Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Results


happygirl

Recommended Posts

happygirl Collaborator

I got some blood work back today and some of the ones that I had questions about are my autoimmune thyroid:

thyroglobulin AB: 62 (less than 20 is normal)

thryoid peroxidase AB: 62 (less than 35 is normal)

I didn't have my tsh/t3/t4 run this time because they are ALWAYS normal....so what does this mean? Please help!

Thanks so much,

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast
I got some blood work back today and some of the ones that I had questions about are my autoimmune thyroid:

thyroglobulin AB: 62 (less than 20 is normal)

thryoid peroxidase AB: 62 (less than 35 is normal)

You have Thyroid Antibodies which means you have autoimmune low Thyroid. Your thyroid is under attack from these antibodies and will eventually get damaged and lose function. I am not sure which autoimmune thyroid it is. My TPO was 35 and my thyroid function was very severe and low so you don't always need a # in the 1000s to be ill. I have Hashimotos Thyroid. Once you have an autoimmune thyroid - the reg labs don't mean a lot. They change all the time as the attacks happen. You need a Dr that can work with you and understand autoimmune thyroid.

Don't be scared but do some research. stopthethyroidmadness can help a lot like they helped me. I would guess you need Armour ??? I think the idea is to suppress the antibodies so they don't cause any damage. Celiac is autoimmune - so its common to have a couple of autoimmune problems at the same time. Once you have one you tend to have others. Did you get a Celiac dx ?

happygirl Collaborator

Thanks. I am confused as to how they tell what my problem is if my TSH, T3 and T4 came back normal in the spring. (I just started with a new doctor and he ran the autoimmune). How do they tell if its hyper or hypo?

See my signature about Celiac.

georgie Enthusiast

My TSH, Free T4, and Free T3 always came back as normal too. Or at least TSH did as thats all they ever did until I asked for Frees to be tested too. But on closer look my FreeT4 was 1 point away from low normal. I think with Hashis - you don't really dose to TSH again if you use Armour. You just keep an eye on Frees - and dose to symptoms. My Dr keeps testing my blood every couple of months but isn't that fussed about it. She is more interested in how I feel. So ... I am just increasing Armour slowly every month and waiting to see if I go hyper - which isn't yet. My Free T3 is way over range and TSH is practically 0 but Dr isn't using that. Hyper is shown by increased pulse, temps, etc - so she is using that more. Once the Antibodies get suppressed by finding the correct Armour dose 'for you' -you won't get the erratic hypo/ hyper swings. You will stabilise. Some Dr get scared of a TSH at 0 as they have been trained that it causes osteoporous. On Synthroid it does - but Armour has calcitonin that actually improves bone density. I have read of some that have reversed their osteoporous! Its hard to explain - but this is how thyroid always used to be treated. Its just going back to tradiitonal methods and using a little of modern science but not at the exclusion of common sense.

Felidae Enthusiast

I am glad someone posted a question about their thyroid. My doctor called with my lab results from yesterday, and once again my thyroid is borderline underactive. She wants to run antibody tests in three months again to see if there is any change. It seems to me though that I have these kind of results every other year and the rest of the time the results are normal. Any ideas?

georgie Enthusiast
I am glad someone posted a question about their thyroid. My doctor called with my lab results from yesterday, and once again my thyroid is borderline underactive. She wants to run antibody tests in three months again to see if there is any change. It seems to me though that I have these kind of results every other year and the rest of the time the results are normal. Any ideas?

Have you had Antibodies tests before ? Any result ? Its the nature of autoimmune thyroid to fluctuate - so having one lab done every other year may not show what is really happening. You could have labs a week apart and they could vastly different if its autoimmune thyroid. So you could wait a year based on one OKish result before a dx. There are Drs that aren't happy with that and are starting to take other symptoms into account and treat the big picture. Do you have your paperwork 'cos what is borderline in one state may be Hypo in another ....

Felidae Enthusiast
Have you had Antibodies tests before ? Any result ? Its the nature of autoimmune thyroid to fluctuate - so having one lab done every other year may not show what is really happening. You could have labs a week apart and they could vastly different if its autoimmune thyroid. So you could wait a year based on one OKish result before a dx. There are Drs that aren't happy with that and are starting to take other symptoms into account and treat the big picture. Do you have your paperwork 'cos what is borderline in one state may be Hypo in another ....

I had an antibodies test before and it was normal. I don't have the paperwork. We have to book another appointment to ask for the paperwork and pay for the photocopying. I wish they would just give me every lab I have had done. So do you suggest having antibody tests run say on a Monday and then on the following Monday? I may book another appointment just to discuss this with my doctor, but I'm one of those people that is uncomfortable going to the doctor unless it is serious. On the other hand, I'm a little concerned about the results because I have some symptoms, such as brittle nails, really dry skin, mild depression and anxiety (these were way worse before I went gluten-free), no sex drive. But, I don't have any weight gain. I just haven't really feel like myself for the past few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast
I had an antibodies test before and it was normal

If it was me I would just get the paperwork. I wish I had a $ for everytime I have heard 'it was normal' and found that it wasn't. Get the paperwork and do your own research. Our Dr gives us all the paperwork automatically & free.

Felidae Enthusiast
If it was me I would just get the paperwork. I wish I had a $ for everytime I have heard 'it was normal' and found that it wasn't. Get the paperwork and do your own research. Our Dr gives us all the paperwork automatically & free.

I'm going to book an appointment to get the paperwork. It just seems like such a waste for the doctor to get paid again just to photocopy my results.

Nevadan Contributor

As georgie has said, check out the "StoptheThyroidMadness" website at Open Original Shared Link

I have recently begun having symptoms of hypothyroidism and have found the above website to be at least as beneficial for thyroid issues as this one is for gluten problems.

I'm one of those whose lab results are within spec but on the low end for free T3 and free T4 AND with a marginally low TSH. My previous doc said "no problem - don't worry about it". But with my hair thinning like crazy and my body temp running in the 95-96 range, I went and found another doc. This one agrees that labs aren't all that great and he is treating the symptoms with Armour Thyroid which I requested after doing some research including the above website.

Good luck.

George

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.