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Need Help--please!


skipper30

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skipper30 Enthusiast

I don't usually post here, but my son has something going on (again) and I am confused.

He has been gluten free since his dx in Jan 06. He got glutened in the last few days and has, as of this evening developed these small bumps...some look like a blister or tiny trail of blisters and some look like a blackhead. They are in small "patches" in many areas...on his chest, back sides, armpits and a "scabby" place under his eye. I am trying to figure out if this is DH or a reaction to something else. He isn't a complainer and I am trying not to make too much of it. Is it normal to develop this after a Celiac dx? He is pale again and looks washed out? I am also wondering aboout his iron levels, too!

Those of you with DH...will benadryl help with the itchiness?? When did you decide it was time to see a doctor about that as a side to the Celiac?

Sorry so many questions...TIA

Dallas


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lovegrov Collaborator

I had DH for 20 years and it doesn't sound like my DH. DH presentation differs, so of course I can't diagnose over the web.

richard

almostnrn Explorer

I've had my DH pop up in lots of different places but never on my back or torso. Mine usually appear as red bumps that look like blisters if I haven't scratched them. They also tend to form in a pattern of rings or circles. For instance all around the elbow. I have personally found that benadryl spray helps to calm the intense itching altough my dermatologist looked at me like I was nuts when I told him that. I have also found that vaseline on really bad patches helps sometimes too. As for complaining....when you have a bad break out of DH there is no complaing needed, you just can't stop itching (well once the hurt and burning goes away). It almost gets to an involuntary thing for me, and it just doesn't stop. You could ask your son (if he's old enough) how it feels. I often describe a fresh outbreak as feeling like rug burn at first. Good luck I hope you find a solution to his issue!

hannahsue01 Enthusiast

This can have many presentations from my understanding. I get the blistery looking spots that start out looking like a small pimple.....they itch like nothing else......when scraced open they have clear liquid in them and then scab over. I get them on the back of the neck....under my chin....my arms.....my legs. My daughter gets them most frequently on her face and arms but has had them other place (once the doc diag it as chicken pox but it has came back over ten times since then). Mine do seem to acure with glutening. My daughter hasn't been gluten free yet so I can't judge on hers.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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