get a pressure reading; minimal to no tear production;decreased saliva production; decreased small and large intestine peristalsis; heart rhythm changes; also from the cerebellar damage.

dysphagia - difficulty swallowing - same cause

dysarthria - difficulty talking - starts slurring her speech and the tongue goes into spasticity - same cause

raynaud's pheonomenon

psoriatic arthritis - now being questioned by the geneticist as ankylosing spondylitis

ehler's danlos syndrome

fatty liver disease (she thinks that sounds funny)

polycystic ovary disease

hyperinsulinemia

metabolic syndrome

and then she lists all of the areas that have been damage from her falls. the damage has been permanent.

mouse Enthusiast
mouse
Posted
  • Author

bump

Guest nini
Guest nini
Posted

bump for a great cause

Mtndog Collaborator
Mtndog
Posted

And I BUMP you again! :P

2Boys4Me Enthusiast
2Boys4Me
Posted

Just had to pop in to say: Beverly, what puppy isn't for sale? The picture is you and ?

Mtndog Collaborator
Mtndog
Posted
Just had to pop in to say: Beverly, what puppy isn't for sale? The picture is you and ?

My hubby! my last pic was me and Merrick- a dog I befriended in Costa rica and underneath it said "How much is that doggy in the window?" so when I put up my hubby, I cahnaged it cuz he's not for sale. Just being silly! :P

2Boys4Me Enthusiast
2Boys4Me
Posted

Zoom! That went right over my head. :lol: I knew that the last one was you and a dog, and I'd forgotten your tagline. So he's a keeper, eh? Got him trained up just nice.

mouse Enthusiast
mouse
Posted
  • Author

please everybody, lets keep this thread on topic. this is very serious and we need to get lynne and dave that extreme makeover for their home.

she sees the doctor today to find out what the MRI says. the last fall was very serious.

she has a bug right now and feels worse then lousy. she sleeps a lot and is taking percocet for the pain from this last fall.

mouse Enthusiast
mouse
Posted
  • Author

bump

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