Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Becoming Gluten-free Increases Sensitivity?

Shawn

By Shawn
in Dermatitis Herpetiformis

Recommended Posts

Shawn Apprentice
Shawn
Posted

Hi -

I've been off of gluten for 1 and 1/2 months now, and it seems the longer I'm off, the more sensitive I am. The slightest hint of anything makes me itch! And I'm allergic to sulpha drugs (like Dapsone). Any ideas as to what to do? It's so frustrating.

I am trying to be very vigilant (I think). Today I had popcorn at the movies, and made sure that the butter topping was just butter, but I started itching afterwards! From popcorn that must have had a speck of something on it!! That would not have made me itch a couple of weeks ago.

What are your ideas?

Thanks,

Shawn :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ladybugpumpkin Contributor
ladybugpumpkin
Posted

You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

CarlaB Enthusiast
CarlaB
Posted
You may want to contact the company that makes the popcorn. I know that Kerasote theaters in Indiana do not have Gluten Free Popcorn. I contacted the company, and strangely enough...it was the SALT that has the gluten in it...not the butter. He suggested that I call the manager in advance and they could clean the popcorn maker and make some without the salt. However, I don't do that because it seems like a lot of trouble and I'm not sure they'd REALLY clean it anyway. Just a little insight. Hope you figure out what's doing it!

Really? I never reacted to Kerasotes popcorn ... I read the popcorn and the butter, but you're right, never looked at the salt they use. It is the salt they use or the salt you can put on it yourself? I THOUGHT I had checked it out there ... I'd read the salt ingredients myself if I still lived there ... I find that one hard to believe ... not that I don't believe YOU, I just am having trouble believing that the person you spoke with knew what they were looking for.

Shawn, your theater has REAL butter??? I know a small, local theater around here that does, but I thought that was pretty rare ... lucky you!!!

I did become hypersensitive to gluten once I got off it. I have had to go to a very simple diet of meat and veggies, with a little fruit for some time. A lot of people need to do this to heal. It might help you for a while .... then you can add things in one at a time and see how you react. Lots of time other sensitivities show up once you eliminate gluten.

Rusla Enthusiast
Rusla
Posted

Theater's have not used real butter for decades. Maybe the staff says that is what it is but it isn't. Their buttered popcorn always made me sick. They refer to it as a butter topping meaning it is not butter. If by some fluke of fate it is real butter you could be reacting to the casein in the butter which, for many Celiacs causes the same reaction as gluten.

Shawn Apprentice
Shawn
Posted
  • Author

Hi - thanks for your replies. It was indeed real butter (it was an indy theatre and they let me read the ingredients). It had just been popped and smelled irresistible. However, I didn't think of the salt. I definitely reacted to SOMETHING. I'm out in Seattle. You can always come out here for real buttered popcorn. As I said, it was an indy theatre, and they always seem to have "real" ingredients.

Milk products, eh? Never reacted to them before. I feel like miss high maintenance. And I was high maintanance before this whole thing started!

I'll have to pop my own Newman's popcorn next time I go to a movie. Then I'll be safe!

Thanks again,

Shawn

CarlaB Enthusiast
CarlaB
Posted

Most theaters don't use real butter, but we have one here in Cincy that does, too. They even charge extra for it. It's worth it, too!! ;)

ladybugpumpkin Contributor
ladybugpumpkin
Posted

Yeah, the salt thing was a little weird. The person who responded was indeed talking about the salt that is already on the corn...not the kind you add after you get it. He sent me the list of ingredients and while I can't remember exactly what the ingredient was, it was a "no-no" for sure! So, I don't eat the popcorn anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Do you happen to still have the email they sent you?

ladybugpumpkin Contributor
ladybugpumpkin
Posted

Unfortunately, I don't. Sorry.

CarlaB Enthusiast
CarlaB
Posted
Unfortunately, I don't. Sorry.

I was just curious what the questionable ingredient was.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,583
    • Most Online (within 30 mins)
      7,748
    Caleb.rice
    Newest Member
    Caleb.rice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.