Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For The "real" Teens


Kassie

Recommended Posts

Kassie Apprentice

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 126
  • Created
  • Last Reply
flagbabyds Collaborator

northern california, very west coast.

ErraticBinxie Explorer

Oregon. And I get the feeling that I am the only one.

Saz Explorer

I live in Australia

Kassie Apprentice

i know what u mean i get the feeling i am the only one around where i live

  • 3 weeks later...
Jacqui7170 Newbie
hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

I am from Idaho too. I am 17 and new to the site. I have had celiacs for over a year now. My eamil is Jacqui7170@verizon.net . Write me

Kassie Apprentice

jaqui- i sent you an e-mail i am so happy i found a teen on here from idaho!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kassie Apprentice

jaqui- ok i sent you an e-mail but it didn't go through. it said something that i didn't understand so e-mail me and i will reply thats what i have to do sometimes cause my computer is stupid like that. my e-mail is twin_kassie2@hotmail.com i would love to talk so plear write me. ttyl

Jacqui7170 Newbie

Hey Kassie

I will write you an Email as soon as I get home. I am at work and bored. There stupid computer wont let me on to my email but it will let me go everywhere else. So i wil write oyu soon.

beaglemania Rookie

I'm from Florida. really wish I vould find a Celiac my age around here. All I know are about 2 Celiacs, and there both old and one of them is my dad!! yikes!!

  • 3 weeks later...
Liam Newbie

Im from Newcastle in England i know of about 2 coeliacs in my area lol does anyone else on here live near???

liam

Anonymousgurl Contributor
northern california, very west coast.

Yay! Finally....some TEENS. I was feeling pretty lonely! LoL. Well, no joke...it does get kinda lonely sometimes. but ANYWAY...Im from California too :) How are you all doing?

jaspreet Newbie
Yay! Finally....some TEENS. I was feeling pretty lonely! LoL. Well, no joke...it does get kinda lonely sometimes. but ANYWAY...Im from California too :) How are you all doing?

Another Californian! I'm also from northern California.

Anonymousgurl Contributor
Another Californian! I'm also from northern California.

Yay that's awesome! I'm from the bay area :)

flagbabyds Collaborator

what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

Anonymousgurl Contributor
what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

I didn't know there was a bay area support group! I'd love to join! Do they have a website? Oh I'm from a little town about 15 minutes away from San Francisco :)

mkh Rookie

i'm from colorado and know of 2 other celiacs here, but no one around my age...

mia

x-tina Newbie

hey...i'm from Manitoba, Canada...and i know like NOBODY who has celiacs :P

...but i've had it all my life

egiap10 Newbie

australia... finally some other ppl this age who have it.. seems like everyones adults.......

  • 2 weeks later...
Teku Apprentice

hi :) ! I'm from central California near Fresno.

MGoers37 Rookie

Im from New York, Lake ontario(ish) area...

i thought i was the only 17 year old with dh.

also would that make me a celiac? or just a leper? haha

Liz92 Rookie

Is there anyone on this site from utah????? probably not... How old are you guys? I'm almost 15

~~~~Lizzie~~~~

oh ya, do any of you guys in Idaho live on a farm? I think that would be cool cuz u can drive when ur 14.

I'm going to BYU Idaho for EFY

By the way, my email is tizzy2dance@hotmail.com :P

:P

Kassie Apprentice

hey liz, i'm close idaho. what part of utah do you live? you got the 14 thing wrong. you can take drivers ed at 14 but cant get liscence till 15. your goin to EFY. are you LDS? feel free to e-mail me

twin_kassie2@hotmail.com

Liz92 Rookie

Ya I'm LDS. You???? I live near SLC. :P

*liz

Kassie Apprentice

yah i'm LDS too! um i live in burley idaho (southern part of idaho) i sent you an e-mail hope you got it :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    2. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    4. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    5. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,167
    • Most Online (within 30 mins)
      7,748

    Coldwpg
    Newest Member
    Coldwpg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.