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Skin Rash Negative Blood Test

carolp

By carolp
in Dermatitis Herpetiformis

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carolp Newbie
carolp
Posted

I am a celiac, my 23 year old son has been getting a severe red rash and flaky skin on his face also blisters on his hands he had been blood tested for celiac - came back negative - he went gluten free and after a few weeks he improved he also reacts to iodine.

He saw a dermatologist today he was not very reactive as has been gluten free ( he ate three slices of pizza yesterday his skin is rashing red and his face is flaking - the Doctor said it was eczyma and that since he didn't have diahrea it couldn't be celiac ( duh) .

Felt that he could be allergic to wheat instead.

I have not had skin problems so I am ignorant here.

Heat also makes his rash worse as does a moist climate ( only when he is reacting )

They are recommending cortizone shots-

Does any of this sound like celiac to you???

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AndreaB Contributor
AndreaB
Posted

My baby broke out in eczema that only cleared up when I went gluten free. Did he have celiac? Couldn't tell you, but he has at least one celiac gene. He is at least gluten intolerant.

As far as your son, if the eczema clears up gluten free then by all means keep him gluten free. I'm not sure how closely DH resembles eczema (or if it does), but that is the skin condition that leads to a celiac diagnosis. He could be at the beginnings of celiac (especially if you've been diagnosed since he'd have a gene). For his health it is best to continue on the gluten free diet.

  • 2 weeks later...
Isabella Rookie
Isabella
Posted

Oh wow, I went throught he same thing with my daughter and myself. About three months ago, when I had tried my 10 year old for DH blisters by applying a pinpoint amount of 3 percent iodine to her ankle, where she already had hypo pigmentation from an earlier bought of blisters she immediatly went unconscious as soon as we washed it off, she slowly can to. The dermatologist had us with skin prick testing for fod alergens. i told her about the iodine incindent .i warned the doctor, that i figured out she has breakouts whenever she has gluten and iodine foods. and i could make the blisters more or less severe depending on the combination. when i took the luten away, she could have iodine foods. not paying close enough attention, she put wheat at the top of inside the elbow, and proceeded to put more down her arm, and on the other arm. we where all happily talking about it, and then lastly, on the same arm as the wheat, she put down seafood. (as soon as the two connected in her blood, we concluded) she went again unconscious. the doctor told us she can not come in contact with iodine in any form except for foods and must remain gluten free. the doctor had never seen such a bizzare reaction before.

She does better if I keep her cool during the breakouts and they HAVE lessened greatly since she is gluten free. Now it only happenes when she gets gluten AND has dairy or seafood.

I use organic coconut oil on her blisters.

She used to become ill from new polyeurathane foam and would break out with whoppin big blisters in the summer, especially during swim team season.

Please don't give him cortizone shots if you don't have to. It is healthier for him to just stay gluten free. there are many risks with drugs and many side effects which you will have to deal with.

I and my daughter tested negative and the doctor said it was because we did not consume enough gluten before the test. MANY people who are severely gluten intolerant show up negative on the test.

And a little extra note- my daughter tested negative to seafood and shellfish.

Christine

  • 2 weeks later...
marfa62 Newbie
marfa62
Posted

Sound like my nighmare. My blood and biopsies were negative. Try the DNA test. That will not say you have celiac, but will tell if you carry it. My point is that these dumb dermatologists - like the ones at Mass General in Boston - couldn't diagnose a sun burn. So if you go to them and say it is on the genes, it helps them because it wasn't in there text books. OK, I have finished ranting.

If he goes gluten free and he is better, you have it- go for it. It is not excema. More to the point somewhere on celiac.com is an article about the 30 different types of skin diseases related to the disease. Dapsone and clobetasol propionate

cream .05% are what I get from my dermatologist. Iodine is involved somehow. I am really glad you mentioned that! It may be that there is some thyroid involvement, or more likely iodine and sulfer get "caught" in the leaky gut syndrome. I have gotten off soaps with sulfer- almost all of american soaps have it. I use Dermarest psoriasis for hair and body wash and Tide All Clear for washing clothes. Non iodized salt in the kitchen.

OOPS! almost forgot- two other skin items. Low grade Pellegra, from malabsorption or lack of B vitamins due to the gluten free diet can also degrade skin leaving it open to yeast infections. Us celiacs often get diarrhea and any discharge that hits poor skin can get a yeast infection. So when you mentioned heat and moisture, I remember trying a tube of vaginal yeast infection cream, and that helped. It is possible to have a combination of skin issues. A good sensible mutivitamin is essential.

Best wishes. M

I am a celiac, my 23 year old son has been getting a severe red rash and flaky skin on his face also blisters on his hands he had been blood tested for celiac - came back negative - he went gluten free and after a few weeks he improved he also reacts to iodine.

He saw a dermatologist today he was not very reactive as has been gluten free ( he ate three slices of pizza yesterday his skin is rashing red and his face is flaking - the Doctor said it was eczyma and that since he didn't have diahrea it couldn't be celiac ( duh) .

Felt that he could be allergic to wheat instead.

I have not had skin problems so I am ignorant here.

Heat also makes his rash worse as does a moist climate ( only when he is reacting )

They are recommending cortizone shots-

Does any of this sound like celiac to you???

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