Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possibly Celiac? Should I Try A Gluten-free Diet?


rik34

Recommended Posts

rik34 Newbie

Hey everyone. I'm 22 male and I've been having some health problems for many years now and only recently have I started looking into it.

My main complaint is my digestion. For some reason I experience foul smelling flatulence almost constantly. I eat alot of whole/raw foods, and I know that can cause gas, but is it normal for gas to smell foul (both sulphur and putrefying odors) all the time and so frequently? This is an embarrassing problem and I don't know why it's happening. Other than that I experience minor bloating occasionally. My bowel movements are normal for the most part, unless I eat alot of nuts; like almonds, cashews, sunflower seed, peanuts. Then my bowel movements come out all mushy and foul smelling. Ugh, I know it's gross, sorry...

I am also underweight for my height. I am 6'2 and I weigh about 145lbs. I am always hungry and I eat often, but no matter how many calories I consume, I don't gain a pound.

Hmmm, other symptoms include:

-poor circulation (cold hands, feet during the winter months)

-dry skin, dry eyes, dry hair

-heart palpitations

-vitiligo (spots on my skin where I am losing pigment)

-irritability

-occasional depression

-moderate anxiety

-occasional fatigue

I recently saw a naturopath doctor and she had me go on an allergy elimination diet. I didn't eat any dairy or wheat for 3 weeks. Although, I was eating rye and spelt bread because it was on the list of the foods I could eat. Anyway, when the 3 weeks were up, I ate both dairy and wheat and I felt fine.

So yeah, what do you all think? Should I try a gluten-free diet for a few months and see how it effects me? Any advice would be appreciated.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

You can try gluten-free and see if it works, dietary response is a valid diagnostic tool.

I have most of those symptoms ... actually, all of them ... and I have Lyme Disease ... those symptoms can be a number of different illnesses, so if gluten-free doesn't work, KEEP LOOKING!!! It's not normal to feel bad all the time. If you want to look into Lyme (because of the heart palpitations, I would, it's a symptom), use IGenex -- they are the most accurate lab.

Low thyroid can cause some of those symptoms as well.

I think when you find out what's wrong the weight will come, so don't be consumed about your weight, look for what's making you feel bad. Raw foods can cause flatulence. If you eat broccoli and cauliflower, try lightly steaming it, then it doesn't cause as much gas. Beans are a culprit, too.

Welcome.

rik34 Newbie

Thanks, CarlaB. I will look into it.

mommida Enthusiast

If you want an official diagnoses you have to remain on gluten and have the Celiac blood panel.

L.

Looking for answers Contributor

I had every one of your symptoms before completely giving up wheat years ago . . .and then voila! they all disappeared. However, about six months ago I started feeling sick again (gastritis) and went through a slew of tests, but because I hadn't been eating wheat for so long, the tests didn't turn up much. I decided on my own to go completely gluten free and I feel absolutely terrific now.

Although this is embarrassing to share, I too had HORRIBLE gas (I could have put any frat guy to shame, believe me! :ph34r: ). I'm happy to report that I hardly ever have gas now . . .no matter what I eat. Beans ... fresh veggies . .. no problem! And if I do, I don't clear a room.

I should also add that I take accicidolphilus (sp?) and digestive enzymes daily and I try to limit eating processed foods.

Even if you aren't diagnosed with Celiac, living gluten free has a ton of benefits. Wheat, rye, spelt are very hard for some people to digest and cause a lot of intestinal distress. And who wouldn't want to drop off the "BD" from their "SBDs?" :lol:

Best of luck!

rik34 Newbie
I had every one of your symptoms before completely giving up wheat years ago . . .and then voila! they all disappeared. However, about six months ago I started feeling sick again (gastritis) and went through a slew of tests, but because I hadn't been eating wheat for so long, the tests didn't turn up much. I decided on my own to go completely gluten free and I feel absolutely terrific now.

Although this is embarrassing to share, I too had HORRIBLE gas (I could have put any frat guy to shame, believe me! :ph34r: ). I'm happy to report that I hardly ever have gas now . . .no matter what I eat. Beans ... fresh veggies . .. no problem! And if I do, I don't clear a room.

I should also add that I take accicidolphilus (sp?) and digestive enzymes daily and I try to limit eating processed foods.

Even if you aren't diagnosed with Celiac, living gluten free has a ton of benefits. Wheat, rye, spelt are very hard for some people to digest and cause a lot of intestinal distress. And who wouldn't want to drop off the "BD" from their "SBDs?" :lol:

Best of luck!

Awesome! This is great news! Thank you for responding. :) Now I will definitely consider eliminating gluten from my diet. What digestive enzymes are you taking? If you could tell me the brand name and the type of enzyme, I would appreciate that...

Thank you, Looking for answers

Nancym Enthusiast

Actually, I was going to say a bunch of your symptoms sounds like Graves Disease, hyperthyroid. I had it myself in my 20's. But if you're up for it and don't care about getting an "offical" diagnosis, give the diet a try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sonja69 Rookie

you might be fructose intolerant. if you eat a lot of raw foods, it will consist of a lot of fruits and veggies, which are highest in fructose. you can test it with a appropriate diet.

not every bowel can have whole food, especially not raw, since plants have special defending mechanisms against predators. these might be irritating your digesting system.

you might consider trying a more cooked diet.

but you can always try a gluten-free or dairy or whatever free diet.

Sonja

rik34 Newbie
Actually, I was going to say a bunch of your symptoms sounds like Graves Disease, hyperthyroid. I had it myself in my 20's. But if you're up for it and don't care about getting an "offical" diagnosis, give the diet a try.

That was the first thing I brought up to my doctor. I had my thyroid levels checked, and they turned out to be within 'normal' ranges. I hear that blood thyroid tests can be unreliable in determining abnormalties of the thyroid gland, so I might bring that concern up again.

rik34 Newbie
you might be fructose intolerant. if you eat a lot of raw foods, it will consist of a lot of fruits and veggies, which are highest in fructose. you can test it with a appropriate diet.

not every bowel can have whole food, especially not raw, since plants have special defending mechanisms against predators. these might be irritating your digesting system.

you might consider trying a more cooked diet.

but you can always try a gluten-free or dairy or whatever free diet.

Sonja

I probably shouldn't of said that I eat alot of whole and raw food, I am still eating more cooked food, and I will continue doing so until I fix my health problems. I usually eat raw veggies on my sandwiches (sprouts, tomato, cucumber) and raw fruits. That's about it. Usually I steam vegetables when I am about to eat them with a meal. It really doesn't matter what I eat, it all gives me gas. So yeah, I'm not even close to being on a raw food diet, but I will consider it in the future.

Anyway, I will look into fructose intolerance, thank you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.