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TBCGurl

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TBCGurl Newbie
TBCGurl
Posted

Hey Everyone,

Well, I do not have celiac disease, but my very close (like and 2nd mother) does. I just basic wanted to get involved in this site so I can learn more about it. I am not sure what kind of celiac she has, but i know she cant really have anything. I am hoping to find some recipies on here so i will beable to cook her up some treats. Thanks for starting this site! Its been very helpful so far!

God Bless!

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dlp252 Apprentice
dlp252
Posted
Hey Everyone,

Well, I do not have celiac disease, but my very close (like and 2nd mother) does. I just basic wanted to get involved in this site so I can learn more about it. I am not sure what kind of celiac she has, but i know she cant really have anything. I am hoping to find some recipies on here so i will beable to cook her up some treats. Thanks for starting this site! Its been very helpful so far!

God Bless!

Hi and welcome! How nice of you to do that for your 2nd mom! I don't cook, so really can't offer any recipes...just make sure you don't use any wheat, oats, barley or rye or any products that contain them. You might also want to use either dedicated utensils or make sure they are very well sterilized. Some people react very strongly to even the tiniest amounts of gluten even the stuff left on utensils. If she has Celiac or gluten sensitivity, the only way to even hope to get better is to strickly avoid gluten--even crumbs.

Again, welcome!

KaitiUSA Enthusiast
KaitiUSA
Posted

That's so sweet of you:) Hope you find this site very helpful

happygirl Collaborator
happygirl
Posted

Welcome to the board! I'm sure it means a lot to your '2nd mom' that you are taking the steps to help her out and support her. Feel free to ask any questions. Read, read, read! Let us know what we can do to help!

GFBetsy Rookie
GFBetsy
Posted

For more recipes, check the parent page of this site, Celiac.com. Also, try looking for gluten free cookbooks in your local library. The recipe book "Saving Dinner" by Leanne Ely is also really good . .. it's not deliberately gluten free, but most of the recipes are gluten-free naturally. The website www.eatingglutenfree.com also has a lot of good recipes . . . try the sugar cookies! They are really good!

  • 1 month later...
New Dreams Newbie
New Dreams
Posted

Hi there everyone,

I'm Sue , I'm new to this forum and I must say that I had no idea really that so many suffer from Celiac :o . My Mother had the disease and I know how hard it is on the person and the ones around them .

My mother had the disease for about 7 years and to watch them go through all the pain and agony is heartbreaking :( . I know they have come up with new ways of dealing with it and I hope that you, that have friends or family with the disease keep them on there diets and makes sure they stick to them to the letter .. ;)

Sue

JackieM Newbie
JackieM
Posted

There is so much on this site. I find it overwhelming. How is one diagnosed with this disease, is it done with lab work only? If so what part of the lab test will show that Celiac disease is the culprit? I am sure there is somewhere on here to find that answer, but again, so much to look through with so many topics. Someone I know has been experiencing this 'brain fog,' and dizziness, a feeling of bloating with dairy products. How common is this? Yet she never has mentioned being check for this disease. I would like to learn more about it, and plan on reading more here. Everytime she eats anything she gets very bloated and she is a very thin person. From some of the symptoms people write about here, it sounds like some symptoms that I have even experienced, as well as others. How does one differientiate between this disease and another condition? I guess what I am asking is how are you tested for it, and what is the key that the medical field is looking for in order to diagnose one with Celiac disease.

Thank you for your patience, as I said I am new and am interested in learning more about Celiac disease.

JackieM

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kbtoyssni Contributor
kbtoyssni
Posted
There is so much on this site. I find it overwhelming. How is one diagnosed with this disease, is it done with lab work only? If so what part of the lab test will show that Celiac disease is the culprit? I am sure there is somewhere on here to find that answer, but again, so much to look through with so many topics. Someone I know has been experiencing this 'brain fog,' and dizziness, a feeling of bloating with dairy products. How common is this? Yet she never has mentioned being check for this disease. I would like to learn more about it, and plan on reading more here. Everytime she eats anything she gets very bloated and she is a very thin person. From some of the symptoms people write about here, it sounds like some symptoms that I have even experienced, as well as others. How does one differientiate between this disease and another condition? I guess what I am asking is how are you tested for it, and what is the key that the medical field is looking for in order to diagnose one with Celiac disease.

Thank you for your patience, as I said I am new and am interested in learning more about Celiac disease.

JackieM

You can do a blood test or an intestinal biopsy. The problem is that there are a lot of false negatives with testing. A positive biopsy is still considered the "gold standard" but by that point you'll have to have a lot of intestinal damage. If you have celiac but a negative biopsy, I'd say you're lucky that you haven't gotten much damage yet. Enterolab is another way to go (enterolab.com). They do a stool test and most people around here have had very good results from them. You can always do a dietary test - eliminate gluten and see how you feel. I diagnosed myself from dietary response.

Brain fog is very common - I get it myself. Bloating with dairy is also not uncommon. Many celiacs are temporarily intolerant to dairy (celiac wears away the tips of your intestinal villi which is what you need to digest dairy).

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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
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