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Resolutions


Kaycee

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Kaycee Collaborator

I am so totally addicted to the topic of gluten. Is this good or bad? I eat it, sleep on it, drink it, think it and even dream about it. You know as in dreaming about a spread of food and avoiding what I can't eat. (I wish I could dream about eating all the forbidden food)

If I have to make a new years resolution, the top one would be to chill out and relax and minimise my time on the computer researching coeliac and other related subjects. I tell you my computer never gets out of c drive (coeliac drive). First thing I visit is my emails, and then I am off on my drive for everything coeliac, and before I know, and hour has gone and the housework is still waiting for me! or else I am late for work, yet again. That is the bit I hate the most.

It's all of yours fault, ;) someone led me to here, and whammo, and I just can't seem to leave this site for one day.

Is there a forum out there that might help me? :rolleyes: I hope not.

Is there anybody else out there with this problem, maybe we could support each other. :lol:

Cathy

This is probably a too hard a question to answer, but that is okay. Maybe there is not a hope for me and I will just have to continue as I have been, and enjoy every moment of it.


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Ursa Major Collaborator

Well, I do the very same thing. Of course, I ought to be here, since I'm a moderator, right? :ph34r:;).

It is normal for you to still be researching, as celiac disease requires a lot of knowledge to stay safe. Plus people are so great here, I would miss them if I don't 'check in' frequently!

As for being late for work, maybe you want to get up earlier so you have enough time to come here before work. And set a timer to remind you to get going, and make it a habit of leaving the computer when the timer goes off. Because I know that otherwise you can lose track of time (at least I do that).

Kaycee Collaborator

What a nit wit I am, somehow I duplicated this post. When will I ever learn?

I will just slink back in embarassment.

Cathy

Ursa Major Collaborator
What a nit wit I am, somehow I duplicated this post. When will I ever learn?

I will just slink back in embarassment.

Cathy

Oh, silly, it can happen to anybody! No need to call yourself names, Scott will delete the other post soon, and most people will never know (oh, right, since you told on yourself, I guess they will after all :blink: ).

happygirl Collaborator

i think at some point, many of us have felt like you have. there is so much to learn, to REALLY learn, and you feel like you have to know it all. i think it kind of goes in cycles.....

hey, we are just happy to have you here :) let us know if we need to chide you ;)

chrissy Collaborator

it's kind of hard not to think about it all the time when you have to watch EVERYTHING that goes near your mouth. i don't have celiac---but it is on my mind all the time because of my girls.

maybe we need to spend more time on the thread that is just for talking about "other" stuff.

eleep Enthusiast

My solution to this very same problem is that I'm going to work on seeing if I can start a local support group so that I'm at least getting some celiac-related face to face interaction with people (although I love the people I've met on the board!). I also have a friend who does auto-immune-related research -- actually, he does the fundraising stuff and his partner does the lab stuff -- I've decided I'm going to ask if he needs anyone to volunteer with grant-writing and fundraising.

eleep


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Budew Rookie

Okay I am out of the closet. I too got hooked on the topic. Mostly I feel the need to help others as you folks have helped me get my life back. Before the forum I was so sick, and now I am in awe that I am healthy again.

Kaycee Collaborator
My solution to this very same problem is that I'm going to work on seeing if I can start a local support group so that I'm at least getting some celiac-related face to face interaction with people (although I love the people I've met on the board!).

eleep, that is exactly what I am in the process of doing, joining up with a local person and trying to form a support group in my home town, she has lived with the disease for about 30 years, and me just a mere 11 months.

It will be a challenge and I am looking forward to it, putting faces to names.

I think I will be here on the net a bit more, because in four more working days, I am on holiday for 7 weeks, and it is summer. Way to go. Watch out beaches, here I come.

And next year, I hope to reclaim at work the 2 hours a day I let go at the beginning of the year so that I could concentrate on my diet and cooking and just getting around coelaic. It worked, and I am ready to take life head on again. It is the worst two hours of the day I am trying to get back, but it is money in the bank, and life shouldn't be too easy all the time.

But like you, I love the people on this forum, it just takes a bit longer to get to know everyone.

Cheers.

Cathy

jesscarmel Enthusiast
I am so totally addicted to the topic of gluten. Is this good or bad? I eat it, sleep on it, drink it, think it and even dream about it. You know as in dreaming about a spread of food and avoiding what I can't eat. (I wish I could dream about eating all the forbidden food)

If I have to make a new years resolution, the top one would be to chill out and relax and minimise my time on the computer researching coeliac and other related subjects. I tell you my computer never gets out of c drive (coeliac drive). First thing I visit is my emails, and then I am off on my drive for everything coeliac, and before I know, and hour has gone and the housework is still waiting for me! or else I am late for work, yet again. That is the bit I hate the most.

It's all of yours fault, ;) someone led me to here, and whammo, and I just can't seem to leave this site for one day.

Is there a forum out there that might help me? :rolleyes: I hope not.

Is there anybody else out there with this problem, maybe we could support each other. :lol:

Cathy

This is probably a too hard a question to answer, but that is okay. Maybe there is not a hope for me and I will just have to continue as I have been, and enjoy every moment of it.

Hi Cathy

i can totally relate! especially the first few months i honestly bought like 6 books about celiac, subscried to two gluten-free magazines and was constantly on the internet. i also had nightmares about eating gluten. i feel less into it now and have really just narrowed my time down to this website whichi still feel like to go on everyday!!

Jess

Nancym Enthusiast

Gluten is my hobby. :) I love reading new research about the disease. For me I was totally absorbed for a few months, now I just cruise a few of my favorite boards and try not to spend too much time.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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