Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Fluke Or Are We Really Seeing Results Already?

girlfromclare

Recommended Posts

girlfromclare Apprentice
girlfromclare
Posted

Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

You're definitely seeing results! Congrats! I also had positive results within a few days. I had a few setbacks and it was probably 6-9 months before I was 100% again, but the immediate results made it so much easier to continue with the diet. From your positive dietary response, I'd say your son definitely has celiac disease.

FeedIndy Contributor
FeedIndy
Posted

I noticed a difference in DD's disposition and energy levels within 2 days! I thought I was just seeing things until we weighed her at day 5 and found she had already gained 5 ounces after losing 2 ounces the month before. She's a completely different and very happy baby now! When I get sad about what she may be missing out on as she's older (like pizza night the other day!) I just remember when she was teeny and lethargic, look at her now and know we are doing the right thing!

celiacgirls Apprentice
celiacgirls
Posted

I saw results in myself and my daughter in a few days. We didn't have any stomach issues to begin with but our moods and her behaviour improved dramatically. Our house is a different place now than it was 6 months ago as far as our family life. Some days I feel sorry for my kids but mostly I am just glad we know what was causing their problems. After more than 6 months, it still seems hard to believe that the answer was so "simple". Like you, I am glad to spend time cooking and baking to keep it up.

vampella Contributor
vampella
Posted

I also saw these changes with in a few day's with my DD and about a week, we had NORMAl bowel movements and still are 1 1/2 months into. My dd also had a neg blood test, 2 actually but her doctor know's she's a celiac kid!!

Congrats, I am glad you are seeing improvment!!!

Guest nini
Guest nini
Posted

yep we saw results in my daughter that fast and she was having behavioral issues prior to going gluten-free... I'm telling ya, the tantrums were uncontrollable and frightening and would come on about an hour after eating and would last about an hour with her kicking, screaming, biting, thrashing around on the floor, not wanting to be held at all and on and on... it would pass just as quickly as it would come on and she would lay in a heap on the floor sweaty and sobbing and saying "sorry mommy, I couldn't help it"... I'm SO GLAD we found out that gluten was the problem. One of the first indications to me that she's been accidentally glutened is when her attitude takes a major downturn and then the tummy starts hurting and she begs for some pepto bismol...

Lymetoo Contributor
Lymetoo
Posted

I felt better in one week!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I noticed amazing changes within a day! It is definitely not a fluke, that is fantastic, you must be so happy!

Nic Collaborator
Nic
Posted

My father saw results that quickly too. Within the first week his D had stopped. My son's symptom was constipation so I took longer to see any change. I think that is a harder problem to turn around. We still have issues but my father swears he felt much better within that first week.

Nicole

taweavmo3 Enthusiast
taweavmo3
Posted

Yep, we saw results that fast too......it is truly one of the best feelings in the world, to see your child become happy again. You don't realize how much you lost until they start to become the children they should have been all along. I will never forget how thrilled we were those first few weeks!

Congratulations to you....and I hope things just continue to improve!

girlfromclare Apprentice
girlfromclare
Posted
  • Author

Thank you everyone. Wow... i definitely feel we are on the right track... I am so glad that you all so improvements so quickly too... so I know this isnt a fluke. Nini, our experience with the tantrums is exactly the same... exactly!!! And then afterwards the pain in the tummy... oh boy we've had it for so long now that they were a daily occurence for the past four years and that alone would drain every ounce of energy from you... I can truly empathise... and now they have stopped we are so relieved and happy. My husband is quite genuinely surprised to see the results.. i dont think he expected any... and we are both thrilled to have finally discovered the problem that has been holding our little boy back for so long. thanks everyone... i really mean it... you guys are all so wonderful

a million hugs x x liz

wolfie Enthusiast
wolfie
Posted

We also saw results quickly....within the first week or 2, for both me & my son. DS had behavioral issues and he is just genuinely a nicer person all around off of gluten. His grades have improved, too!

Keep up the good work!!!! :)

Confused in Iowa Rookie
Confused in Iowa
Posted
Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

I agree with you - i saw differences in my son as quickly as you did. Not only with his personality, but his school work...last year struggled with a D average and this year in 6th grade he made the honor roll! I was so proud. So I'm like you. As much of a pain it is to figure this diet out, I'm with you that it is so worth it to have a happy son.......i always just blamed his personality on him getting it from his father, but it's so nice now to have him be so angry all the time.

My son never has had any stomach troubles, so when he was diagnosed, I was sooo in the denial thing, and thought the Dr. was just crazy and this was the health fad of the now type thing...but seeing the results that we've gotten so far, it is just amazing.

Now if they'd just find some miracle cure for it, this would be a beautiful thing!

Juliet Newbie
Juliet
Posted

My son (who was two years old and awake for only 3 hours total every day before going gluten free and looked like one of the starving kids with the distended bellies) got his energy back in 9 days - and we were making mistakes that whole time (Rice Krispies, O's cereal made from oat flour, other things w/ malt). He didn't nap at all (he still normally takes naps now, but he was so happy to have energy), and he was practically stumbling at the end of the day trying to still move, but his muscles were so atrophied he could barely do it! The next day he was sore from the exercise but still had energy! It's tough sometimes dealing with it, but to see your extremely sick child turn into a normal, happy kid makes it all worthwhile!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.