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Test Results


AliceW

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AliceW Apprentice

Hi everyone,

Just hoping to get a bit of feedback. I've now been tested for celiac disease via enterolab, and also gotten conventional testing (a full celiac panel) from Prometheus Labs. Here are my results:

Enterolab:

Fecal Antigliadin IgA = 27

(Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA = 33 Units

(Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score = 132 Units

(Normal Range <300 Units)

Prometheus:

Anti-gliadin IgG ELISA (AGA IgG) = 1.7 U/ml

Reference range <10.0 U/ml

Anti-gliadin IgA ELISA (AGA IgA) = 0.4 U/ml

Reference range <5.0 U/ml

Anti-human Tissue Transglutaminase IgA ELISA (TTG IgA) 0.7 U/ml

Reference range <4.0 U/ml

Anti-Endomysial IgA IFA (EMA IgA) = Negative

Reference Negative

Total serum IgA IFA = 163 mg/dl

Refence range >13 years to adult 44-441 mg/dl

Can anyone shed light on the results of my conventional testing? They are clearly negative, right?

I tested positive via Enterolab, so I'm taking this to mean that I am sentitive to gluten but do not have full-blown celiac disease (the lack of malabsorption suggests this too, I think). I am therefore not pursuing a biopsy at this time, but I started a gluten-free diet a few days ago to see if it helps my symptoms. I plan to stick with it strictly for a least a few months, and indefinitely if I find that if makes me feel better.

Thank you for any feedback!

Alice


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Nancym Enthusiast

The fecal test is definitely going to show problems before the blood test will. Sometimes you never get SO severe that it'll show up in the blood, yet you can be perfectly miserable.

Giving the diet a shot is definitely the best course of action!

AndreaB Contributor

I agree with Nancy.

The diet certainly doesn't hurt anything and could prove to be very helpful. :)

happygirl Collaborator

Hey girl,

Nice to see you have your results back :)

Agree with what you and others have said.

Laura

AliceW Apprentice

Thanks, guys! :)

The gluten free diet is going fine so far...it's actually less hard than I thought. I was already eating mostly whole, unprocessed foods and cooking a lot, so avoiding gluten hasn't been as hard as I thought it would be. I even ate out on Saturday, and that was OK, too...I just called the restaurant ahead of time, and they were very accomodating.

My symptoms tend to get worse and then better for no apparent reason so it's too soon to say, but you know, I swear I do feel better, and it's only been a little less than a week. It will be interesting to see how it goes.

Hope you're all doing well!

Alice :)

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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